I could have written this myself almost to the word, apart from all the small details.
I agree with all of this. Very similar to me, only I was lucky to have visitors last year so yes 100% agree that sitting and talking helps. Hope your recovery is going in the right direction.
Hi sounds just like my experience. Yes Intubation and Tracheotomy are not easy to deal with. I can relate to you with the Tracheostomy, I likened it to others how I assume the ordeal of locked in syndrome must feel like. The feeling of not being able to communicate to the outside world.
Yes loss of muscle mass etc no concept of day or night is hard no clock to gauge when they say family member is coming in and you’re left with in you’re mind is that an hour, half a day or night when and no way if asking.
All this mix up with delirium is strange and confusing.
Even though I couldn’t communicate I did hear family say things and time just flew because it seemed like they just got there. But sort of comforting at the same time
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