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Question of the week!
What advice do you have for talking with your friends, family and coworkers about being on dialysis?
What advice do you have for talking with your friends, family and coworkers about being on dialysis?
YollyD_NKF
in
Kidney Dialysis
6 years ago
Delaying dialysis
I'm 64, with CKD. Good on sodium and potassium, but high in creatinine at 7.0,GFR around 10. Nephrologist wants to proceed to PD but I have no symptoms (fatigue, edema, nausea, shortness of breath, etc) and feel good. I'm okay with having surgery for access but want to defer dialysis until the ckd
I'm 64, with CKD. Good on sodium and potassium, but high in creatinine at 7.0,GFR around 10. Nephrologist wants to proceed to PD but I have no symptoms (fatigue, edema, nausea, shortness of breath, etc) and feel good. I'm okay with having surgery for access but want to defer dialysis until the ckd
fleo
in
Kidney Disease
6 years ago
Waiting for a kidney transplant in Washington, DC
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Kidney4elinga
in
Kidney Transplant
6 years ago
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Son
My son has IGA. He went into a treatment of dialysis and chemo for 6 months. It did not work. Now, he is on the waiting list for a new kidney. His father and I started the process to see if we can donate a kidney. It has been a up and down road not only for my son but for me. He does not complaint about
My son has IGA. He went into a treatment of dialysis and chemo for 6 months. It did not work. Now, he is on the waiting list for a new kidney. His father and I started the process to see if we can donate a kidney. It has been a up and down road not only for my son but for me. He does not complaint about
bailar5
in
Parents of Children with Kidney Disease
6 years ago
The time has come....
well, it looks like the time has come. My doctor wants me to see a surgeon to have the access point put in for PD dialysis. So, I am going for my consultation this morning. I'm scared! Scared of the operation, scared of the recovery time, but mostly scared of dialysis!! I miss my old life. My latest
well, it looks like the time has come. My doctor wants me to see a surgeon to have the access point put in for PD dialysis. So, I am going for my consultation this morning. I'm scared! Scared of the operation, scared of the recovery time, but mostly scared of dialysis!! I miss my old life. My latest
Nikki41775
in
Kidney Disease
6 years ago
CKD Stage 4 to End Stage progression timelines.
My father, age 61 has been diagnosed today with Stage 4 CKD with his eGFR at 24. He has been a patient of Type2 Diabetes and High Blood Pressure for past 15 years. He had his Gall Bladder removed due to stones about 19 years ago. Due to sleep issues he used to take sleeping pills at night which his
My father, age 61 has been diagnosed today with Stage 4 CKD with his eGFR at 24. He has been a patient of Type2 Diabetes and High Blood Pressure for past 15 years. He had his Gall Bladder removed due to stones about 19 years ago. Due to sleep issues he used to take sleeping pills at night which his
Sk_S
in
Kidney Disease
6 years ago
Low blood pressure during dialysis causing problems for my elderly mum - anybody else experiencing this?
Mum is 80, was diagnosed with lung cancer in Feb this year and then ESRF 3 months ago. She has been having dialysis 3 times a week through a tunnelled line in her chest as she is unable to have fistula and recently has been having problems with hypotension during dialysis which is drastically affecting
Mum is 80, was diagnosed with lung cancer in Feb this year and then ESRF 3 months ago. She has been having dialysis 3 times a week through a tunnelled line in her chest as she is unable to have fistula and recently has been having problems with hypotension during dialysis which is drastically affecting
Boodlesmum
in
Kidney Dialysis
6 years ago
Anoxic brain injury , how long to response time in weeks ?
How long does it take for a semi conscious person to wake up after anoxic brain injury.? It’s brain damage after cardiac arrest ( 20-25 mins without oxygen ) icu for 3 weeks , coma 2 weeks. We are in wk 8 post injury. WAke and zzz cycles ( sleeps more than awake) . Eyes open , head turning, fingers
How long does it take for a semi conscious person to wake up after anoxic brain injury.? It’s brain damage after cardiac arrest ( 20-25 mins without oxygen ) icu for 3 weeks , coma 2 weeks. We are in wk 8 post injury. WAke and zzz cycles ( sleeps more than awake) . Eyes open , head turning, fingers
Worriedfor
in
Headway
6 years ago
Don't Give Up Hope - Miracles Do Happen .... Surviving ECMO
My daughter fell ill on 29th Aug 2018. She was rushed by ambulance to the local hospital. She was placed in an induced coma and ventilated almost right away. They did tests and found she had influenza A and from that had contracted viral pneumonia and unfortunately ARDS. We were told by the doctor of
My daughter fell ill on 29th Aug 2018. She was rushed by ambulance to the local hospital. She was placed in an induced coma and ventilated almost right away. They did tests and found she had influenza A and from that had contracted viral pneumonia and unfortunately ARDS. We were told by the doctor of
sonyahmaree
in
ICUsteps
6 years ago
Why I advocate for Pediatric Kidney Patients
People ask me all the time, what is my motivation to advocate for Pediatric Kidney Patients? This lady in the photograph is. Her name was Maureen O'Brien. She was one of the first people in Indiana on dialysis at the age of 6. This was not in the era of Medicare/ automatic qualification for dialysis
People ask me all the time, what is my motivation to advocate for Pediatric Kidney Patients? This lady in the photograph is. Her name was Maureen O'Brien. She was one of the first people in Indiana on dialysis at the age of 6. This was not in the era of Medicare/ automatic qualification for dialysis
kidneystories
in
Parents of Children with Kidney Disease
6 years ago
Home PD dialysis...not diabetic.
