Search
Search
About
Log in
Join
Experiences with
Sinemet CR
Posts
Communities
1,343 public posts
Filter results
Follow up on B1 journey
What an interesting, annoying and time consuming disease Parkinsons is! I have been injecting hubby with 2mls Vit B1 twice a week since meeting Dr Costantini on 5th June. Results have been very mixed and certainly he has not had the dramatic improvement that some have noted here. One day, two weeks
What an interesting, annoying and time consuming disease Parkinsons is! I have been injecting hubby with 2mls Vit B1 twice a week since meeting Dr Costantini on 5th June. Results have been very mixed and certainly he has not had the dramatic improvement that some have noted here. One day, two weeks
nellie58
in
Cure Parkinson's
6 years ago
RLS/Augmentation and Refractory RLS
I have been dealing with RLS for almost 40 years. It wasn’t until 1996 that I was officially diagnosed through a sleep study. I was prescribed Sinemet at the lowest dose, and over the course of 5 years developed augmentation. Doctors tried prescribing other types of medications such as antidepressants
I have been dealing with RLS for almost 40 years. It wasn’t until 1996 that I was officially diagnosed through a sleep study. I was prescribed Sinemet at the lowest dose, and over the course of 5 years developed augmentation. Doctors tried prescribing other types of medications such as antidepressants
Maggiemay9
in
Restless Legs Syndrome
6 years ago
Mucana pruriens question
is 700 mg of 20% L dopa in mucana pruriens the same as 140 mg? I’m thinking of swiping from 50-200 sinemet xr to mucana. I see my neurologist tomorrow
is 700 mg of 20% L dopa in mucana pruriens the same as 140 mg? I’m thinking of swiping from 50-200 sinemet xr to mucana. I see my neurologist tomorrow
1953bullard
in
Cure Parkinson's
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Achtenon-Biperidene
hey .my neurologist add to me a drug called Achtenon .im using sinemet and mirapex so did any one try it ,any benefits,side effect ?
hey .my neurologist add to me a drug called Achtenon .im using sinemet and mirapex so did any one try it ,any benefits,side effect ?
jack-carpenter
in
Cure Parkinson's
6 years ago
After Sinemet
Sorry I am asking another question. I really am stuck with getting quick and expert advice here in Spain I am very aware that Ian is becoming less responsive to the Sinemet he has been on for the last 4 years. He is on the strongest dosage. He also takes Xadago, or Safinamide. I only have access to the
Sorry I am asking another question. I really am stuck with getting quick and expert advice here in Spain I am very aware that Ian is becoming less responsive to the Sinemet he has been on for the last 4 years. He is on the strongest dosage. He also takes Xadago, or Safinamide. I only have access to the
JCRy
in
PSP Association
6 years ago
List of biologics.
Hi I’m looking for a full list of biologics that treat RA. So far I have: Actemra Cimzia Enbrel Humira Kineret Orencia Remicade Rituxan Simpsoni Am I missing any?
Hi I’m looking for a full list of biologics that treat RA. So far I have: Actemra Cimzia Enbrel Humira Kineret Orencia Remicade Rituxan Simpsoni Am I missing any?
Hobbits
in
NRAS
6 years ago
SOB
I,m new. Anybody experience shortness of breath as Sinemet wearing off?
I,m new. Anybody experience shortness of breath as Sinemet wearing off?
BNeal636
in
Cure Parkinson's
6 years ago
Any good news on sinemet
Recently dgnsd wondering wot the future holds; seem to read lots of negativity regarding ldopa meds: ;has anyone got any positive storys;as its our main med thanks
Recently dgnsd wondering wot the future holds; seem to read lots of negativity regarding ldopa meds: ;has anyone got any positive storys;as its our main med thanks
jimmydook
in
Cure Parkinson's
6 years ago
Hi! I’m 66, probably had PD for 50 years, diagnosed 7 years ago. I’m using KETO diet to fix PD - 3 days into ZERO meds, feeling pretty good
I had several symptoms of Parkinson’s Disease as a teenager, but played Squash and later Racketball all my life and didn’t get the tremor until 2009. Took 2 years to get the dreaded diagnosis and then took increasing doses of Ropinirole and Sinemet as prescribed by the neurologist. Basically I ignored
I had several symptoms of Parkinson’s Disease as a teenager, but played Squash and later Racketball all my life and didn’t get the tremor until 2009. Took 2 years to get the dreaded diagnosis and then took increasing doses of Ropinirole and Sinemet as prescribed by the neurologist. Basically I ignored
2bats
in
Cure Parkinson's
6 years ago
Still fighting thru darkness
If anyone has read my posts before , they will know that my mom had an accident , C2 fracture - and an NG tube down her throat for 4 months- that complete;y changed the physiology and the psychology of her eating . - Before the accident less than a year ago, swallowing food was never an issue . .
