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Infusion for Raynauds question!
Hello everyone Infusion for Raynauds, will they offer it even if you don’t have digital
ulcers
? I have severe secondary Raynauds, pain is excruciating, takes my breath away. I’m on my second lot of meds which isn’t doing a thing. Could the infusion be an option to me? I live in th UK. TIA
Hello everyone Infusion for Raynauds, will they offer it even if you don’t have digital
ulcers
? I have severe secondary Raynauds, pain is excruciating, takes my breath away. I’m on my second lot of meds which isn’t doing a thing. Could the infusion be an option to me? I live in th UK. TIA
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Hello I'm elprof7557
Have 4 or 5 digital
ulcers
similar to very small razor blade cuts each winter.Am on adalat 30 in winter and 20 rest of year.
Have 4 or 5 digital
ulcers
similar to very small razor blade cuts each winter.Am on adalat 30 in winter and 20 rest of year.
elprof7557
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
I’m struggling :(
I went to see my GP last night and he said I have to wait until I see Dr John Pauling as he doesn’t feel comfortable giving me medication.... my hands are cracking open,
ulcers
, calcinosis !! I’m sad, I’m fed up, and I’m getting more and more impatient 😟
I went to see my GP last night and he said I have to wait until I see Dr John Pauling as he doesn’t feel comfortable giving me medication.... my hands are cracking open,
ulcers
, calcinosis !! I’m sad, I’m fed up, and I’m getting more and more impatient 😟
JazPont
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
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Chickpeas
After being vegetarian for 13 years (started eating meat in 2012) this was actually harder for me than most, but removing chickpeas, beans, lentils and even peanut butter seems to be really helping both gastro issues and even genital
ulcers
! Craziness.
After being vegetarian for 13 years (started eating meat in 2012) this was actually harder for me than most, but removing chickpeas, beans, lentils and even peanut butter seems to be really helping both gastro issues and even genital
ulcers
! Craziness.
ColdNoodleSoup
in
Behçet's UK
7 years ago
If swellling of the mouth common with mouth sores/ulcers?
Does anyone have swelling with their mouth sores? I havent got an official diagnoses but 2 specialist suspect BD. Even when the sores are tiny my lips are swollen (cheeks swelll if sores are in the back) and they hurt so freaking bad I think I must be crazy because they dont look that bad. I just havent
Does anyone have swelling with their mouth sores? I havent got an official diagnoses but 2 specialist suspect BD. Even when the sores are tiny my lips are swollen (cheeks swelll if sores are in the back) and they hurt so freaking bad I think I must be crazy because they dont look that bad. I just havent
chelseylauer
in
Behçet's UK
7 years ago
The other day
The GP I have cirrhosis then I ain't then liver dr says unlikely even she thought I had cancer had
ulcers
my bowels ain't right I'm f
The GP I have cirrhosis then I ain't then liver dr says unlikely even she thought I had cancer had
ulcers
my bowels ain't right I'm f
Faithfull
in
British Liver Trust
7 years ago
Third set of oral ulcers and can’t stop coughing for 3+’ months now
So after waiting to see if my 1st apthous oral ulcer would be followed by anymore after suffering from retinal vasculitis and BRAO OF RIGHT EYE , I’ve now had my 3rd outbreak of
ulcers
since 8/17. My eye issues have spontaneously resolved after being diagnosed in 6/16.
So after waiting to see if my 1st apthous oral ulcer would be followed by anymore after suffering from retinal vasculitis and BRAO OF RIGHT EYE , I’ve now had my 3rd outbreak of
ulcers
since 8/17. My eye issues have spontaneously resolved after being diagnosed in 6/16.
LostOH
in
Behçet's UK
7 years ago
Cholchine and joint pain
He has placed me on cholchine for my joint pain and
ulcers
. Does anyone have experience with how quickly this medication works? It's making me very sick to my stomach but I don't want to stop if it will also serve to tell us I am responsive. I am also on a highish does of prednisone.
He has placed me on cholchine for my joint pain and
ulcers
. Does anyone have experience with how quickly this medication works? It's making me very sick to my stomach but I don't want to stop if it will also serve to tell us I am responsive. I am also on a highish does of prednisone.
Stm252
in
Behçet's UK
7 years ago
Joint pain
Hi,was diagnosed with Behcets 2 years ago but I don't have mouth
ulcers
or any rashes anywhere but i am suffering pain in my right hand from elbow to my shoulder and i showed it to my doctor took some xrays and said that i have lot of inflammation and gave me steroid shot but it only helped for few
Hi,was diagnosed with Behcets 2 years ago but I don't have mouth
ulcers
or any rashes anywhere but i am suffering pain in my right hand from elbow to my shoulder and i showed it to my doctor took some xrays and said that i have lot of inflammation and gave me steroid shot but it only helped for few
Chaitali11
in
Behçet's UK
7 years ago
Diet support?
I have severe joint pain, fatigue,
ulcers
, significant weight loss, dry eyes, hair loss, rahses, chills, headaches...all of it. I have been doing this "diet" for about 2 months now.
I have severe joint pain, fatigue,
ulcers
, significant weight loss, dry eyes, hair loss, rahses, chills, headaches...all of it. I have been doing this "diet" for about 2 months now.
Stm252
in
Behçet's UK
7 years ago
Results Of Sputum Lab Works
Well received results of sputum sample submitted week ago. Results confirmed oral yeast infection MAINLY oral thrush. Guess that will teach me to take oral thrush more serious. Steriods antibiotics did nothing to help ONLY thing that helped was NYSTAN fungi throat drops. Its like revolving door of symptoms
Well received results of sputum sample submitted week ago. Results confirmed oral yeast infection MAINLY oral thrush. Guess that will teach me to take oral thrush more serious. Steriods antibiotics did nothing to help ONLY thing that helped was NYSTAN fungi throat drops. Its like revolving door of symptoms
Hidden
in
Lung Conditions Community Forum
7 years ago
New .
