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Update #4: Adrenal Results
Strangely enough, my results are back. I spoke with the endo this evening who gave me his take. He thinks I have primary adrenal insufficiency, he believes this because my endogenous ACTH is suffice according to him. He sees my Aldosterone & Cortisol are both lacking and stated this is why my thyroid
Strangely enough, my results are back. I spoke with the endo this evening who gave me his take. He thinks I have primary adrenal insufficiency, he believes this because my endogenous ACTH is suffice according to him. He sees my Aldosterone & Cortisol are both lacking and stated this is why my thyroid
Hidden
in
Thyroid UK
1 year ago
Radium223 has not been a success, is Enzalutamide a good next option?
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since
Ronnie7C
in
Advanced Prostate Cancer
11 months ago
iodine level - high 0.68 (0.32 - 0.63)
it little me ! so I got iodine tested - and it’s 0.68 - (0.32 to 0.63) It got signed off as normal Is it ok? I’m hypo - Last results Tsh 0.01 less than T4 17.4 T3 4.8 On 125mcg t4 and 30mcg t3 I do have little bit of spirulina in my liver endo tox vitamin tablets but eat a lot of
it little me ! so I got iodine tested - and it’s 0.68 - (0.32 to 0.63) It got signed off as normal Is it ok? I’m hypo - Last results Tsh 0.01 less than T4 17.4 T3 4.8 On 125mcg t4 and 30mcg t3 I do have little bit of spirulina in my liver endo tox vitamin tablets but eat a lot of
Chouchou1234
in
Thyroid UK
1 year ago
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Salt and sodium advice please
I always thought was just sodium, but now I read Salt (sodium chloride) is about 40% sodium and 60% chloride. on food food labels it just states the amout of salt, should I just be counting 40% of it? Confused. Ihave ascites that was diagnosed 4weeks ago, so new.to all this
I always thought was just sodium, but now I read Salt (sodium chloride) is about 40% sodium and 60% chloride. on food food labels it just states the amout of salt, should I just be counting 40% of it? Confused. Ihave ascites that was diagnosed 4weeks ago, so new.to all this
Male47
in
British Liver Trust
1 year ago
T3: the devils doing
Hopefully, if you read this you’ve seen my original rant about the ablation (RAI) of my Thyroid for graves. You will have read that at the time, despite my almost blind faith in the GP and Endo (and their proposed care path), I had my reservations: I felt my condition had settled under the long use of
Hopefully, if you read this you’ve seen my original rant about the ablation (RAI) of my Thyroid for graves. You will have read that at the time, despite my almost blind faith in the GP and Endo (and their proposed care path), I had my reservations: I felt my condition had settled under the long use of
Bigthensmallthenbig
in
Thyroid UK
1 year ago
Anti seizure tablets after brain haemorage
My wife has had a brain haemorage which after 12 months has resulted in her having some bad seizures. The Sodium Valporate anti seizure tablets she is taking now have really knocked her off her feet and she has difficulty standing up. She is changing to lacosamide in the hope that it will have less side
My wife has had a brain haemorage which after 12 months has resulted in her having some bad seizures. The Sodium Valporate anti seizure tablets she is taking now have really knocked her off her feet and she has difficulty standing up. She is changing to lacosamide in the hope that it will have less side
Henri33
in
British Heart Foundation
1 year ago
CT Thorax scan with iodine contrast
Hi does anyone know if it’s safe to have an iodine contrast for a CT thorax scan with Hashimotos, I’m confused if it’s good or bad with Hashimotos as I’m worried it might make my heart race. My lastest blood test results from the NHS are TSH - 0.07 (0.30 - 5.00) and T4 - 11.1 (11.5 - 22.70) and cortisol
Hi does anyone know if it’s safe to have an iodine contrast for a CT thorax scan with Hashimotos, I’m confused if it’s good or bad with Hashimotos as I’m worried it might make my heart race. My lastest blood test results from the NHS are TSH - 0.07 (0.30 - 5.00) and T4 - 11.1 (11.5 - 22.70) and cortisol
Bess48
in
Thyroid UK
1 year ago
Can to much B12 cause IBS? SI
Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm not on the toilet, I am in bed as I'm so fatigued.😔 I take Imodium just before I eat... but sometimes it doesn't work. 🤔 I've tried going without SI for a few days and the IBS does Improve but my fatigue comes back and
Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm not on the toilet, I am in bed as I'm so fatigued.😔 I take Imodium just before I eat... but sometimes it doesn't work. 🤔 I've tried going without SI for a few days and the IBS does Improve but my fatigue comes back and
Onlyme75
in
Pernicious Anaemia Society
1 year ago
Kidney problem
I understand diagnoseis have to go through specialist but I feel my husband is being kept in the dark about his deterioration.He has alcohol related brain and liver damage. No idea what stage because his appointment with the specialist has been cancelled 3 times since last November. I am trying to support
I understand diagnoseis have to go through specialist but I feel my husband is being kept in the dark about his deterioration.He has alcohol related brain and liver damage. No idea what stage because his appointment with the specialist has been cancelled 3 times since last November. I am trying to support
Diamondbabe
in
British Liver Trust
1 year ago
Falling eGFR?
