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Neuropathy help?
Diagnosed June 2023, Started Lupron July, Zytiga and prednisone August, IMRT 28x 70gy, including distant oligometastatic retroperitoneal lymph nodes November. Everything going fine only minor side effects and I feel good. Then, May 1st 2024 I have sudden onset of peripheral neuropathy. Wow, what a buzzkill
Diagnosed June 2023, Started Lupron July, Zytiga and prednisone August, IMRT 28x 70gy, including distant oligometastatic retroperitoneal lymph nodes November. Everything going fine only minor side effects and I feel good. Then, May 1st 2024 I have sudden onset of peripheral neuropathy. Wow, what a buzzkill
pj1121
in
Advanced Prostate Cancer
25 days ago
Bloomberg News wants to talk with you
Malecare has had excellent experience with patient advocacy articles written by Bloomberg News reporters Please consider contributing your thoughts to Fiona Rutherford’s story, described below Be sure to mention that you are a member of this Malecare online support community !!! “We're working on
Malecare has had excellent experience with patient advocacy articles written by Bloomberg News reporters Please consider contributing your thoughts to Fiona Rutherford’s story, described below Be sure to mention that you are a member of this Malecare online support community !!! “We're working on
Darryl
Partner
in
Advanced Prostate Cancer
25 days ago
update
While I read everyday, I haven’t updated for almost 2 years Life is still good, my husband is now on his 6th year of enzalutamide and Zolodex Bone scan shows very little change, bit of skull uptake but the rib uptake shown on the scan 6 months ago has gone PSA has bounced between 1 and 5 in the
While I read everyday, I haven’t updated for almost 2 years Life is still good, my husband is now on his 6th year of enzalutamide and Zolodex Bone scan shows very little change, bit of skull uptake but the rib uptake shown on the scan 6 months ago has gone PSA has bounced between 1 and 5 in the
LB100
in
Advanced Prostate Cancer
25 days ago
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Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Mgtd
in
Advanced Prostate Cancer
25 days ago
PSA rising
Two months ago, husband’s PSA was .23, last month .20, yesterday .27. MO wants to watch and see what it is next month. Husband diagnosed 9/23, finished 6 rounds chemo on 2/21, is on Zytiga and Orgovyx currently. Concerned about the rise in PSA, would like input. Thank you.
Two months ago, husband’s PSA was .23, last month .20, yesterday .27. MO wants to watch and see what it is next month. Husband diagnosed 9/23, finished 6 rounds chemo on 2/21, is on Zytiga and Orgovyx currently. Concerned about the rise in PSA, would like input. Thank you.
Lindajda
in
Advanced Prostate Cancer
25 days ago
Rise in PSA and extra Eligard Injection
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
Brightman
in
Advanced Prostate Cancer
25 days ago
ARPIs May Improve Survival in Some With Prostate Cancer
"In patients with metastatic castration-resistant prostate cancer, researchers have found that androgen receptor pathway inhibitors (ARPIs) outperformed the standard of care, which improved responses to treatment and overall survival (OS; time a patient lives, regardless of disease status)." We are
"In patients with metastatic castration-resistant prostate cancer, researchers have found that androgen receptor pathway inhibitors (ARPIs) outperformed the standard of care, which improved responses to treatment and overall survival (OS; time a patient lives, regardless of disease status)." We are
Maxone73
in
Advanced Prostate Cancer
25 days ago
Mammograms Use of cloth coverings for glass plates.
Does anyone know of a Mammogram center that uses Bella Blankets or any cloth covering on the mammogram glass plates ? I had a yeast infection under my breasts after the last test. I also have tears from the glass plate. The cloth coverings are supposed to remedy that. I am in the Dallas, Fort Worth area
Does anyone know of a Mammogram center that uses Bella Blankets or any cloth covering on the mammogram glass plates ? I had a yeast infection under my breasts after the last test. I also have tears from the glass plate. The cloth coverings are supposed to remedy that. I am in the Dallas, Fort Worth area
3Van4Ruth
in
SHARE Metastatic Breast Cancer
26 days ago
Can psa fluctuate while on adt?
My husband has been on Eligard and Xtandi since 2021. He’d been undetectable until this past November when his psa rose to 0.004, detectable. But then he became undetectable once more until yesterday’s psa test when it became detectable again. His oncologist switched his Xtandi to another similar med
My husband has been on Eligard and Xtandi since 2021. He’d been undetectable until this past November when his psa rose to 0.004, detectable. But then he became undetectable once more until yesterday’s psa test when it became detectable again. His oncologist switched his Xtandi to another similar med
artmus
in
Advanced Prostate Cancer
26 days ago
CA125 and HPV
Hi I’m a 49 year old mum to 4 kids 19 and under. I have suffered from stomach pains for years and recently it’s been getting a lot worse especially the bloating. There is days i feel so bloated i could burst and have a hot water bottle permanently attached to me. Anyway, after much nagging from my
Hi I’m a 49 year old mum to 4 kids 19 and under. I have suffered from stomach pains for years and recently it’s been getting a lot worse especially the bloating. There is days i feel so bloated i could burst and have a hot water bottle permanently attached to me. Anyway, after much nagging from my
lilysocks
in
My Ovacome
26 days ago
Enzalutamide before Abiraterone
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2822420 A recent study concludes that Enzalutamide is slightly more beneficial if used before Abiraterone. This is contrary to other studies which some of you have posted recently. “Findings In this cohort study of 5779 patients with mCRPC
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2822420 A recent study concludes that Enzalutamide is slightly more beneficial if used before Abiraterone. This is contrary to other studies which some of you have posted recently. “Findings In this cohort study of 5779 patients with mCRPC
Ausi
in
Advanced Prostate Cancer
26 days ago
What's next?
