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Hello I am new here
Hello I am new here. I am a 58 year old divorced female, living in the Northern VA area. I wrote a lengthy introduction in the Kidney Community hub. I just found out I have CKD last Friday. My GFR was 68 in June 2019 and it dropped to 55, two weeks ago. I had no idea I had kidney disease in June
Hello I am new here. I am a 58 year old divorced female, living in the Northern VA area. I wrote a lengthy introduction in the Kidney Community hub. I just found out I have CKD last Friday. My GFR was 68 in June 2019 and it dropped to 55, two weeks ago. I had no idea I had kidney disease in June
MarBea
in
Early CKD Support
5 years ago
Stomach acid effects on oral Bisphosphonates
Has anyone got experience of how Bisphosphonates are affected by stomach acid? Could reduced stomach acid cause unresponsive esophageal valves that then leak stomach contents after taking Bisphosphonates? Presumably, Bisphosphonates are tested on healthy volunteers, not those people with coexisting
Has anyone got experience of how Bisphosphonates are affected by stomach acid? Could reduced stomach acid cause unresponsive esophageal valves that then leak stomach contents after taking Bisphosphonates? Presumably, Bisphosphonates are tested on healthy volunteers, not those people with coexisting
Nanaedake
in
Bone Health and Osteoporosis UK
5 years ago
Hello
Hi I’m new to this group, although had IBS for nearly 30 years, it was all under control two years ago, I lost four stone in weight and got my management of IBS down to a T! Last year, I was diagnosed with Diverticulitis, and had flare ups every month, was on antibiotics 7 out of 9 months. I have had
Hi I’m new to this group, although had IBS for nearly 30 years, it was all under control two years ago, I lost four stone in weight and got my management of IBS down to a T! Last year, I was diagnosed with Diverticulitis, and had flare ups every month, was on antibiotics 7 out of 9 months. I have had
Rolo13
in
IBS Network
5 years ago
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Bacterial Periotinitis
Hi everyone, Well last week really was the week that kept on giving. Had doctor out MONDAY last week as dads confusion had got considerably worse but doctor didn’t seem TH think anything of it and he seemed HAPPY in himself so let’s not worry!!! Yesterday morning I had phone call from carer and my dad
Hi everyone, Well last week really was the week that kept on giving. Had doctor out MONDAY last week as dads confusion had got considerably worse but doctor didn’t seem TH think anything of it and he seemed HAPPY in himself so let’s not worry!!! Yesterday morning I had phone call from carer and my dad
Bubbles201271
in
British Liver Trust
5 years ago
Antacids related
Is it necessary that CKD patient take sodium bicar or citrate to prevent metabolic acidosis. My father takes 2000 mg per day. In addition to PPI ( in case of acid reflux, ulcers). Is he taking too many antacid ? He is stage 3 CKD with lot of gastric issues. I am curious to know. Will be awesome if you
Is it necessary that CKD patient take sodium bicar or citrate to prevent metabolic acidosis. My father takes 2000 mg per day. In addition to PPI ( in case of acid reflux, ulcers). Is he taking too many antacid ? He is stage 3 CKD with lot of gastric issues. I am curious to know. Will be awesome if you
JB1969
in
Kidney Disease
5 years ago
How to ease 'painful' bad gas
I've took a good turn the past few weeks, due to having an Imodium once per week but obviously want to stop this as I'm becoming reliant. I had a great week and ate a mix of different things excluding garlic and onions.. However yesterday I had chicken salad, Apple, a pasta bake and some pizza aaaand
I've took a good turn the past few weeks, due to having an Imodium once per week but obviously want to stop this as I'm becoming reliant. I had a great week and ate a mix of different things excluding garlic and onions.. However yesterday I had chicken salad, Apple, a pasta bake and some pizza aaaand
Cheesecake17
in
IBS Network
5 years ago
Retreatment With Radium-223 in Patients With Castration-Resistant Prostate Cancer and Bone Metastases
TAKE-HOME MESSAGE •Radium-223 is approved for patients with castration-resistant prostate cancer and symptomatic bone metastases. Repeat treatment after initial therapy has not been studied. The authors studied 44 patients who completed an initial course of six Xofigo treatments without progression
TAKE-HOME MESSAGE •Radium-223 is approved for patients with castration-resistant prostate cancer and symptomatic bone metastases. Repeat treatment after initial therapy has not been studied. The authors studied 44 patients who completed an initial course of six Xofigo treatments without progression
Balsam01
in
Advanced Prostate Cancer
5 years ago
Ever increasing T3?
