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Recently diagnosed with myopic CNV
Hello all, very newly diagnosed with myopic CNV in my right eye (I’m 41 years old) and had my first injection last Tuesday. I have distortion in my central vision. I’m desperately trying to remain positive but it all came on so quickly I didn’t ask any questions nor really understand the condition. Will
Hello all, very newly diagnosed with myopic CNV in my right eye (I’m 41 years old) and had my first injection last Tuesday. I have distortion in my central vision. I’m desperately trying to remain positive but it all came on so quickly I didn’t ask any questions nor really understand the condition. Will
Anagramme
in
Macular Society
2 years ago
Rectal prolapse
Hi everyone and Happy Easter - hope the sun is shining where you are. It's beautiful here! (UK). Unfortunately I think I have a rectal prolapse :( . I had a soft mass pop out this morning. It's more or less gone back in now but googling tells me that it won't be a one-off. I have real difficulties with
Hi everyone and Happy Easter - hope the sun is shining where you are. It's beautiful here! (UK). Unfortunately I think I have a rectal prolapse :( . I had a soft mass pop out this morning. It's more or less gone back in now but googling tells me that it won't be a one-off. I have real difficulties with
Ursula_I
in
SHARE Metastatic Breast Cancer
2 years ago
Any advice for first Pegasys injection?
Tomorrow will be my first Pegasys injection. I realize I may have some flu type symptoms afterwards but wondered if anyone has any advice on the best way to limit the side effects, if any? Thanks! Kim
Tomorrow will be my first Pegasys injection. I realize I may have some flu type symptoms afterwards but wondered if anyone has any advice on the best way to limit the side effects, if any? Thanks! Kim
Wewo01
in
MPN Voice
2 years ago
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Some help needed.
Hey all. Just joined. Am 44 and been diagnosed with glaucoma after a steroid reaction after a vitrectomy and the pressure in my left eye going to 55!! The outside glare is terrible but indoors I am relatively normal. I just need some advice in general about what to do and how to stop feeling so rubbish
Hey all. Just joined. Am 44 and been diagnosed with glaucoma after a steroid reaction after a vitrectomy and the pressure in my left eye going to 55!! The outside glare is terrible but indoors I am relatively normal. I just need some advice in general about what to do and how to stop feeling so rubbish
Oneurope
in
Glaucoma UK
2 years ago
Just joined
Hi everyone, I haven't been diagnosed with macular degeneration yet but its highly likely that I will develop it. My Dad had both wet & dry, he ended up having to be registered blind. My DNA shows that I have varients that put me at a higher risk of developing it. Yesterday my optician told me the the
Hi everyone, I haven't been diagnosed with macular degeneration yet but its highly likely that I will develop it. My Dad had both wet & dry, he ended up having to be registered blind. My DNA shows that I have varients that put me at a higher risk of developing it. Yesterday my optician told me the the
Villagelife
in
Macular Society
2 years ago
Sulphasazine
I saw both rheumatologist and ophthalmologist last week. Good news - I'm having cataract surgery under general anaesthetic. Apparently its high risk hence general. I'm also down on prednisolone from 15mg to 12.5mg. I'm hoping to be symptom free reducing by 2.5mg. Bad news - I'm now have to take sulpasazine
I saw both rheumatologist and ophthalmologist last week. Good news - I'm having cataract surgery under general anaesthetic. Apparently its high risk hence general. I'm also down on prednisolone from 15mg to 12.5mg. I'm hoping to be symptom free reducing by 2.5mg. Bad news - I'm now have to take sulpasazine
PSAWarrior28
in
NRAS
2 years ago
Sad Times 😞
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
CecilyParsley
in
LUPUS UK
2 years ago
Ain’t that a kick in the teeth
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
aFibber55
in
Atrial Fibrillation Support
2 years ago
Bloodshot eye from a scratch now seems to be more bloodshot.
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesn’t
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesn’t
Mstiles
in
PMRGCAuk
2 years ago
NHS and 2nd potential anti vegf
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Deepbluesea2022
in
Macular Society
2 years ago
Has anyone with CLl dealt with Neuro Endocrine cancer (liver) as a second cancer?
FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in July 2019. In the last 6 months my lymph nodes in my neck were very noticeable. WBC were at 58,000. I was tired but felt ok otherwise. Decided it was time for treatment. Gazyva and Venetaclex was the treatment recommended
FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in July 2019. In the last 6 months my lymph nodes in my neck were very noticeable. WBC were at 58,000. I was tired but felt ok otherwise. Decided it was time for treatment. Gazyva and Venetaclex was the treatment recommended
aboylan
in
CLL Support
2 years ago
Just need some support
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Turtlepower88
in
Parents of Children with Kidney Disease
2 years ago
6 top tips for controlling seasonal allergies
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Shortness of breath and wheezing
UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely high O2, low CO2, low bicarbonate, low sodium and alkaline pH. Booked in for cardiologist and stress test next week, followed by cardiopulmonary
UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely high O2, low CO2, low bicarbonate, low sodium and alkaline pH. Booked in for cardiologist and stress test next week, followed by cardiopulmonary
MusicalFurbaby
in
LUPUS UK
2 years ago
Thiamine Tetrahydrofurfuryl Disulfide (TTFD) requires methylation
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
Gcf51
in
Cure Parkinson's
2 years ago
Have I got IBS?
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Allot
in
IBS Network
2 years ago
Traveling with Pegasys on airplane.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
JeanieRN
in
MPN Voice
2 years ago
Any eye problems?
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
MarybellM
in
MPN Voice
2 years ago
Very frustrated mum.
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Misty10
in
ERIC
2 years ago
Cancelled surgery
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
Efabear
in
Glaucoma UK
2 years ago
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