Search
Search
About
Log in
Join
Experiences with
TDT 064
Posts
Communities
13,398 public posts
Filter results
Pancreas problems after RT for prostate
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
Nomojo56
in
Pelvic Radiation Disease Association
2 months ago
Wondering if anyone can relate to these symptoms
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
Nomojo56
in
Chronic Pancreatitis Support
2 months ago
NDT vs T4 T3 combination therapy
Hello everyone. Please share your experience NDT vs combination therapy. Currently I am on combo but still have symptoms (I have no thyroid). I am doing better on combo than on T4 only. I want to try NDT and see if it will make me feel better. Since both of them mainly contain T4 T3 may I expect significant
Hello everyone. Please share your experience NDT vs combination therapy. Currently I am on combo but still have symptoms (I have no thyroid). I am doing better on combo than on T4 only. I want to try NDT and see if it will make me feel better. Since both of them mainly contain T4 T3 may I expect significant
Alex_N
in
Thyroid UK
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Advice please for next Roseway appt
What size T4 capsules should I ask for next? I currently take 125mcg split as 2 x 50 and 1 x 25. I'm taking Roseway's compounded T4 capsules so they can't easily be split. I had to test this week as I need my appointment next week in order not to run out, but I only completed my transition from NDT
What size T4 capsules should I ask for next? I currently take 125mcg split as 2 x 50 and 1 x 25. I'm taking Roseway's compounded T4 capsules so they can't easily be split. I had to test this week as I need my appointment next week in order not to run out, but I only completed my transition from NDT
FoggyThinker
in
Thyroid UK
2 months ago
DEXA sooner that 2 years?
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
RugbyVLS
in
Advanced Prostate Cancer
2 months ago
After ADT
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Catmama5
in
Advanced Prostate Cancer
2 months ago
NDT check
Anyone else on NDT batch number 23TO1005? Would just like your feedback on how you are feeling. Thanks.
Anyone else on NDT batch number 23TO1005? Would just like your feedback on how you are feeling. Thanks.
serenfach
in
Thyroid UK
2 months ago
when is enough enough
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
Thesledge
in
Advanced Prostate Cancer
2 months ago
Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
2 months ago
"FAN-( )UCKIG-TASTIC RESULTS"
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
NanoMRI
in
Advanced Prostate Cancer
2 months ago
Thyroid S in UK
Hello everyone. I am a thyroid patient from Armenia, I have no thyroid for the last 6 years. I tried T4 and T4 and T3 combination therapies, but still I feel sick with many symptoms. I would like to try NDT, can you please advise a reliable source to by Thyroid S online in UK? Thank you.
Hello everyone. I am a thyroid patient from Armenia, I have no thyroid for the last 6 years. I tried T4 and T4 and T3 combination therapies, but still I feel sick with many symptoms. I would like to try NDT, can you please advise a reliable source to by Thyroid S online in UK? Thank you.
Alex_N
in
Thyroid UK
2 months ago
Anybody experience post treatment bowel issues after being ok prior ?
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Yokohama2023
in
Prostate Cancer Network
2 months ago
Update, New Results. Still Need Your Help for exhausted Daughter with normal TSH but low T4 Free and low T3 Free
My 30-year-old daughter has been struggling for an extended period
with excessive sweating, frequent tonsillitis and bronchitis difficult to treat, waking up puffy, water retention, anxiety attacks, low stress tolerance, light sensitivity, brain fog, exhaustion, and weight gain, despite a strict
My 30-year-old daughter has been struggling for an extended period
with excessive sweating, frequent tonsillitis and bronchitis difficult to treat, waking up puffy, water retention, anxiety attacks, low stress tolerance, light sensitivity, brain fog, exhaustion, and weight gain, despite a strict
1eskimo
in
Thyroid UK
2 months ago
Side effects from Xtandi monotherapy?
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
SViking
in
Advanced Prostate Cancer
2 months ago
What is Your Opinion on Docetaxel Added to Doublet Therapy for Early Oligorecurrent Metaststic M1a Prostate Cancer?
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
103532
in
Advanced Prostate Cancer
2 months ago
Embark study
Hi friends, When the Embark study came out, and the FDA approved Xtandi for its use, my MO was enthusiastic that I add Xtandi to my intermittent ADT treatment. What I'm wondering is, I can certainly understand that adding Xtandi to the intermittent ADT treatment delays average time to metastasis, but
Hi friends, When the Embark study came out, and the FDA approved Xtandi for its use, my MO was enthusiastic that I add Xtandi to my intermittent ADT treatment. What I'm wondering is, I can certainly understand that adding Xtandi to the intermittent ADT treatment delays average time to metastasis, but
billfenley2
in
Advanced Prostate Cancer
2 months ago
Losing so much weight
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
LaRue44
in
Advanced Prostate Cancer
2 months ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
2 months ago
Is ERFA NDT gluten/lactose free?
Hi i have just been prescribed ERFA NDT on a private prescription i have Hashimtos can anybody tell me if it contains gluten or lactose also interested in other peoples experience of NDT .
Hi i have just been prescribed ERFA NDT on a private prescription i have Hashimtos can anybody tell me if it contains gluten or lactose also interested in other peoples experience of NDT .
starbuck10
in
Thyroid UK
3 months ago
When is PARP introduced?
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
positive-thinking
in
Advanced Prostate Cancer
3 months ago
1
...
13
14
15
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
7895 results
Advanced Prostate Cancer
4005 results
Prostate Cancer Network
430 results
View top 10 communities
Sort by
Most Relevant
Newest