Hi, I wanted to ask about falling eGFR and wondering if I should be asking my GP for help with kidney health or early kidney issues? I have a falling eGFR from 91 a few years back, to mid 80s and now 76. My latest tests were: Serum sodium 142 mmol/L,Serum potassium 3.8,Serum creatinine 78,! eGFRcreat
Hi, I wanted to ask about falling eGFR and wondering if I should be asking my GP for help with kidney health or early kidney issues? I have a falling eGFR from 91 a few years back, to mid 80s and now 76. My latest tests were: Serum sodium 142 mmol/L,Serum potassium 3.8,Serum creatinine 78,! eGFRcreat
RoseFlowerDew
in
Early CKD Support
1 year ago
Why am I so cold all the time
Hi I had radio iodine treatment a couple of years ago and I'm now on levoythryroxine, I'm freezing cold all the time. I'm taking 200mg of the stuff each morning
Hi I had radio iodine treatment a couple of years ago and I'm now on levoythryroxine, I'm freezing cold all the time. I'm taking 200mg of the stuff each morning
Brumhoy68
in
Thyroid UK
1 year ago
help please re 13 year old
my daughter has been unwell number of weeks- palpitations, nervousness, anxiety, nausea, dizzy, difficulty focusing, intolerance of heat, hair breakage, rashes the list is endless. Affecting her school and general well being. Normally very active, sociable. Had major knee surgery in Oct but recovered
my daughter has been unwell number of weeks- palpitations, nervousness, anxiety, nausea, dizzy, difficulty focusing, intolerance of heat, hair breakage, rashes the list is endless. Affecting her school and general well being. Normally very active, sociable. Had major knee surgery in Oct but recovered
Pussycatlou
in
Thyroid UK
1 year ago
private blood tests
Hi all, Who uses private blood tests and where / how do you do them? I am under a consultant endo for hyper / graves but my bloods are only done every 12 weeks or so. I have been on 40mg carbimazole for nearly a year and finally my latest test apparently I’m hypo. This was found out the day I had
Hi all, Who uses private blood tests and where / how do you do them? I am under a consultant endo for hyper / graves but my bloods are only done every 12 weeks or so. I have been on 40mg carbimazole for nearly a year and finally my latest test apparently I’m hypo. This was found out the day I had
MadM24
in
Thyroid UK
1 year ago
Very Scared and suffering with Graves Disease - don't know what to do next?
This is first time I have posted anything about this. I was diagnosed with Graves in 2016. Treatment then was satisfactory - mainly getting regular blood tests, mainly 3 monthly and hospital appointments but had two further relapses recently from 2021/22 and current one since Feb 2023 - each time getting
This is first time I have posted anything about this. I was diagnosed with Graves in 2016. Treatment then was satisfactory - mainly getting regular blood tests, mainly 3 monthly and hospital appointments but had two further relapses recently from 2021/22 and current one since Feb 2023 - each time getting
AllButBroken
in
Thyroid UK
1 year ago
heart block
after having a serious of blood tests and ecg’s this week been told in addition to my AF I now have first degree heart block. No further action but hospital said they will monitor and will need to be addressed when it developed to stage two. I have now have low sodium levels and renal levels. Any
after having a serious of blood tests and ecg’s this week been told in addition to my AF I now have first degree heart block. No further action but hospital said they will monitor and will need to be addressed when it developed to stage two. I have now have low sodium levels and renal levels. Any
Ludham
in
AF Association
1 year ago
hospital unexpected visit
We’ll I ended up in the er my blood pressure drop out 70/35 I had a weird seizure my family call 911 I went to the Er got admitted. Also found a brain aneurysm I thought I stil had a small one they don’t know if this is the same but anyway my post is that a lot of hospitals aren’t prepared for a. Pd
We’ll I ended up in the er my blood pressure drop out 70/35 I had a weird seizure my family call 911 I went to the Er got admitted. Also found a brain aneurysm I thought I stil had a small one they don’t know if this is the same but anyway my post is that a lot of hospitals aren’t prepared for a. Pd
Beachgirl32
in
Kidney Disease
1 year ago
Radium-223 + Xtandi?
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
MechD
in
Advanced Prostate Cancer
1 year ago
Asking for advice following RAI
My MIL, bless her had an RAI several years ago due to hyperthyroidism. I often wonder if they got it right as she never fitted the profile for overactive. I know she's always struggled with weight gain and if anything I would have said she was more hypo than hyper. Several years later she's never been
My MIL, bless her had an RAI several years ago due to hyperthyroidism. I often wonder if they got it right as she never fitted the profile for overactive. I know she's always struggled with weight gain and if anything I would have said she was more hypo than hyper. Several years later she's never been
Sparklingsunshine
in
Thyroid UK
1 year ago
Odd Results?
Long time guys! Peculiar results today. RAI in 2014 and unwell since. Trialing 20mcg T3 and ERFA 30mg TSH 9.04 (0.27-4.2) T4 3.9 (3.1-6.8) T3 10.5 (3.1-6.8) TSH is usually well suppressed so hard to know what to make of these results. Still feel dreadful and think I’ve exhausted these medications
Long time guys! Peculiar results today. RAI in 2014 and unwell since. Trialing 20mcg T3 and ERFA 30mg TSH 9.04 (0.27-4.2) T4 3.9 (3.1-6.8) T3 10.5 (3.1-6.8) TSH is usually well suppressed so hard to know what to make of these results. Still feel dreadful and think I’ve exhausted these medications
cazmania7
in
Thyroid UK
1 year ago
Bizarre Thyroid Quote from 1941
We regularly despair at science and medicine seemingly missing so much about thyroid physiology and processes. However, every so often, we see something so extraordinarily odd and bizarre, we actually seem to have made huge progress. This starts fairly sensibly. Then goes downhill. Fast. And remember
We regularly despair at science and medicine seemingly missing so much about thyroid physiology and processes. However, every so often, we see something so extraordinarily odd and bizarre, we actually seem to have made huge progress. This starts fairly sensibly. Then goes downhill. Fast. And remember
helvella
Thyroid UK
in
Thyroid UK
1 year ago
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