Experiences with

Truxima

does anyone have horrible stomachache and gas after taking Truxima? I swear you and smell the medicine seeping out of my skin too. I have an extremely sensitive nose. It’s driving me crazy.

In March I had 4 infusions of Truxima, and have been tapering prednisone from 60mg to 5 mg. Sleeping better now and prednisone brain has disappeared. BUT, now my worry is hair loss!! My rheumatologist said this can occur with a systemic disease, but will improve.

In January I was diagnosed with ANCA Vasculitis and have received 4 infusions of Truxima, injections of Evusheld, and another covid booster. I am tapering prednisone pretty quickly as protocol seems to dictate.

Underwent four infusions of truxima and now tapering prednisone quickly. I feel like I am experience withdrawal symptoms…headaches, fatigue, dizziness. Is it normal to suffer withdrawal?

Does anyone have experience with a Truxima infusion?

I've been given a Truxima infusion for Rheumatoid Arthritis 10 days ago but I'm still feeling really poorly particularly at night. I read it takes 5/6 weeks to be effective but just feel it's not going to be in my case as I usually respond to all medications very quickly.

No infusion of Truxima since june 2019... on the waiting list for repeats. ???

I was expecting my next Truxima infusion on Tuesday but have received a letter from the clinical director of my Rheumatology department only this morning informing me it will be RIXATHON instead. The reason given is that it is now significantly cheaper than Truxima.

Does anyone get strange effects from 6 week point after first two infusions? I did get pretty bad hot and cold episodes for a week or so straight after the second infusion. I’ve got intermittent hot all over (no temp) with sweat beading on forehead; intermittent chills; intermittent prickling like needles

Hi I live in northern Ireland and was due my second course of truxima on Thursday but have received a letter not to attend and wait on a phone call from the team I am worried about not getting my medication as I am already in a lot of pain.

So 2 years of rattling like a pill bottle on various high dose steroids and immunosuppressants and Rituximab/ Truxima and honestly struggling to carry on with normal life I was finally told I'm clear to try a last ditched attempt at a family.

My dilemma is.... do I put off the truxima infusions and go for the op or stick with the infusions and put back the op.

I’ve been feeling a bit more blurgh than usual after these infusions and just put it down to the Christmas rush prep etc, I’ve just pulled out my alert card and it says I was treated with Truxima (Rituximab) when I used to receive Mabthera (Rituximab).

I started truxima and have had both dosages and I have developed a rash on my arms and chest just wondering if anyone else has experienced this

Following some other posts I have seen, has anyone had Truxima infusions and done well?

Hi just wondering if anyone is or has been on truxima as I am starting it tomorrow. I previously have tried humira which done good for about 2 years before it stopped working then was put on enbryl but it didn't work for me at all. Here's hoping this works

No success yet from the latest (Truxima). I am now doing my own research into alternative pain relief. Social media is full of American Snake Oil salesmen that make claims for their own magic products. I have yet to find anything that even remotely lives up to its claims.

Hi guys, I'm new to this community, been a member of NRAS for years; I've been on Rituximab and now the bio-similar 'Truxima' for about 5 years total.

I’ve had my first cycle of Truxima and it already seems to be working for me. I’m not needing painkillers and even the swelling in my hands and fingers seems less. My daughter noticed my walking gait is “less like a penguin now” (cheeky madam!)

Had to be off treatment of Truxima for 4 months as having hip replacement. Due second infusion in a few days but still feeling ropey from first one a fortnight ago. I had forgotten that I seem to get flu like symptoms with aching muscles, constant headache and general yuckiness.