I have had no treatment for my RA for months now. I will be starting Tocilizumab eventually, but I am now having feelings of not being able to control my body. I get very scared and can't go out in case I fall over.
When I start to fall, my limbs become really weak as if they are useless
My dad died last week and I wonder if this might be grief, but I was feeling like it before he passed. I have been worried about him and he deteriorated very quickly after moving to a care home (his choice).
Do you have a blood pressure checker at home? Could be that with all the shock you are not looking after yourself as well as you should, and maybe a bit dehydrated, and you blood pressure is too low. That’ what happens ro me when mine drops.
But do contact you GP to get checked out.
Thank you for the reply. Yes, I have low blood pressure as I take beta blockers for anxiety. And yes, I have been neglecting myself. My doctor's surgery is useless, they have a call centre miles away from anywhere. Answers are asked and answered but its never the right one. I just end up going round in circles.
I just wondered if anyone had any tips that would help. Just to get me through until I feel safe enough to leave the house. The only time I feel safe is when I'm in bed - can't fall very far from there.
I'm going to try Benadryl which apparently works for Vertigo. Plus I can get it without a prescription.
Please don’t take Benadryl without checking with a doctor. It can lower blood pressure so could make your problems worse.
Instead do simple things that can help and certainly couldn’t harm. So drink lots of water right now, eat some balanced foods that have a decent amount of salt - like tuna sandwiches. And things that are high in magnesium like dark chocolate and nuts.
If your doctor is not contactable, and you really feel swoony, lightheaded and very wobbly then please call 111.
Sounds like you are dealing with a lot. Time to put yourself first. Please don’t take Benadryl! 111 sounds like a good idea if GP unable to help. I suffer from vertigo. Do you monitor your bp? Readings might be handy if you call go or 111. Take very good care and be kind to yourself.
I agree with what has been said. 111 have proved very helpful recently
I am no doctor but it sounds like your blood pressure may be low. I agree that grief can also cause lots of symptoms. I would discuss this with your GP if you can get a telephone consultation.
I think you should get to see someone asap darling. xxxx
It sounds as though you’re a bit isolated geographically but if you can is there a chi gong or tai chi class nearby? Or via zoom? Both related techniques are very good for equilibrium and stability- could help to stop you falling. Not instead of any medication though!
You need to consult a doctor …..you can’t self medicate for how you are feeling.I’m sure the loss of your dad will be affecting your general health…but you may also have something very simple like an inner ear infection which can make you feel dizzy and out of control.
If you don’t feel you can venture out…. why don’t you try calling 111 they have nurses and doctors who can speak to you and decide whether you should make an appointment with your GP or in fact they will call your GP & make an appointment for you.
Do contact them ….you need some medical advice.
So sorry to read that you lost your dad recently, and your current health issues. As others have said, it sounds like you need medical advice so please seek it out as soon as you can. Hope you can see someone and start to feel better soon.
Comment has hit me hard
Constantly tired
RA and fibromyalgia 
