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Hives
Hi Everyone! Disgusting outbreak of hives. I have been lucky - been awhile. Usually later on in the summer. any rec’s? I am on the east coast not too sunny yet OTC & calamine. chill Any suggestions? 🎱☔️ Ty
Hi Everyone! Disgusting outbreak of hives. I have been lucky - been awhile. Usually later on in the summer. any rec’s? I am on the east coast not too sunny yet OTC & calamine. chill Any suggestions? 🎱☔️ Ty
Tennisbum
in
Hughes Syndrome APS Forum
5 months ago
Prebiotic Probiotic Antibiotic... What's the deal?
Ok... Antibiotic is just added to the post title for rhyming. This post is not about antibiotic. So what is this about? Bacillus Subtilis PXN21 beneficial for PD... And Bio-Kult sells out. Thankfully pvw2 pointed out that any Subtilis strain works L. Plantarum PS128 beneficial for PD... And
Ok... Antibiotic is just added to the post title for rhyming. This post is not about antibiotic. So what is this about? Bacillus Subtilis PXN21 beneficial for PD... And Bio-Kult sells out. Thankfully pvw2 pointed out that any Subtilis strain works L. Plantarum PS128 beneficial for PD... And
JayPwP
in
Cure Parkinson's
5 months ago
How to handle going off mirapex
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
lorri214
in
Restless Legs Syndrome
5 months ago
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Pee problems
Lately my hypochondria has been in over-drive. I have incontinence. That is, when I feel like I'm done , and zip -up, I shortly see fluid has soaked into my denims. I use Myrbetriq, a drug to lessen bladder spasms. It works, that is, when I'm done I don't feel the urge to continue peeing
Lately my hypochondria has been in over-drive. I have incontinence. That is, when I feel like I'm done , and zip -up, I shortly see fluid has soaked into my denims. I use Myrbetriq, a drug to lessen bladder spasms. It works, that is, when I'm done I don't feel the urge to continue peeing
kaypeeoh
in
Cure Parkinson's
6 months ago
Motion Sickness
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
At the ripe old age of 77, I will be taking my first cruise this summer with my children and grandchildren. I'm trying to be prepared for anything so I asked my doctor about medications for motion sickness. He said I would not be able to use the patch that is worn behind the ear because it can cause
JudyMarieC
in
Atrial Fibrillation Support
6 months ago
Hot milk works
I have RLS and PLMD such that I have very strong muscle contractions in my legs and abdomen. It has been increasing in intensity over the last few years and may stop for a few nights then return. The abdominal jerks are particularly distressing and will occur with uncanny regularity of from every 10
I have RLS and PLMD such that I have very strong muscle contractions in my legs and abdomen. It has been increasing in intensity over the last few years and may stop for a few nights then return. The abdominal jerks are particularly distressing and will occur with uncanny regularity of from every 10
keelstep
in
Restless Legs Syndrome
6 months ago
Bad dreams - does it ever end - fed up!
I have gone from one thing to another since my ablation on the 26th March! Thanks to you lovely people who have helped me through the physical and emotional side effects, I couldn't have done this without you. I am fed up - am I expecting too much? I am awake often hourly through the night, have vivid
I have gone from one thing to another since my ablation on the 26th March! Thanks to you lovely people who have helped me through the physical and emotional side effects, I couldn't have done this without you. I am fed up - am I expecting too much? I am awake often hourly through the night, have vivid
Karendeena
in
Atrial Fibrillation Support
6 months ago
Lopressor dose titration
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
farewelltoarms
in
Atrial Fibrillation Support
6 months ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
6 months ago
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bolt_Upright
in
Cure Parkinson's
6 months ago
Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
6 months ago
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Effects of Traditional Japanese Massage Therapy on Various Symptoms in Patients with Parkinson’s Disease:A Case-Series Study 2012 https://sci-hub.st/10.1089/acm.2011.0148
Abstract:
Objectives:
Massage therapy is one of the most commonly used complementary therapies for patients
Bolt_Upright
in
Cure Parkinson's
6 months ago
Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
6 months ago
Suggestions For Reducing 'Off' Time
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote “The New Parkinson’s Disease Treatment Book”. I am looking for any suggestions regarding how I can reduce my ‘off’ times that are becoming more and more severe. I’m trying to hold off on the DBS surgery and
I sent this message to my Neurologist from Mayo Clinic who works under Eric Ahlskog who wrote “The New Parkinson’s Disease Treatment Book”. I am looking for any suggestions regarding how I can reduce my ‘off’ times that are becoming more and more severe. I’m trying to hold off on the DBS surgery and
tandolino
in
Cure Parkinson's
6 months ago
does anyone have experience of Benzatropine?
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
Grandsonlover
in
Cure Parkinson's
6 months ago
Farmed salmon and PLMD
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
Hi everyone I would again be grateful for your help on this wonderful site I have severe RLS and severe PLMD. I take 1500 mgs gaberpentin and 750 micros clonazepam every night .Normally i wake up twice a night,,twitching away, go for a 30 minutes walk, and, if i am lucky, I can get back to
thorp
in
Restless Legs Syndrome
7 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
Puggy1910
in
Restless Legs Syndrome
7 months ago
First Post from New Member
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Leeserann
in
Restless Legs Syndrome
7 months ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
7 months ago
Not sure whether I should be pleased or disappointed. Sleep study results
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
Spurdog1
in
Restless Legs Syndrome
7 months ago
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