Surgery, pelvic and prostate bed radiation. 2 years zytiga/lupron. PSA <0.04 for 2 years. Radiation oncologist agrees with 2 MO no scans till PSA rises. 2 MO say no more treatment unless PSA rises.What is best next treatment if needed? Nervous not being proactive.Both MOs agreed only 2 years lupron.
Surgery, pelvic and prostate bed radiation. 2 years zytiga/lupron. PSA <0.04 for 2 years. Radiation oncologist agrees with 2 MO no scans till PSA rises. 2 MO say no more treatment unless PSA rises.What is best next treatment if needed? Nervous not being proactive.Both MOs agreed only 2 years lupron.
rfgh20
in
Advanced Prostate Cancer
27 days ago
PSA and Testosterone update
My PSA increased after 6 weeks to 0.04 but my T dropped to 8.87 not sure how to think of this. I had no expectation, so it is what it is. Plan is my MO will give me a PSMA scan if a I get to 2.0 PSA. These numbers are so small that I know that they are meaningless at this point but I would still
My PSA increased after 6 weeks to 0.04 but my T dropped to 8.87 not sure how to think of this. I had no expectation, so it is what it is. Plan is my MO will give me a PSMA scan if a I get to 2.0 PSA. These numbers are so small that I know that they are meaningless at this point but I would still
Scout4answers
in
Advanced Prostate Cancer
28 days ago
Keytruda for prostrate cancer.
Had my prostrate removed, psa went up, had radiation, psa went up, went on eleguard, psa kept going up, tried erleada, did nothing, psa kept going up, now at 25, also found a tumor on bladder outside wall. Oncologist wid a blood test and it showed that keytruda might work. After 1 infusion, psa went
Had my prostrate removed, psa went up, had radiation, psa went up, went on eleguard, psa kept going up, tried erleada, did nothing, psa kept going up, now at 25, also found a tumor on bladder outside wall. Oncologist wid a blood test and it showed that keytruda might work. After 1 infusion, psa went
Lightfoot550
in
Advanced Prostate Cancer
28 days ago
Carboplatin and Caelyx chemo combination
Hello everyone. Just wondering if anyone has had the combination of carboplatin and Caelyx for recurrence? I had review following scan this week and was told some recurrence in lymph nodes, pelvis and axillary. This wasn't a complete surprise as since finishing my treatment in February and starting niraparib
Hello everyone. Just wondering if anyone has had the combination of carboplatin and Caelyx for recurrence? I had review following scan this week and was told some recurrence in lymph nodes, pelvis and axillary. This wasn't a complete surprise as since finishing my treatment in February and starting niraparib
Bluedoor24
in
My Ovacome
28 days ago
cholestryamine
I have metastatic Stage 4 prostate cancer, and also extremely high blood levels of the toxin PFAS. In fact, my town is a hotspot for PFAS and there is much evidence it causes cancer For years , the word was they are “forever” and you can’t get them out. However, a recent study showed that this
I have metastatic Stage 4 prostate cancer, and also extremely high blood levels of the toxin PFAS. In fact, my town is a hotspot for PFAS and there is much evidence it causes cancer For years , the word was they are “forever” and you can’t get them out. However, a recent study showed that this
Cape1
in
Advanced Prostate Cancer
28 days ago
Looking for Encouragement
Hello everyone. Im updating my husband’s profile and hoping to find others that are in a similar situation. He is 62 years old and recently diagnosed with stage IV prostate cancer. His PSA was 885 and has too many Mets to count from his skull to groin area. The urologist started him and casadex and
Hello everyone. Im updating my husband’s profile and hoping to find others that are in a similar situation. He is 62 years old and recently diagnosed with stage IV prostate cancer. His PSA was 885 and has too many Mets to count from his skull to groin area. The urologist started him and casadex and
Iber
in
Advanced Prostate Cancer
28 days ago
How does Lynparza work?
I am brca2+ and 3 months into Lynparza. Stopped Zytiga, continuing ADT. I generally tolerate meds ok, but am finding this one v toxic. As I understand it, the brca2 gene mutation is in all cells, not just cancerous ones. In this case, Lynparza could be preventing parp from getting to healthy cells
I am brca2+ and 3 months into Lynparza. Stopped Zytiga, continuing ADT. I generally tolerate meds ok, but am finding this one v toxic. As I understand it, the brca2 gene mutation is in all cells, not just cancerous ones. In this case, Lynparza could be preventing parp from getting to healthy cells
Ian99
in
Advanced Prostate Cancer
28 days ago
The steroid with zytiga can be a deal
My Dads new oncologist switched his steroid from prednisolone to dexamethasone - she was distressed at first appointment to see he was on zytiga and prednisolone. She said research pretty clear that dexamethasone is better. On today's PSA results she is clearly correct. We thought that he had become
My Dads new oncologist switched his steroid from prednisolone to dexamethasone - she was distressed at first appointment to see he was on zytiga and prednisolone. She said research pretty clear that dexamethasone is better. On today's PSA results she is clearly correct. We thought that he had become
TomsD1
in
Advanced Prostate Cancer
28 days ago
Happy Days
Hi everyone, Just wanted to share my positive news with you all! MBC in chest wall and lymph nodes! Been on Ibrance and Letrozole since 23rd May 24 and ct scan shows the tumours have shrunk and no sign of any spreading! I am over the moon, really thought I’d had it this time! 3rd time with BC, I cried
Hi everyone, Just wanted to share my positive news with you all! MBC in chest wall and lymph nodes! Been on Ibrance and Letrozole since 23rd May 24 and ct scan shows the tumours have shrunk and no sign of any spreading! I am over the moon, really thought I’d had it this time! 3rd time with BC, I cried
Teddypeppalola
in
SHARE Metastatic Breast Cancer
28 days ago
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