Behcet's Syndrome Society
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Chickpeas

Hey guys. Another food post! So many of you have posted triggers to your symptoms so I thought I’d add another ;)

Super strange one for me, but it’s legumes! After being vegetarian for 13 years (started eating meat in 2012) this was actually harder for me than most, but removing chickpeas, beans, lentils and even peanut butter seems to be really helping both gastro issues and even genital ulcers! Craziness. Anyways, much easier fix than coffee or alcohol haha so hopefully it works for others as well.

Got me thinking about how many chickpeas I’ve eaten over the years due to my middle eastern heritage... maybe THATs why it’s common in Turkey!

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I pretty much have reactions to most vegetables and fruits. Check out my earlier post where I talked about this: healthunlocked.com/behcetsu...

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Is the vegetables night shades?

What is your signs with this reaction ?

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Every vegetables including nightshares. I don't eat any vegetables at all. My signs are cankers in my mouth and swelling in my joints. The only thing I eat is meat.

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I’m so sorry, but at least now you know what triggers you!

My Gp has put me on a Paleo/autoimmune type eating plan and that’s hard! Cause along with that I’m NO DAIRY, GLUTEN AND SUGAR she also has me watching my nitrates so finding foods you can eat has been tough as these restrictions narrow what you can eat. I’m doing a big detox plan for 3-6 months then I’ll retest for my toxin levels and Candaia (yeast) levels then will continue for another 3 months.

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You should try an all meat diet too to see if it will help you.

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I've been on AIP since the end of December. It's super restrictive. I feel ya.

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Doesn't most research indicate that red meat is the major source of inflammatory in the modern diet, I'm very happy that you've found something that works for you but I don't understand the logic in a meat only diet. Personally I find meat to be huge trigger of my ulceration. I suspect supermarket meat is the most toxic thing in the modern western diet, packed full of chemicals. I very well may be wrong though :)

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Yeah there's a big disconnect between what 'science' says and what our real world experiences are. Other people have messaged me about this diet saying it's helped them too so I'm not the only one. I guess real world people suffering through these diseases have better insight than some scientists in a laboratory crunching numbers. BTW, after some time, cooked meat was triggering me as well but switching to raw meat has gotten me to 100% symptom free so you should try that.

If you really are getting symptoms from meat then can you tell me:

1) What animal were you specifically eating.

2) How much did you cook it.

3) Where did you get this meat from.

4) Are you sure it was the meat alone and not the seasoning on it or other things you ate with it.

Definitely go for the high quality grass fed local meat if you can though.

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Hi Najeebo. Thanks for your response, I couldn't agree more that sometimes scientific findings don't correspond with our real life experiences. I just find it it super interesting that your meat based diet isn't causing major inflammation issues for you. I personally found beef and chicken to be aggravating to my symptoms. I mainly eat a plant based diet with no gluten, no dairy, no processed foods and no refined sugar. I don't think my stomach could handle eating rare meat all the time, I usually cook my meat till it is just cooked, maybe a bit tiny bit of blood with lamb.. I buy high quality meat sourced from a local butcher. It's very possible it could be the seasoning used or another ingredient with in my dish, i eat pretty basic simple dishes though. I currently only eat lamb and fish 1-2 times per week. These meats I am okay with in moderation :) Our bodies are all so different, I'm very happy that you found something that works for you and your sharing this with this community! All the best

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Yeah maybe everyone is different. But I would definitely say that if you do try it in the future, try it strict meat only since that allows the bacteria in your stomach to change to be better suited to digest meat. And yeah, seasoning is definitely a big no-no for me since it's a huge trigger. I don't even salt my meat anymore, just eat it straight raw with nothing added to it. And only drink water.

I want to mention that chicken is actually a huge trigger for me so not all meat is created equal. I tolerate red meat the best and beef especially. I just want to make sure you're not mixing the times you ate chicken and got reactions with the times you ate beef.

Are you on any medication right now?

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That's interesting about chicken, I have read that chicken is the meat with highest amount of hormones and antibiotics. I thought I might be reacting to these chemicals. I'm Currently tapering down off pred and have been on colchicine for a year or so. I haven't been officially diagnosed, my specialists suspect Behcet's or some related autoimmune condition. Thank you for your suggestion to try a meat only diet, I may very well try it at some stage!

