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GCA head ache ?
Been tapering down to 5mg
steroids
with a bit of ups and down in the dose . This evening I’ve developed a sore scalp from top of my head to behind my ear and a head ache in that area. I have just taken 10 mg is that enough?
Been tapering down to 5mg
steroids
with a bit of ups and down in the dose . This evening I’ve developed a sore scalp from top of my head to behind my ear and a head ache in that area. I have just taken 10 mg is that enough?
Flrchrs
in
PMRGCAuk
8 months ago
Not PMR? Not sure what to do next
Not sure the
steroids
worked as it hasn’t really improved. Went to a private rheumatologist, and have just had all the results back. She can see no cause of the pain, all bloods and scans have come back ok. Says it’s not PMR due to not presenting the symptoms and that he is male and under 65.
Not sure the
steroids
worked as it hasn’t really improved. Went to a private rheumatologist, and have just had all the results back. She can see no cause of the pain, all bloods and scans have come back ok. Says it’s not PMR due to not presenting the symptoms and that he is male and under 65.
Avdb
in
PMRGCAuk
3 months ago
Microscopic colitis associated with RA
A biopsy is needed to confirm MC and then the treatment of
steroids
. You may wonder why I'm telling you this but there are surely some of you with RA associated MC or going through various tests if you are having bowel problems.
A biopsy is needed to confirm MC and then the treatment of
steroids
. You may wonder why I'm telling you this but there are surely some of you with RA associated MC or going through various tests if you are having bowel problems.
Jackie1947
in
NRAS
7 months ago
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First NHS Endo Apt - a battle story
I've even been put on
steroids
! Now during these investigations, sub-clinical hyperthyroidism was found and I had to fight the GP for levothyroxine - I felt better on this however still get pain. I'm currently on 50mg.
I've even been put on
steroids
! Now during these investigations, sub-clinical hyperthyroidism was found and I had to fight the GP for levothyroxine - I felt better on this however still get pain. I'm currently on 50mg.
CherryPie2
in
Thyroid UK
1 month ago
any one had to stop work due to health?
I’ve just had a year off during which I had a craniotomy and RT as well as dealing with taking
steroids
for GCA which isn’t helping! I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don’t know if I can do it.
I’ve just had a year off during which I had a craniotomy and RT as well as dealing with taking
steroids
for GCA which isn’t helping! I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don’t know if I can do it.
susieb627
in
PMRGCAuk
6 months ago
omeprazole
I’ve been given omeprazole to take to protect my stomach while taking
steroids
. I was given them when I was taking strong anti inflammatory pills before they agreed for me to try
steroids
.
I’ve been given omeprazole to take to protect my stomach while taking
steroids
. I was given them when I was taking strong anti inflammatory pills before they agreed for me to try
steroids
.
Nanatoo
in
PMRGCAuk
10 months ago
Flare or steroid withdrawal? - the question is often asked so here's my two pen'orth
IF
you reduce
steroids
and feel very unwell indeed, like you've been hit by a bus, feel nauseous, complete lack of energy, dizzyness
AND
you're at a dose of around 5ish, it's possible that you're having adrenal problems - see other posts about that including some of my own experiences.
IF
you reduce
steroids
and feel very unwell indeed, like you've been hit by a bus, feel nauseous, complete lack of energy, dizzyness
AND
you're at a dose of around 5ish, it's possible that you're having adrenal problems - see other posts about that including some of my own experiences.
tangocharlie
in
PMRGCAuk
6 months ago
painkilling spinal injections
He was very nice and extremely thorough and told me l have a soft spine, probably due to
steroids
, and would need an op to remove a bit of spine that had slipped and was pressing on nerves. He wants to operate and can do so in 4 weeks time but the bill will be £10,880.
He was very nice and extremely thorough and told me l have a soft spine, probably due to
steroids
, and would need an op to remove a bit of spine that had slipped and was pressing on nerves. He wants to operate and can do so in 4 weeks time but the bill will be £10,880.
Alwynk
in
PMRGCAuk
4 months ago
Prednisolone Update & Questions
Pre the
steroids
on Monday morning, I think I had my worst day ever.....pure agony, arms like twigs, shoulders searingly painful....which brought me to tears. Started the course that morning and wake now after a good 6/7 hours with minimal shoulder pain and stiffness.
Pre the
steroids
on Monday morning, I think I had my worst day ever.....pure agony, arms like twigs, shoulders searingly painful....which brought me to tears. Started the course that morning and wake now after a good 6/7 hours with minimal shoulder pain and stiffness.
