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Tocilizumab
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Tocilizumab
Hi I started
tocilizumab
about 22 weeks ago and it hasn't helped at all and I have gained half a stone in no time despite my exercise and healthy eating efforts ..it's so frustrating ....so 2 weeks ago I told my rheumatologist that I was coming off it as I can't afford to gain anymore weight .....my
Hi I started
tocilizumab
about 22 weeks ago and it hasn't helped at all and I have gained half a stone in no time despite my exercise and healthy eating efforts ..it's so frustrating ....so 2 weeks ago I told my rheumatologist that I was coming off it as I can't afford to gain anymore weight .....my
994464
in
NRAS
3 years ago
How long does tocilizumab stay in your system
Hi all Does anybody know how long toci usually stays in your system? As it is weekly I was thinking not that long maybe a month at best. I was due a hip replacement on the 23rd July so stoped the toci 2 weeks before. The op got cancelled 3 days before because my iron was low but that righted itself quickly
Hi all Does anybody know how long toci usually stays in your system? As it is weekly I was thinking not that long maybe a month at best. I was due a hip replacement on the 23rd July so stoped the toci 2 weeks before. The op got cancelled 3 days before because my iron was low but that righted itself quickly
Kershon
in
NRAS
3 years ago
Is it Age, RA or meds?
RA is behaving itself for the most part, thanks to the
Tocilizumab
. Still get pain, I can still overdo it, but gosh it has made such a massive difference to my life. The past 7 months have been so much better than I could have hoped for back in January.
RA is behaving itself for the most part, thanks to the
Tocilizumab
. Still get pain, I can still overdo it, but gosh it has made such a massive difference to my life. The past 7 months have been so much better than I could have hoped for back in January.
Brushwork
in
NRAS
3 years ago
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Travel with Tocilizumab
Hi, wondering if anyone has advice regarding travel with
Tocilizumab
. I am travelling to Canada in September ( 9 hr BA flight from London) and will need to take 3 vials and wondering how to keep them at temperature. Has anyone any experience. Thanks
Hi, wondering if anyone has advice regarding travel with
Tocilizumab
. I am travelling to Canada in September ( 9 hr BA flight from London) and will need to take 3 vials and wondering how to keep them at temperature. Has anyone any experience. Thanks
Hiland
in
PMRGCAuk
3 years ago
Dizzy and Falling Over constantly
I will be starting
Tocilizumab
eventually, but I am now having feelings of not being able to control my body. I get very scared and can't go out in case I fall over.
I will be starting
Tocilizumab
eventually, but I am now having feelings of not being able to control my body. I get very scared and can't go out in case I fall over.
tazman3
in
NRAS
3 years ago
Checking for flare when on tocilizumab
Hi has anyone come across how they can check inflammation levels when on
tocilizumab
?
Hi has anyone come across how they can check inflammation levels when on
tocilizumab
?
Devoid
in
Vasculitis UK
3 years ago
Humira not working
Have had
tocilizumab
which was great for about 16 months then it just stopped working also tried Bengali which didn’t really do anything tried looking online but not enough details to make a decision has anyone tried these medications?
Have had
tocilizumab
which was great for about 16 months then it just stopped working also tried Bengali which didn’t really do anything tried looking online but not enough details to make a decision has anyone tried these medications?
Susiequest
in
NRAS
3 years ago
Tocilizumab
Hi everyone Iv been on these injections and Iv noticed that I’m gaining weight has anyone else had this 💕💕
Hi everyone Iv been on these injections and Iv noticed that I’m gaining weight has anyone else had this 💕💕
Beth72
in
NRAS
3 years ago
Just 4 days delay taking Tocilizumab...
Due to an infection I had to delay my Toci injection. How can missing my next dose by 4 days cause my body to react with roaming pain, tenderness and joints not working properly. I was a bit surprised at the level of pain and the number of joints that were affected and the speed of it too. The RA gremlin
Due to an infection I had to delay my Toci injection. How can missing my next dose by 4 days cause my body to react with roaming pain, tenderness and joints not working properly. I was a bit surprised at the level of pain and the number of joints that were affected and the speed of it too. The RA gremlin
Brushwork
in
NRAS
3 years ago
Tocilizumab delay due to shortage
Anybody else been told their
Tocilizumab
will be late due to a national shortage? I just got a text today to say my delivery will be late, I rang Lloyd’s yesterday as have used my current supply and hadn’t heard anything. It says I’ll hear more by post?!
Anybody else been told their
Tocilizumab
will be late due to a national shortage? I just got a text today to say my delivery will be late, I rang Lloyd’s yesterday as have used my current supply and hadn’t heard anything. It says I’ll hear more by post?!
Badger22
in
NRAS
3 years ago
Roactemra Tocilizumab - lab out of stock - advice needed please.
Some of you may remember that I am taking
Tocilizumab
injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients.