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i love food posts. i love self awareness/experiments!

im glad you pinpointed a trigger for you!

peanut butter is fine for me, as long as there is no cane sugar. beans actually have a calming effect on my stomach (i think im very alone on this one) as i can eat A LOT, and have zero issues (no farting, bloating, nothing). i actually had some refried beans as a snack yesterday (before squats too) LOL :P

since stopping hormonal birth control, im trying to see if my sucrose intolerance is due to the behcets or the BC.(apparently there is a very small percent of women who start hormonal BC, specifically MINE, become carbohydrate intolerant- WHAT A QAWINKY DINK)

Im going to eat a banana today and see! bananas and apples were the last fruits i cut about 3 years ago. I pretty much have cut all fruit because of how horrible my stomach gets. sooooo well see!

thanks for posting- LOVE IT

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So can you eat any nut butters? Almond butter?

Is. Coffee bad for people with Bechet’s?

Interesting about the legumes have you heard or watched Dr Gundry?

He says lectins are bad for some people.

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I haven’t tried any other nit butters. Almonds give me bad stomach aches too though so might just hold off. I haven’t heard of Dr Gundry, but have been reading about lectins. So interesting and weird. It all just shows how much more we have to learn

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selfhacked.com/blog/podcast...

I’ll post the first part too just realized it’s a 2 part series 😆

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Here a Utube video

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AIP is been more restrictive than Gundry!

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Google Dr Gundry and quack

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Barry71

I’m sorry you feel that way, but in my experience I’ve done western medicine functional medicine and eastern medicine.(accupunture,) I myself have had better results with the functional medicine approach. I am not against using or having to take prescriptions medication but the functional medicine approach is you test your micronutrients and see what amino acids, vitamins and minerals you are low/deficient in and you supplement those this helps you heal yourself at the cellular level. It’s really interesting and trust me I was skeptical until I had the test started supplementing and retested and I saw the difference in front of my face of the 2 tests. I have also done a toxin test that shows what environmental toxins I have that are high in my body (gasoline, plastics,candaia)

I have done a blood test for allergies and food sensatives.

I have done the 23 & Me Health and Ancestry (this will show the genetic pathways and if I have gene mutation, I have found out I have a B VITAMIN mutation my system needs to have it in the methycobalamin form. Or I don’t absorb my B vitamins. It’s a gene mutation my whole family has.

I have noticed with this disease each person has to figure out what works for them and not two people are alike.

So for me I am searching for ways maybe people don’t want to venture into.

But the whole idea of this forum is to share our stories and bounce what we’ve done that’s worked in hopes that it will help someone else that has been suffering that may not have thought or been told about what you have done that’s working.

I’m sorry if you are suffering with this dreadful autoimmune disease it’s a terrible disease and very painful and can be debilitating. I wish you nothing but the best and hope that you find what makes you better. GOD SPEED!

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I do believe diet can make a difference, and even had a meal last night after reading about his food recomendations, but I do think people should Google his name and quack, and see how he misleads to back up his version of things.

It is 6.30am and I have been up nearly an hour, which is unusual for me. I think what I ate has something to do with this, I ate a plate full of broccoli cauliflower and fennel, with some steak and liver from a local butcher for dinner last night. I was starving again a few hours later, and went to bed hungry, and I think the fact what I ate was easy to digest was the main thing.

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Or that it was carb free?

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I'm reading a book at the moment called the autoimmune solution, it's a little over the top at times but theres definitely some great info about diet in there. One of the food they suggest leaving out is legumes, because they are pro inflammation. Can any one confirm if this is true? I'm half Indian and lentils are a staple in my diet!

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I know that it’s hard to believe but it’s worth trying it to see if it is the problem. I’ve had to do a big diet change

10 days NO DAIRY & NO SUGAR

21 days NO GLUTEN

Plus taking out most fruits/veggies

Following a Paleo and autoimmune diet

No foods that are high oxylate (google that list 😳) it was all the healthy things I was eating a lot of. 😏😩

I’ve been doing that since 1-2-2018.

I will retest the toxins and see where I’m at and also what food allergies were.

I’ve been told to watch on Netflix

“What the Health” along with so many others it’s how they have changed how things are grown & processed that have made us all sick and more autoimmune diseases.

Good luck.

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Awesome, thanks for the tips! I'll definitely check out that show and research oxylates. Thank you :)

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It’s high oxylate Foods 😊

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I think we’re all different. I have noticed improvement since cutting out legumes, but didn’t notice any difference in cutting out dairy like a lot of people have. Trial and error, and fingers crossed your triggers aren’t foods you love!

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Okay I think I might give legumes a break for a little while and see how I feel. Thanks for sharing :)

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Proper soaking and cooking with a pressure cooker is supposed to help, so if you did reintroduce lentils etc to your diet this may be worth a try?

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