Brief background (because I’ve posted quite a lot!): started levo/T3 combo at 10/125mcg in March this year. Fab. All symptoms gone.... for about 6 weeks. I’m finding I need to increase by 5mcg every 5/6 weeks. I’ve tried sticking at one dose for longer but symptoms increase again. Recently when in
Brief background (because I’ve posted quite a lot!): started levo/T3 combo at 10/125mcg in March this year. Fab. All symptoms gone.... for about 6 weeks. I’m finding I need to increase by 5mcg every 5/6 weeks. I’ve tried sticking at one dose for longer but symptoms increase again. Recently when in
Murphysmum
in
Thyroid UK
5 years ago
ROOT CAUSE THEORY
For those of us that have structurally normal hearts yet are effected by palpitations/tachycardia/fibrillation/flutter/et al, I have been unable to answer the question - is your heart behaving appropriately to the stimulus it gets or is the stimulus normal and your heart acting inappropriately. As everyones
For those of us that have structurally normal hearts yet are effected by palpitations/tachycardia/fibrillation/flutter/et al, I have been unable to answer the question - is your heart behaving appropriately to the stimulus it gets or is the stimulus normal and your heart acting inappropriately. As everyones
Shcldavies
in
AF Association
5 years ago
Radium 223
My husband had his 2nd infusion today of Radium 223 and the nuclear medicine doctor told him that studies have shown that Radium 223 only extends life a couple of months. Just curious about others experiences and the recommendations about life expectancy? Thanks everyone!
My husband had his 2nd infusion today of Radium 223 and the nuclear medicine doctor told him that studies have shown that Radium 223 only extends life a couple of months. Just curious about others experiences and the recommendations about life expectancy? Thanks everyone!
MeliaQuinn
in
Advanced Prostate Cancer
5 years ago
Possible MS ??? About see 3rd neurologist...steady decline since Feb 2019
Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI needed. U knoe the drill they slowly started increasing dose with goal TSH 0.5 . I started off 75mcg levothyroxine and then 88...i first noticed
Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI needed. U knoe the drill they slowly started increasing dose with goal TSH 0.5 . I started off 75mcg levothyroxine and then 88...i first noticed
BethanyOxe
in
My MSAA Community
5 years ago
Celery Juice? CBD? Trying both...
I posted on here a couple months ago that my GFR had fallen to 32 and then to 30 5 days later in August. Before that, I was eating bad, drinking bad and not taking care of myself. Diagnosed with IGA as an infant and am now 34. Luckily I have an active job and and otherwise in shape. Anyways, I got real
I posted on here a couple months ago that my GFR had fallen to 32 and then to 30 5 days later in August. Before that, I was eating bad, drinking bad and not taking care of myself. Diagnosed with IGA as an infant and am now 34. Luckily I have an active job and and otherwise in shape. Anyways, I got real
MPStilwell
in
Kidney Disease
5 years ago
Radium-223 Treatment in Castration-Resistant Bone Metastatic Prostate Cancer
TAKE-HOME MESSAGE •Radium-223 (223Ra) is indicated for patients with bony metastatic castrate-resistant prostate cancer. It is not known whether treatment of the primary tumor confers benefit. In this study, the authors reviewed outcomes in patients receiving 223Ra on the basis of prior radical
TAKE-HOME MESSAGE •Radium-223 (223Ra) is indicated for patients with bony metastatic castrate-resistant prostate cancer. It is not known whether treatment of the primary tumor confers benefit. In this study, the authors reviewed outcomes in patients receiving 223Ra on the basis of prior radical
Balsam01
in
Advanced Prostate Cancer
5 years ago
Low sodium levels?
One of my latest test results showing sodium level down to 129 -last test was 130. Both results too low according to standards. Not sure if Trileptal prescription is playing a part- is known to cause low sodium. Meet with nephrologist on results tomorrow but seeing this score drop is frightening.
One of my latest test results showing sodium level down to 129 -last test was 130. Both results too low according to standards. Not sure if Trileptal prescription is playing a part- is known to cause low sodium. Meet with nephrologist on results tomorrow but seeing this score drop is frightening.
