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Experiences with
Transurethral resection of the prostate (TURP)
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BROQ/Prostaphane
Last week I had my 3 monthly PSA check and was happy and surprised to see that it had remained unchanged at 0.07. It had previously been creeping up and I am not currently on any treatement since my Cyberknife to a lymph node in December 21 together with 6 months of bicalutamide. I take a large variety
Last week I had my 3 monthly PSA check and was happy and surprised to see that it had remained unchanged at 0.07. It had previously been creeping up and I am not currently on any treatement since my Cyberknife to a lymph node in December 21 together with 6 months of bicalutamide. I take a large variety
GreenStreet
in
Fight Prostate Cancer
8 months ago
My trajectory after a "vacation" and a new metastasis
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
Istomin
in
Advanced Prostate Cancer
8 months ago
PSA still undetectable?
Prostatectomy September 2022. PSA since op 0.01 latest PSA 0.03 Urologist states will check it again in 3 months rather then 6. 0.03 still very low but why the rise. Could the cause be micro prostate cancer cells hiding somewhere? PSMA pet scan pre op all clear apart from the two lesions in Prostate
Prostatectomy September 2022. PSA since op 0.01 latest PSA 0.03 Urologist states will check it again in 3 months rather then 6. 0.03 still very low but why the rise. Could the cause be micro prostate cancer cells hiding somewhere? PSMA pet scan pre op all clear apart from the two lesions in Prostate
Aussieguy1
in
Prostate Cancer And Gay Men
5 months ago
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Looking for Estrogen users...
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
janebob99
in
Prostate Cancer Network
5 months ago
Looking for Estrogen Users...
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
Hello, I'm doing a survey of estrogen users. I'd like to find out: 1. How many patches or gel pumps do you use a day, or a week? And what dose of E2 patches do you use? 2. What's your PSA? 3. What's your estradiol? 4. What's your testosterone? 5. What's your DHT (if you measure it)? 6. How
janebob99
in
Advanced Prostate Cancer
5 months ago
Fosfestrol (Honvan)
New paper from India [1]. "
Outcomes and toxicity of oral Fosfestrol in metastatic castration-resistant prostate cancer-a real-world experience
" This brought back memories of being in groups shortly after I was diagnosed. There were men who discussed where to obtain Honvan (Forfestrol) a
New paper from India [1]. "
Outcomes and toxicity of oral Fosfestrol in metastatic castration-resistant prostate cancer-a real-world experience
" This brought back memories of being in groups shortly after I was diagnosed. There were men who discussed where to obtain Honvan (Forfestrol) a
pca2004
in
Fight Prostate Cancer
10 months ago
Phase 1 trial participation Nurix NX-1607
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
konichiwa12
in
Advanced Prostate Cancer
7 months ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
8 months ago
Final Path Report After RALP (Dad - 74, G7- 4+3) , what’s next ?
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
EzioAudi7
in
Advanced Prostate Cancer
8 months ago
Shawty got low, low, low, & the Beat goes On. PSA update!
https://youtu.be/ckKFxMw6z0c?si=uEmAdIKQg-1jg-Hw https://youtu.be/9lkfrtztqEY?si=EBG_OJ3pB1LcBRQ0 I dunno why it's still droppin' almost a year post 28 IMRTs but I ain't gon complain 😜 Maybe I have Someone to watch over me https://youtu.be/g8J2Gb-hMIY?si=FYnNKgYTgkpdC4ud Life is Beautiful https
https://youtu.be/ckKFxMw6z0c?si=uEmAdIKQg-1jg-Hw https://youtu.be/9lkfrtztqEY?si=EBG_OJ3pB1LcBRQ0 I dunno why it's still droppin' almost a year post 28 IMRTs but I ain't gon complain 😜 Maybe I have Someone to watch over me https://youtu.be/g8J2Gb-hMIY?si=FYnNKgYTgkpdC4ud Life is Beautiful https
dockam
in
Advanced Prostate Cancer
5 months ago
Result of Liver Biopsy - Any Insights?
This is the result of my liver biposy. Any insights on the comment? ----- CLINICAL HISTORY>>:: Prostate Ca with hepatic mets ?Small cell transformation versus other. FINAL DIAGNOSIS>>:: LIVER NODULE, CORE BIOPSY: - POORLY DIFFERENTIATED PROSTATIC ADENOCARCINOMA WITH SMALL CELL TRANSFORMATION
This is the result of my liver biposy. Any insights on the comment? ----- CLINICAL HISTORY>>:: Prostate Ca with hepatic mets ?Small cell transformation versus other. FINAL DIAGNOSIS>>:: LIVER NODULE, CORE BIOPSY: - POORLY DIFFERENTIATED PROSTATIC ADENOCARCINOMA WITH SMALL CELL TRANSFORMATION
skiingfiend
in
Advanced Prostate Cancer
5 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
8 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
8 months ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
8 months ago
Detection of Small Cell Prostate Cancer
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
dac500
in
Advanced Prostate Cancer
8 months ago
Effects of fenbendazole and vitamin E succinate on the growth and survival of prostate cancer cells
As I mentioned in a previous reply , here is an article on Fenben and VES.I added the VES (400mg} to my Fenben protocol few weeks age taken along with Tudca and Bovine Lactoferrin for my morning dosing. Mid afternoon it's Fenben/DMSO , Evening is Ivermectin / Tudca / Lactoferrin. Herbs etc in between
As I mentioned in a previous reply , here is an article on Fenben and VES.I added the VES (400mg} to my Fenben protocol few weeks age taken along with Tudca and Bovine Lactoferrin for my morning dosing. Mid afternoon it's Fenben/DMSO , Evening is Ivermectin / Tudca / Lactoferrin. Herbs etc in between
85745
in
Advanced Prostate Cancer
10 months ago
Combine standard care with alternative care
The University of Maryland reported two cases of terminated PCs by combining standard care treatment with an alternative treatment. By reducing the PSAs to less than 3, the clioquinol + zinc killed more cancer than testosterone could renew, therefore termination. My PSA in three months went from 58
The University of Maryland reported two cases of terminated PCs by combining standard care treatment with an alternative treatment. By reducing the PSAs to less than 3, the clioquinol + zinc killed more cancer than testosterone could renew, therefore termination. My PSA in three months went from 58
agnut
in
Fight Prostate Cancer
8 months ago
beta sitosterol
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Nowhereman9
in
Advanced Prostate Cancer
10 months ago
PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
8 months ago
Scientists identify 11 new genes linked to aggressive prostate cancer
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
V10fanatic
in
Advanced Prostate Cancer
10 months ago
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