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Skull met!
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
docbulldog
in
Advanced Prostate Cancer
4 months ago
Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
4 months ago
Companies that test liver biospy tissue to see what immunotherapy, parp inhibitors or ATK inhibitors would work?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
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Worsening back pain after treatment?
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
Jpburns
in
Advanced Prostate Cancer
4 months ago
Scared of the Future.....
My husband (42M) has been having the feeling of needing to use the bathroom 7-10 times a day, and it always comes out as gas or diarrhea, loose watery stools. I had him to our primary doctor and get some tests run. All of his bloodwork has come back ok, his platelets are a little high, but his iFOBT
My husband (42M) has been having the feeling of needing to use the bathroom 7-10 times a day, and it always comes out as gas or diarrhea, loose watery stools. I had him to our primary doctor and get some tests run. All of his bloodwork has come back ok, his platelets are a little high, but his iFOBT
MisSchulte
in
Colon Cancer Connected
4 months ago
Disappointed
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
JolleySprings
in
Advanced Prostate Cancer
4 months ago
Spinal uptake
Afternoon fellow warriors, after a recent Pet scan they have found 2 spots one on my upper spine and the other on my neck.My Oncologist is worried having radiotherapy on my neck maybe to close to the spinal cord should I be worried that this is the case. She is suggesting I just move into a different
Afternoon fellow warriors, after a recent Pet scan they have found 2 spots one on my upper spine and the other on my neck.My Oncologist is worried having radiotherapy on my neck maybe to close to the spinal cord should I be worried that this is the case. She is suggesting I just move into a different
Chubby42
in
Advanced Prostate Cancer
6 months ago
Thank you Angela for sharing your story!
“I have never really been a sun worshipper but I have used sunbeds in the past. I used to hire one for use at home in my late teens/early 20’s then used the stand-up ones on and off at tanning salons a few years after that. I never thought there was any harm in using sunbeds and I can’t remember seeing
“I have never really been a sun worshipper but I have used sunbeds in the past. I used to hire one for use at home in my late teens/early 20’s then used the stand-up ones on and off at tanning salons a few years after that. I never thought there was any harm in using sunbeds and I can’t remember seeing
SkcinHQ
Partner
in
Skin Cancer UK
4 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
7 months ago
Disgusted with Healthcare
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
Vangogh1961
in
Advanced Prostate Cancer
4 months ago
Androlic acid
8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me to start androlic acid to help my bones after a dexa scan showed I had oastiopenia . I really do not want to start the meds and am very anxious
8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me to start androlic acid to help my bones after a dexa scan showed I had oastiopenia . I really do not want to start the meds and am very anxious
SjDexDolly
in
PMRGCAuk
4 months ago
One year stem cell transplant anniversary
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
Scaredy_cat
in
MPN Voice
8 months ago
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, [i][b] also developing for neuroendocrine prostate cancer[/b][/i]
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
Scout4answers
in
Advanced Prostate Cancer
4 months ago
Severe reaction to immunotherapy
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
toffeepudding
in
The Roy Castle Lung Cancer Foundation
1 year ago
Battling two cancers on two fronts, simultaneously
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
Has anyone fought PCa and NEPc simultaneously? I have had PCa-classic since 2011. After lupron/lusinipril for years, I began Casodex . Bad reaction, switched to Zytiga. That affected my liver enzymes, so on to Xtandi. It worked well. So, this last August a lump was found under my jaw at the lymph node
CharlieBC
in
Advanced Prostate Cancer
7 months ago
Running post cancer
So a shock diagnosis of colon cancer last year, surgery and chemo and I'm now doing c25k for a second time hoping that exercise can have some beneficial effect in keeping me healthy. Anyone else in this situation?
So a shock diagnosis of colon cancer last year, surgery and chemo and I'm now doing c25k for a second time hoping that exercise can have some beneficial effect in keeping me healthy. Anyone else in this situation?
RamblingMe
Graduate
in
Couch to 5K
4 months ago
Update on Failing Pirtobrutinib
After 8 months on pirto, my specialist confirmed the drug is indeed no longer working. We discussed 2 options, CAR-T (not a trial) and a BTK degrader trial at Penn. After a long explanation of how they handle the CAR-T procedure, (it is done on an outpatient basis). Along with all the major risks and
After 8 months on pirto, my specialist confirmed the drug is indeed no longer working. We discussed 2 options, CAR-T (not a trial) and a BTK degrader trial at Penn. After a long explanation of how they handle the CAR-T procedure, (it is done on an outpatient basis). Along with all the major risks and
ReneeSusan
in
CLL Support
4 months ago
Early Breast Cancer - Radiation Treatment
I'm about to embark on a 4 week radiation therapy after my lumpectomy. I'm not looking forward to it. I have a weak heart and ultra sensitive skin. The more I read about its long term side effects, the more hesitant I become. Any advice for me? Has anyone skipped radiation treatment?
I'm about to embark on a 4 week radiation therapy after my lumpectomy. I'm not looking forward to it. I have a weak heart and ultra sensitive skin. The more I read about its long term side effects, the more hesitant I become. Any advice for me? Has anyone skipped radiation treatment?
jawsbar75
in
SHARE Breast Cancer Support
7 months ago
Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
6 months ago
Lead Prostate Cancer Candidate Bria-Pros+, Initiates GMP Manufacturing
I do not like headers like "Ground-breaking" or "Practice changing" but hopefully they will keep their promise in this case... "We are enthusiastic about commencing GMP manufacturing for our prostate cancer clinical candidate, continuing our efforts at transforming targeted cancer therapy via the introduction
I do not like headers like "Ground-breaking" or "Practice changing" but hopefully they will keep their promise in this case... "We are enthusiastic about commencing GMP manufacturing for our prostate cancer clinical candidate, continuing our efforts at transforming targeted cancer therapy via the introduction
Maxone73
in
Advanced Prostate Cancer
7 months ago
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