Some of you may remember that I am taking
Tocilizumab
injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients.
Frenchduck
in
PMRGCAuk
3 years ago
Tocilizumab
Hi everyone, I've started on
tocilizumab
3 weeks ago. I've developed a rash on my arms and back, Has anyone ever experienced this?
Hi everyone, I've started on
tocilizumab
3 weeks ago. I've developed a rash on my arms and back, Has anyone ever experienced this?
Hidden
in
NRAS
3 years ago
Tocilizumab treatment extension, and latest PET-CT scan results
She had also requested a PET-CT scan to see definitively if the
Tocilizumab
injections had been able to stop the attack on my arteries (- I have now been on
Tocilizumab
weekly injections for 2 years, and for the past 14 months, have been completely off Prednisolone).
She had also requested a PET-CT scan to see definitively if the
Tocilizumab
injections had been able to stop the attack on my arteries (- I have now been on
Tocilizumab
weekly injections for 2 years, and for the past 14 months, have been completely off Prednisolone).
Suzita76
in
PMRGCAuk
3 years ago
tocilizumab or ...death
https://www.versusarthritis.org/about-arthritis/treatments/drugs/
tocilizumab
/ "If you’re an adult, you will also be screened for hepatitis B and C infection" Oho- I was screened for HepB&Crecently so it looks as if my Rhoom may be planning to pump me full of Toxizoombaba.
https://www.versusarthritis.org/about-arthritis/treatments/drugs/
tocilizumab
/ "If you’re an adult, you will also be screened for hepatitis B and C infection" Oho- I was screened for HepB&Crecently so it looks as if my Rhoom may be planning to pump me full of Toxizoombaba.
ignatz
in
PMRGCAuk
3 years ago
JAK inhibitors vs Tocilizumab vs Rituximab - side effects worry
Help & suggestions please! I need to get off Humira and my Rheumatologist has suggested these 3 options. I have looked at versusarthritis.com and the list of side effects scares me. Especially the shingles. Can anyone please shed any light on how bad the side effects and your personal experience? I am
Help & suggestions please! I need to get off Humira and my Rheumatologist has suggested these 3 options. I have looked at versusarthritis.com and the list of side effects scares me. Especially the shingles. Can anyone please shed any light on how bad the side effects and your personal experience? I am
UpandDown
in
NRAS
3 years ago
Has anyone got any experience of taking beta blockers whilst on prednisolone?
I'm on predisolone for GCA (and also
Tocilizumab
) and have come down to 20mg/day from 80mg/day in July. I can go out for a walk with normal heart rate and then occasionally when I stop my heart rate goes up and stays high for an extended period of time hovering around the 90-100bpm range.
I'm on predisolone for GCA (and also
Tocilizumab
) and have come down to 20mg/day from 80mg/day in July. I can go out for a walk with normal heart rate and then occasionally when I stop my heart rate goes up and stays high for an extended period of time hovering around the 90-100bpm range.
sequeluk
in
PMRGCAuk
3 years ago
No Actemra
Just went to order monthly supply of
tocilizumab
/Actemra. For the first time ever I was told to call back next week to see if they have any. She said there is a shortage. Anyone else have this happen? I'm in midwest USA.
Just went to order monthly supply of
tocilizumab
/Actemra. For the first time ever I was told to call back next week to see if they have any. She said there is a shortage. Anyone else have this happen? I'm in midwest USA.
Spanky2019
in
PMRGCAuk
3 years ago
Stomach issues
It can be one of the side effects from
tocilizumab
but I have been in out about 5 months now so would it have started before now if it is the
tocilizumab
? Also on other DMARDS but been on them years.
It can be one of the side effects from
tocilizumab
but I have been in out about 5 months now so would it have started before now if it is the
tocilizumab
? Also on other DMARDS but been on them years.
Kershon
in
NRAS
3 years ago
Tocilizumab
Hi everyone hope everyone is well Iv started my new meds 2 weeks ago and I’m feeling the difference at last they are working for me after trying all the other med that didn’t work feeling overwhelmed 😍😍😍
Hi everyone hope everyone is well Iv started my new meds 2 weeks ago and I’m feeling the difference at last they are working for me after trying all the other med that didn’t work feeling overwhelmed 😍😍😍
Beth72
in
NRAS
3 years ago
Probiotics when on metal and biologics for RA?
Hi I was wondering if it would be safe to take a probiotic tablet as I’m on methotrexate and
tocilizumab
for RA? I have had chest infection and heard probiotic good after them but just wondering if anyone would know if they were ok to take it on this treatment for RA?
Hi I was wondering if it would be safe to take a probiotic tablet as I’m on methotrexate and
tocilizumab
for RA? I have had chest infection and heard probiotic good after them but just wondering if anyone would know if they were ok to take it on this treatment for RA?
Florida100
in
NRAS
3 years ago
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