I was diagnosed with ITP over a year ago some of my symptoms seem to be coinciding with Lupus what are the symptoms of Lupus do not want to Google in case my symptoms point to this my symptoms are painful joints,fatigue,cold sores,
ulcers
, colds flu like symptoms have one now : ) I had shingles over
I was diagnosed with ITP over a year ago some of my symptoms seem to be coinciding with Lupus what are the symptoms of Lupus do not want to Google in case my symptoms point to this my symptoms are painful joints,fatigue,cold sores,
ulcers
, colds flu like symptoms have one now : ) I had shingles over
Topography52_-
in
LUpus Patients Understanding and Support
7 years ago
Help with writing to GP
Ulcers
, bleeding gums. Twitching in calfs, arm, face, eye. Sometimes blurred vision only a few times though. Mood swings . irritable. Clumsy bad balance. Forgetful Sharp pains in chest, pain in abdomen. Diarhea.
Ulcers
, bleeding gums. Twitching in calfs, arm, face, eye. Sometimes blurred vision only a few times though. Mood swings . irritable. Clumsy bad balance. Forgetful Sharp pains in chest, pain in abdomen. Diarhea.
kbel88
in
Pernicious Anaemia Society
7 years ago
Would someone have a glance at my symptoms and see if it is possible Behcet's please?
degenerative discs in my spine, arthritis in my hands, diabetes type 2, sleep apnoea, hyperhidrosis, Fibromyalgia (except I do not think it is as my pain seems different to that of my fibro friends) neuropathy, depression and anxiety, nausea, very poor mobility, nose sores, dry skin and eyes and mouth,
ulcers
degenerative discs in my spine, arthritis in my hands, diabetes type 2, sleep apnoea, hyperhidrosis, Fibromyalgia (except I do not think it is as my pain seems different to that of my fibro friends) neuropathy, depression and anxiety, nausea, very poor mobility, nose sores, dry skin and eyes and mouth,
ulcers
lottagelady
in
Behçet's UK
7 years ago
2nd mouth ulcer now. Started w retinal vasculitis and BRAO 1&1/2 years ago
At that time I had not had oral
ulcers
but had one time had genital
ulcers
. I’ve had dishydrotic eczema for 3 years on my feet though. Then in August 2017 I had a large non-healing aprhous ulcer on the roof of my mouth. Now I have another onthe opposite side. I’ve also had adult cystic acne.
At that time I had not had oral
ulcers
but had one time had genital
ulcers
. I’ve had dishydrotic eczema for 3 years on my feet though. Then in August 2017 I had a large non-healing aprhous ulcer on the roof of my mouth. Now I have another onthe opposite side. I’ve also had adult cystic acne.
LostOH
in
Behçet's UK
7 years ago
Oral thrush
Has anyone got any tips on how to get rid of oral thrush. I'm so fed up with having a sore mouth and everything tasting disgusting. I've tried Nystatin but it's not working for me.
Has anyone got any tips on how to get rid of oral thrush. I'm so fed up with having a sore mouth and everything tasting disgusting. I've tried Nystatin but it's not working for me.
Hidden
in
Lung Conditions Community Forum
7 years ago
Doctors
We have to live with this terrible disease and try to battle on with pain
ulcers
ect. For a Dr to tell me it ain't rare and that meds should start quickly.I'm on imuran and entacept injections have been. Why are we past from Dr to Dr and they don't help.
We have to live with this terrible disease and try to battle on with pain
ulcers
ect. For a Dr to tell me it ain't rare and that meds should start quickly.I'm on imuran and entacept injections have been. Why are we past from Dr to Dr and they don't help.
pete11
in
Behçet's UK
7 years ago
Sciatica and now mouth ulcers 😡
Hi there , i posted recently about severe sciatica which is no better, now for last week I have had mouth
ulcers
, the worse ones just inside my lips . I don’t know the cause , maybe because im feeling low or maybe because my white cell count is very low .
Hi there , i posted recently about severe sciatica which is no better, now for last week I have had mouth
ulcers
, the worse ones just inside my lips . I don’t know the cause , maybe because im feeling low or maybe because my white cell count is very low .
weathervane
in
NRAS
7 years ago
Heart issues - Pacemaker ? endocarditis
The most significant features has been the
ulcers
, red rashes in the mouth and a sore tongue and lips which did not improve with colchicine or steroids but is improving with Plaquenil. I have HLA B5. I also get little red sores on my arms, legs, scalp and neck.
The most significant features has been the
ulcers
, red rashes in the mouth and a sore tongue and lips which did not improve with colchicine or steroids but is improving with Plaquenil. I have HLA B5. I also get little red sores on my arms, legs, scalp and neck.
Asteroid
in
Behçet's UK
7 years ago
Clinical Trials
Many transplant recipients wound up with
ulcers
and some had daily diarrhea. In the study I would either receive cellcept or the new improved version of the drug ERL13 that had less side effects. Yes, I found out at the end of the study that I was taking Cellcept and I did have daily diarrhea.
Many transplant recipients wound up with
ulcers
and some had daily diarrhea. In the study I would either receive cellcept or the new improved version of the drug ERL13 that had less side effects. Yes, I found out at the end of the study that I was taking Cellcept and I did have daily diarrhea.
WYOAnne
NKF Ambassador
in
Kidney Transplant
7 years ago
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