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Sodium clodronate
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radium 223
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
Mcrpca
in
Advanced Prostate Cancer
2 years ago
What first?: Provenge or Nubeqa?
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
History of Epileptic Seizure
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
das1234
in
Epilepsy Action
2 years ago
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Levothyroxine sodium loaded dissolving microneedle arrays for transdermal delivery
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Can probiotics ease diarrhoea and daily loose stools?
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
rustydog
in
IBS Network
2 years ago
Thybon Henning doesn’t contain acacia?!
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
hjh88
in
Thyroid UK
2 years ago
Depressing example of medical intransigence
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
diogenes
in
Thyroid UK
2 years ago
Got the Second Opinion
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
Elsie1955
in
Atrial Fibrillation Support
2 years ago
IBS after eating evening meal
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
PayPal
in
IBS Network
2 years ago
How did we arrive at Disease?
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
Cons10s
in
Cure Parkinson's
2 years ago
Practical Advice for having a social life with IBS-D
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
MeliHere2
in
IBS Network
2 years ago
Maize starch, Sodium Metabisuphate and validation at home
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Regenallotment
in
Thyroid UK
2 years ago
My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
2 years ago
What Does Everyone Do For Diet?
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Alk Phosphate going up after third Radium 223
hello all. Husband dx in 2017 with 489 PSA. So far we’ve done Docetaxel, Xgeva, Zytiga. Currently on Xofigo (Ra 223) it knocked the Alk Ph way down then after the third treatment it went up a few points. Has this happened to anyone? RO suggests doing 4th treatment then PSMA scan to see if there’s
hello all. Husband dx in 2017 with 489 PSA. So far we’ve done Docetaxel, Xgeva, Zytiga. Currently on Xofigo (Ra 223) it knocked the Alk Ph way down then after the third treatment it went up a few points. Has this happened to anyone? RO suggests doing 4th treatment then PSMA scan to see if there’s
mdiaz76
in
Advanced Prostate Cancer
2 years ago
Availability of Sodium Cromoglicate
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
Hi, is anyone else having supply issues with Sodium Cromoglicate at the moment? It’s been a bit hit or miss the last couple of months, but today the pharmacy attached to our GP said they can’t get it. They are having one more try and then suggest we take the prescription around pharmacists to see if
PCAD
in
The UK Mastocytosis Support Group
2 years ago
Lamotrigine and Sodium Valproate.
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
My neurologist is now talking about adding Sodium Valproate to my current 400mg daily dose of Lamotrigine. Does anyone else take that combination and if so how has it been? And what other drugs are people taking along with Lamotrigine?
Michael_M
in
Epilepsy Action
2 years ago
Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hanna_josef
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Amazed!
After 30 years of living with the affects of radiotherapy I found this community after a Google search for remedies after the doctor only advised imodium. I have found it to be a very emotional discovery as I didn'teven know PRD was a thing! Has anyone tried peppermint oil tablets? Do they help
After 30 years of living with the affects of radiotherapy I found this community after a Google search for remedies after the doctor only advised imodium. I have found it to be a very emotional discovery as I didn'teven know PRD was a thing! Has anyone tried peppermint oil tablets? Do they help
SURFER58
in
Pelvic Radiation Disease Association
2 years ago
Should I be taking T3 Meds?
I am a healthy 70 year old female from USA, who had surgery in 8/2021for total thyroidectomy for papillary cancer. I went from 50 to 100 mg of Synthroid after surgery & no RAI was needed. My current test results are as follows: TSH : .49 mcIU/mL Range : .45-5.33 mcIU/mL T4 Free: 1.06 ng/mL Range:
I am a healthy 70 year old female from USA, who had surgery in 8/2021for total thyroidectomy for papillary cancer. I went from 50 to 100 mg of Synthroid after surgery & no RAI was needed. My current test results are as follows: TSH : .49 mcIU/mL Range : .45-5.33 mcIU/mL T4 Free: 1.06 ng/mL Range:
heron603
in
Thyroid UK
2 years ago
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