My Husband will be starting PD dialysis in one week...Losing weight..vomiting at night..always feeling cold. No appetite...he is very small framed. Any recommend to vitamins? PLS
My Husband will be starting PD dialysis in one week...Losing weight..vomiting at night..always feeling cold. No appetite...he is very small framed. Any recommend to vitamins? PLS
Annandale1
in
Kidney Dialysis
6 years ago
Many years
Hi all I seen this group an thought I'd join..I started with dialysis when I was 11 years old.. im 45 now an had 3 transplants which lasted a total of 10 years.. I think the news tries to make out that dialysis is worse than it actually is.. if you don't miss treatment you can live a healthy life away
Hi all I seen this group an thought I'd join..I started with dialysis when I was 11 years old.. im 45 now an had 3 transplants which lasted a total of 10 years.. I think the news tries to make out that dialysis is worse than it actually is.. if you don't miss treatment you can live a healthy life away
Taylor1506
in
Dialysis Support
6 years ago
Sickle Cell News Week
SickleCellNewsWeek Cecilia Tiwaah Abrefa recalls waking up one day to find she could not lift her limbs or sit unaided – it took six years to get back to (a semblance of) normal http://bit.ly/2KasXpR High altitudes are proven crises-triggers. Yet Kevin is adamant he wants to be a FIGHTER PILOT. He
SickleCellNewsWeek Cecilia Tiwaah Abrefa recalls waking up one day to find she could not lift her limbs or sit unaided – it took six years to get back to (a semblance of) normal http://bit.ly/2KasXpR High altitudes are proven crises-triggers. Yet Kevin is adamant he wants to be a FIGHTER PILOT. He
sicklecellnews
in
Sickle Cell Society
6 years ago
AKF Safety Net Program
FYI: I received an application from my dialysis center's Social Worker yesterday for American Kidney Fund's "Safety Net Program" that dialysis patients may want to check out. Here is the link to the info: www.kidneyfund.org/safetynet AKF will help patients with financial challenges to pay for all
FYI: I received an application from my dialysis center's Social Worker yesterday for American Kidney Fund's "Safety Net Program" that dialysis patients may want to check out. Here is the link to the info: www.kidneyfund.org/safetynet AKF will help patients with financial challenges to pay for all
TaffyTwoshoes27
in
Kidney Disease
6 years ago
Transplant Insurance Coverage
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
TaffyTwoshoes27
in
Kidney Disease
6 years ago
Appetite
How do you increase appetite for a hemo dialysis patient? My husband won't eat. Loosing a lot of weight.
How do you increase appetite for a hemo dialysis patient? My husband won't eat. Loosing a lot of weight.
Plumeria
in
Kidney Dialysis
6 years ago
Dialysis
How we make entry of dialysis patient........?
How we make entry of dialysis patient........?
arifpak
in
Kidney Dialysis
6 years ago
New to low GFR
I took Advil for years with chronic pain from a traumatic auto accident. After surgeries, my specialists even told me I could take 800mg at a time after 48 hours had passed. Finally, a somewhat unscrupulous neurologist told me to stop taking any NSAID. However, he didn't refer me to a nephrologist nor
I took Advil for years with chronic pain from a traumatic auto accident. After surgeries, my specialists even told me I could take 800mg at a time after 48 hours had passed. Finally, a somewhat unscrupulous neurologist told me to stop taking any NSAID. However, he didn't refer me to a nephrologist nor
Dangermom13
in
Early CKD Support
6 years ago
Age 62 CKD stage 5 egfr 5 and Creatinine 10.32. Not on dialysis yet
Hello all, My father's age is 62 years. He has been diagnosed with ckd 3 since 3 years and now he is on ESRD (End stage renal disease) with an EGFR of 5 mL/min and creatinine is 10.32 mg/dL. Our nephrologist has yet not said anything about dialysis. Should dialysis be started not because egfr is very
Hello all, My father's age is 62 years. He has been diagnosed with ckd 3 since 3 years and now he is on ESRD (End stage renal disease) with an EGFR of 5 mL/min and creatinine is 10.32 mg/dL. Our nephrologist has yet not said anything about dialysis. Should dialysis be started not because egfr is very
SilentEyez
in
Kidney Dialysis
6 years ago
CKD Stage 5 with EGFR 5mL/min and creatinine 10.32 mg/dL
HI, My fathers age is 62 and he is facing ckd stage 5 with recent egfr 5 and creatinine 10.32. Nephrologist we are referring to hasnt yet said anything about dialysis yet. He has not other problem along with ckd like hypertension or diabetes. Am curious should we start dialysis or not. I want to save
HI, My fathers age is 62 and he is facing ckd stage 5 with recent egfr 5 and creatinine 10.32. Nephrologist we are referring to hasnt yet said anything about dialysis yet. He has not other problem along with ckd like hypertension or diabetes. Am curious should we start dialysis or not. I want to save
SilentEyez
in
Early CKD Support
6 years ago
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