Hopefultaw
in
Early CKD Support
5 years ago
Help how to help diarrhoea
I have had ibs since I was 13 (I’m 19 now) and it’s still a struggle I normally get it when having anxiety and waiting somewhere (can also be triggered by eating or drinking when anxious) I take Rennies for the intertergestion (soz can’t spell) and loperamide (Imodium) for the diarrhoea but it’s still
I have had ibs since I was 13 (I’m 19 now) and it’s still a struggle I normally get it when having anxiety and waiting somewhere (can also be triggered by eating or drinking when anxious) I take Rennies for the intertergestion (soz can’t spell) and loperamide (Imodium) for the diarrhoea but it’s still
IBS_Problems
in
IBS Network
5 years ago
latest bloods
Serum free T4 level 8 pmol/L [5.6 - 21.0] Serum TSH level 2.73 U/mL [0.38 - 5.33] Serum free triiodothyronine level 4.2 pmol/L [3.7 - 7.0] GFR-EPI GFR calculated abbreviated MDRD > 90 mL/min [59.0 - 9999.0] Serum creatine kinase level Serum creatine kinase level 45 u/L [20.0 - 160.0] Serum C reactive
Serum free T4 level 8 pmol/L [5.6 - 21.0] Serum TSH level 2.73 U/mL [0.38 - 5.33] Serum free triiodothyronine level 4.2 pmol/L [3.7 - 7.0] GFR-EPI GFR calculated abbreviated MDRD > 90 mL/min [59.0 - 9999.0] Serum creatine kinase level Serum creatine kinase level 45 u/L [20.0 - 160.0] Serum C reactive
mandy72
in
Thyroid UK
5 years ago
How do you clean the strap of your Garmin ForeRunner watch?
OK VRBs I need to engage the hive mind... [i]how do you clean the strap of your running watch?[/i] I have a Garmin ForeRunner 235 with the silicone rubber strap (the black/grey one). To be honest it is a bit manky with a chemical weapon comprised of insect repellant, sun screen, dried sweat, salt, dried
OK VRBs I need to engage the hive mind... [i]how do you clean the strap of your running watch?[/i] I have a Garmin ForeRunner 235 with the silicone rubber strap (the black/grey one). To be honest it is a bit manky with a chemical weapon comprised of insect repellant, sun screen, dried sweat, salt, dried
MarkyD
Graduate10
in
Bridge to 10K
5 years ago
Decision time on Tuesday morning after progression shown in scans
hi all, My husband has spent the last two months on Zytiga rechallenge after 5 rounds of docetaxel. He has had increased hip and back achiness, not severe pain. last month I thought with PSA jump from 45 to 57 that onc would change therapies, but he felt we could continue at that time with the zytiga
hi all, My husband has spent the last two months on Zytiga rechallenge after 5 rounds of docetaxel. He has had increased hip and back achiness, not severe pain. last month I thought with PSA jump from 45 to 57 that onc would change therapies, but he felt we could continue at that time with the zytiga
Dalipup
in
Advanced Prostate Cancer
5 years ago
Can anyone make use of residue dialysis support materials?
I supported my son-in-law at our home during his dialysis. He's had his operation and is recovering. I now have plenty of his support fluids, needles etc at my home. Is there any organisation that will make use of the following, much of which is still sealed. 12 box SAK402; 1 box BD Plastipak; 2 box
I supported my son-in-law at our home during his dialysis. He's had his operation and is recovering. I now have plenty of his support fluids, needles etc at my home. Is there any organisation that will make use of the following, much of which is still sealed. 12 box SAK402; 1 box BD Plastipak; 2 box
ukoilgas
in
Kidney Dialysis
5 years ago
Dads Full blood count. Any advise please for Vitamins/minerals
Dad is 76, we already know that his T4/T3 is low. No diagnosis of Thyroid issues. He has Alzheimer’s for the last 10yrs but it is progressing very very slowly and when I quizzed my mum she said there were no lesions as far as she knew and the last scan made the consultant frown because he was expecting
Dad is 76, we already know that his T4/T3 is low. No diagnosis of Thyroid issues. He has Alzheimer’s for the last 10yrs but it is progressing very very slowly and when I quizzed my mum she said there were no lesions as far as she knew and the last scan made the consultant frown because he was expecting
NWA6
in
Thyroid UK
5 years ago
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