Paulx222
in
PMRGCAuk
5 months ago
First visit to restpertery clinic
Hi hoping someone can help.was diagnosed with asthma after being in hospital after bad upper respiratory infection unable to breathe
steroids
and antibiotics didn't help was given allsorts of test and medication and oxygen told it was severe asthma attack so put on rescue inhaler and reliever inhaler
Hi hoping someone can help.was diagnosed with asthma after being in hospital after bad upper respiratory infection unable to breathe
steroids
and antibiotics didn't help was given allsorts of test and medication and oxygen told it was severe asthma attack so put on rescue inhaler and reliever inhaler
Gymnastics2
in
Lung Conditions Community Forum
3 months ago
Infusion
Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on
steroids
and a fracture I should have an infusion. Anyone had this, any advice please. Thanx
Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on
steroids
and a fracture I should have an infusion. Anyone had this, any advice please. Thanx
456again
in
PMRGCAuk
8 months ago
Seretide and Addisons disease
I was diagnosed with Addisons in May 2023 and have been using inhaled
steroids
/ seretide for chronic Asthma for 20+ years.
I was diagnosed with Addisons in May 2023 and have been using inhaled
steroids
/ seretide for chronic Asthma for 20+ years.
Flowerdac
in
Asthma Community Forum
4 months ago
After 25 days back on prednisone...
Last week my C-rp was 3, down from 6 before returning to
steroids
. ESR was 23, down from 63. Will have regular bloods to keep track. Full glucose bloods showed possibly pre diabetic, have taken immediate steps to cut processed sugar from diet. Am life long vegetarian with a sweet tooth!
Last week my C-rp was 3, down from 6 before returning to
steroids
. ESR was 23, down from 63. Will have regular bloods to keep track. Full glucose bloods showed possibly pre diabetic, have taken immediate steps to cut processed sugar from diet. Am life long vegetarian with a sweet tooth!
Biba5
in
PMRGCAuk
2 months ago
Hi! I just joined. CIDP: Is anyone like me?
I've lived with atopic dermatitis and multiple allergies all my life, which are controlled with local
steroids
, antihistamines and emollients. My mother had ankylosing spondylitis. Those facts, and my good response to prednisolone, convince me I have a autoimmune disease.
I've lived with atopic dermatitis and multiple allergies all my life, which are controlled with local
steroids
, antihistamines and emollients. My mother had ankylosing spondylitis. Those facts, and my good response to prednisolone, convince me I have a autoimmune disease.
AtopicGuy
in
Neuropathy Support
3 months ago
learning to live with GCA/PMR
I was diagnosed with GCA and PMR in late August this year and am just about starting to feel more like myself now that the symptoms are being controlled with
steroids
. So I'm starting to find out more about my condition and how others have coped with it.
I was diagnosed with GCA and PMR in late August this year and am just about starting to feel more like myself now that the symptoms are being controlled with
steroids
. So I'm starting to find out more about my condition and how others have coped with it.
bookbear68
in
PMRGCAuk
5 months ago
What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
8 months ago
can I colour my hair when on steroids
has anyone had trouble with hair colouring when taking
steroids
has anyone had trouble with hair colouring when taking
steroids
Nanatoo
in
PMRGCAuk
9 months ago
how long to recover
I usually carry on working as long as I can when I’m on
steroids
and antibiotics but I have been off work for a week and I feel guilty. 2 courses of pred down and still wheezy. I think I will need another course but it is getting better.
I usually carry on working as long as I can when I’m on
steroids
and antibiotics but I have been off work for a week and I feel guilty. 2 courses of pred down and still wheezy. I think I will need another course but it is getting better.
KnottyA
in
Asthma Community Forum
6 months ago
Thank you
I was immediately admitted to hospital and given IV
steroids
to try to bring my inflammatory markers down (they started at 132).
I was immediately admitted to hospital and given IV
steroids
to try to bring my inflammatory markers down (they started at 132).
Dance62
in
PMRGCAuk
2 months ago
Asthma and mental health effects.
I think I am reacting to the
steroids
( to be discussed with the nurse) and wonder if a steroid free medication might be a possible alternative . I am at my wits end .
I think I am reacting to the
steroids
( to be discussed with the nurse) and wonder if a steroid free medication might be a possible alternative . I am at my wits end .
Hugmaker
in
Asthma Community Forum
2 months ago
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