Experiences with

Stem cell and bone marrow transplants

The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in

RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year

THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor

hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same?

Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily.

https://www.stemcellcenter.lu.se/article/update-stem-pd-clinical-trial-stem-cell-based-transplant-parkinsons-disease

Can I ask if someone who has had a liver transplant would they be covered by the Equality Acy 2010?

hi there. I’m 39 and was diagnosed with dilated cardiomyopathy at 14. I was not symptomatic when diagnosed but detected because my father had genetic DCM and was in heart failure.i am currently moderate and have a EJ of 41%. He was terribly ill for about ten to fifteen years and then received a heart

Pulmonary Sweet's syndrome (Sweet's syndrome affecting the lungs) requiring lung transplant. https://journal.chestnet.org/article/S0012-3692%2821%2900707-8/fulltext

hi, my dad has had chronic HE since February, (very extreme HE for most of this year). He has just started taking LO-LA which I’m hoping will help things until he can get a liver transplant. Has anyone here had a liver transplant after HE and can they tell me if HE improves after liver transplant and

My husband had his second liver transplant on 9/23/24. Everything was fantastic the day after and he was moved, walking on his own, out of ICU. He started feeling bad the next day and was moved back to ICU. Now, four weeks later he had three more surgeries, a pacemaker placed and was on a ventilator

I am two and a half years post kidney transplant. I have called my transplant center when I have had a fever and been told by the front desk staff that if it doesn't have to do with my kidney they recommend I contact my primary care physician. Prior to my transplant I was warned by my transplant clinic

Dr. Jesse Roach testified for kidney transplant reform, highlighting the plight of over 800,000 kidney failure patients and 90,000 on the transplant waitlist. Read more at: https://www.kidney.org/news-stories/urgent-call-action-nkf-testimony-organ-transplantation-reform

Tips to help with breathing .... This article is for those who may have C.o.p.d due to smoking although there are a few tips for those who are quitting smoking whether they have Copd or not. Copd. Chronic obstructive pulmonary disease or COPD is one of the most common lung

hello all I am aware a kidney transplant impacts our immune system as the meds are immunosupresssion. However, does this mean we have no immune system at all when we have a transplant? lastly, with dialysis is our immune system suppressed? I am current at 40 egfr and have no impact on my immune

I'm reaching out to you all with the hope that you can help me share this news far and wide.I'm 57 years old and live in Waunakee, WI. I just learned that I need a kidney transplant, and a living donor is my best chance of survival. My journey unexpectedly changed 2 years ago when I was diagnosed with

Social media scam targets kidney donations: A scam circulating on Facebook entices people seeking a kidney donation to provide personal information and payment. The scam uses a link to a website falsely claiming to be part of the National Kidney Foundation. The kidney care community is warning

hello Anyone with an O blood group how long did it take you to get a kidney transplant while being on dialysis? My understanding is O blood group is hardest because we can only take from O. Thanks

hello, I am quite young but will need a kidney transplant most likely within the next year. I wanted to know what should I expect? At my age would I need probably a second kidney? How long will the kidney last generall? my living donor may be 57 and I am 34. Thanks!

I am 73 and next month I will be 3 years out from my kidney transplant. I received a deceased donor kidney and was a 6 antigen match. My renal function improved until it was in the normal range at one year post op, but then gradually deteriorated. After many tests over the next year it was determined