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Truqap update
I persuaded my onc to start me on this new drug in April. Since starting I have had great results. My first set of labs was great, so we backed off the amount of drug due to diarrhea. I had one set back on my 2nd blood tests but adjusted my meds and am back to lower values on tumor markers. My
I persuaded my onc to start me on this new drug in April. Since starting I have had great results. My first set of labs was great, so we backed off the amount of drug due to diarrhea. I had one set back on my 2nd blood tests but adjusted my meds and am back to lower values on tumor markers. My
Bonnie1942
in
SHARE Metastatic Breast Cancer
2 months ago
Normal CA-125
I am going in for a total hysterectomy on the 25th They suspect a Granulosa Cell Tumour due the presence of a mass on my ovary and thickened womb lining However my CA-125 is in the ‘normal’ range, I am just curious if others received a DX with normal CA-125? I am ready for whatever comes but just
I am going in for a total hysterectomy on the 25th They suspect a Granulosa Cell Tumour due the presence of a mass on my ovary and thickened womb lining However my CA-125 is in the ‘normal’ range, I am just curious if others received a DX with normal CA-125? I am ready for whatever comes but just
Starflower2946
in
My Ovacome
2 months ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
7 months ago
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Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
7 months ago
Trigger for PMR
Is the forum aware that a tumour or similar was the trigger for PMR in someone? My rheumatologist sent me for tumour screening, a lung X-ray and a colonoscopy. Or is the cause mostly unknown?
Is the forum aware that a tumour or similar was the trigger for PMR in someone? My rheumatologist sent me for tumour screening, a lung X-ray and a colonoscopy. Or is the cause mostly unknown?
Swizzly
in
PMRGCAuk
2 months ago
Radiation Confusion- please help clarify
Referred to and met with radiation oncologist because my PC is active again after almost 3 years. This will be my first experience with radiation. It was explained and I thought I understood but am now completely confused - scans (PSMA, MRI, CT and bone scan) showed activity in prostate, SV, and one
Referred to and met with radiation oncologist because my PC is active again after almost 3 years. This will be my first experience with radiation. It was explained and I thought I understood but am now completely confused - scans (PSMA, MRI, CT and bone scan) showed activity in prostate, SV, and one
MPCSUX
in
Advanced Prostate Cancer
2 months ago
Best Support To Send
Last year I had (non-breast cancer. Some dark times post-op, muchly lightened by a care package some friends put together and sent me. Books, gentle toiletries, that kind of thing. Anything you would recommend for a friend who’s had a sudden diagnosis & speedy Mastectomy? I know even behind send not
Last year I had (non-breast cancer. Some dark times post-op, muchly lightened by a care package some friends put together and sent me. Books, gentle toiletries, that kind of thing. Anything you would recommend for a friend who’s had a sudden diagnosis & speedy Mastectomy? I know even behind send not
Bards
in
SHARE Breast Cancer Support
2 months ago
Please join us Tuesday,June 18th, for our Living Room discussion on Surgical Options
Hello, Please join us in our San Carlos office Tuesday June 18th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Dr. Jeffrey B. Velotta, MD, Thoracic Surgery, Kaiser Permanente, Oakland, CA and Clinical Assistant Professor
Hello, Please join us in our San Carlos office Tuesday June 18th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Dr. Jeffrey B. Velotta, MD, Thoracic Surgery, Kaiser Permanente, Oakland, CA and Clinical Assistant Professor
Michelezeh
Partner
in
Lung Cancer Support
2 months ago
Uncertainty is the worst
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Hello!To cut a long story short, I had Hodgkins lymphoma in 2005 and therefore am at higher risk of breast cancer. A CT scan showed that something in my right breast took the dye. The follow mammogram is not showing anything but I have very dense breast tissue. The right breast is now a whole cup size
Nightkittens
in
SHARE Breast Cancer Support
7 months ago
FDA Approves Augtyro (repotrectinib) for Adults and Children with NTRK-Positive Solid Tumors
On June 13, 2024, the U.S. Food and Drug Administration (FDA) granted accelerated approval of Augtyro (repotrectinib) for adults and children aged 12 years and older with NTRK-positive solid tumors, including both non-small cell lung cancer (NSCLC) and small cell lung cancer (SCLC). The new approval
On June 13, 2024, the U.S. Food and Drug Administration (FDA) granted accelerated approval of Augtyro (repotrectinib) for adults and children aged 12 years and older with NTRK-positive solid tumors, including both non-small cell lung cancer (NSCLC) and small cell lung cancer (SCLC). The new approval
Miranda_GO2
Partner
in
Lung Cancer Support
2 months ago
Seen the Oncologist
The Oncologist examined me and has decided to send me for a scan to see if the lump has gotten any bigger. If so it could mean Surgery Radiotherapy or drugs, if its shrinking to stay on Tamoxifen and he would see me in months. So I'm just waiting for appointments at the moment Gordon (Redier)
The Oncologist examined me and has decided to send me for a scan to see if the lump has gotten any bigger. If so it could mean Surgery Radiotherapy or drugs, if its shrinking to stay on Tamoxifen and he would see me in months. So I'm just waiting for appointments at the moment Gordon (Redier)
Redier
in
Male Breast Cancer
2 months ago
Triplet Therapy for HSPC
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
treedown
in
Advanced Prostate Cancer
7 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
7 months ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
7 months ago
At Last I have answers and know where I am.
I will make this post brief , as I have had more than my share. This was my last BCG - I will be seen in about 10 weeks to see it it is still working, if not I will be considered for BCG again probablt. The letter I got for a Thorax CT Scan - I have found out from who'm and why. I asked my BC nurse
I will make this post brief , as I have had more than my share. This was my last BCG - I will be seen in about 10 weeks to see it it is still working, if not I will be considered for BCG again probablt. The letter I got for a Thorax CT Scan - I have found out from who'm and why. I asked my BC nurse
Ern007
in
Lung Conditions Community Forum
2 months ago
Update
Hi all. Unfortunately after 3 additional rounds of Carboplatin and Etoposide chemo has failed and the cancer is growing both in Martins Liver and his bones. We have a meeting with his MO this evening. Not sure if there is anything left to try. Have been checking out clinical trials etc but if anyone
Hi all. Unfortunately after 3 additional rounds of Carboplatin and Etoposide chemo has failed and the cancer is growing both in Martins Liver and his bones. We have a meeting with his MO this evening. Not sure if there is anything left to try. Have been checking out clinical trials etc but if anyone
Believeit
in
Advanced Prostate Cancer
2 months ago
provenge before metastasis
Is there a current Cancer Center that is a leader in immunotherapy Would there be any benefit in taking provenge after treatment when your PSA is low?
Is there a current Cancer Center that is a leader in immunotherapy Would there be any benefit in taking provenge after treatment when your PSA is low?
Vortex12
in
Prostate Cancer Network
2 months ago
Lymph node Metastasis
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
JolleySprings
in
Advanced Prostate Cancer
5 months ago
*NEW online session - 6th February* Our stories: having a hereditary increased risk of ovarian cancer
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
OvacomeSupport
My Ovacome Team
in
My Ovacome
7 months ago
Niraparib Time Line?
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Jingles6
in
My Ovacome
7 months ago
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