If anyone has read my posts before , they will know that my mom had an accident , C2 fracture - and an NG tube down her throat for 4 months- that complete;y changed the physiology and the psychology of her eating . - Before the accident less than a year ago, swallowing food was never an issue . .
mymomhaspd
in
Cure Parkinson's
6 years ago
Statistics
Any body found any data on percentages of patients who are happy with their medication and how long they have been stable. Are we HU rebels in a minority? My neurologist claims that none of his patients have problems with Sinemet!
Any body found any data on percentages of patients who are happy with their medication and how long they have been stable. Are we HU rebels in a minority? My neurologist claims that none of his patients have problems with Sinemet!
Hidden
in
Cure Parkinson's
6 years ago
Quitting Sinemet
I've got a question but the question will come at the end of a long preface. So I hope you have the attention to read my story. Apologies in advance for the long read. I've been taking Sinemet for almost 15 years. I have had a pretty decent experience with it but in large part I think that is because
I've got a question but the question will come at the end of a long preface. So I hope you have the attention to read my story. Apologies in advance for the long read. I've been taking Sinemet for almost 15 years. I have had a pretty decent experience with it but in large part I think that is because
jimmcar
in
Restless Legs Syndrome
6 years ago
reaching Saaorise
I don't know why i can't find your posts when you reply to me. My husband's neurologist lectures him constantly about taking too much dopamine. Parkinson's is a disease that constantly changes and hallucinations and delusions are common with taking too much. I am amazed that a person other than a neuarologist
I don't know why i can't find your posts when you reply to me. My husband's neurologist lectures him constantly about taking too much dopamine. Parkinson's is a disease that constantly changes and hallucinations and delusions are common with taking too much. I am amazed that a person other than a neuarologist
rhyspeace12
in
Cure Parkinson's
6 years ago
What’s up with this?
I exercise a lot. Walking, running, boxing, Tai chi. Bike rides. Today I went on a 15 mile bike ride. It got pretty hot, up to 86. But when I finished my tremor was so much worse! And I was 4 hours away from my next dose of sinemet. This is the first time my union tremor was worse after exercising. Wondering
I exercise a lot. Walking, running, boxing, Tai chi. Bike rides. Today I went on a 15 mile bike ride. It got pretty hot, up to 86. But when I finished my tremor was so much worse! And I was 4 hours away from my next dose of sinemet. This is the first time my union tremor was worse after exercising. Wondering
1953bullard
in
Cure Parkinson's
6 years ago
What has b1 helped
I know everyone is probably fed up off the topic of b1 protocol but I have a few. Queri es you may be able to help with before in get in contact with dr costanini I suffer a lot from the side effects of sinemet e.g. Dyskinesia (this is new) , early morning dystonia, stomach cramp, voice problems , foggy
I know everyone is probably fed up off the topic of b1 protocol but I have a few. Queri es you may be able to help with before in get in contact with dr costanini I suffer a lot from the side effects of sinemet e.g. Dyskinesia (this is new) , early morning dystonia, stomach cramp, voice problems , foggy
Connie18
in
Cure Parkinson's
6 years ago
Thank you to y’all here!
I can’t thank you, the members of this community, enough for helping me address the symptoms of PD. I was diagnosed in 2015 but had left hand tremor for two years prior and a gradual loss of smell since around 2003. Yes I know that PD is progressive and incurable. So is the aging process; I am 71 after
I can’t thank you, the members of this community, enough for helping me address the symptoms of PD. I was diagnosed in 2015 but had left hand tremor for two years prior and a gradual loss of smell since around 2003. Yes I know that PD is progressive and incurable. So is the aging process; I am 71 after
Lionore
in
Cure Parkinson's
6 years ago
New here!
At the moment, I take
Sinemet
25/250 4-5/day,
Sinemet
CR
25/200 1/day, amantadine and pramipexole. After 10 years with LDopa treatment, I have more negative effects, like painful dystonias, in phase "off"; in my case, when dopamine level in the body is very low.
At the moment, I take
Sinemet
25/250 4-5/day,
Sinemet
CR
25/200 1/day, amantadine and pramipexole. After 10 years with LDopa treatment, I have more negative effects, like painful dystonias, in phase "off"; in my case, when dopamine level in the body is very low.
tellme
in
Cure Parkinson's
6 years ago
Madopar instead of Sinemet
Hi Everyone Has anyone changed their Sinemet for Madopar? My friend currently takes one Madopar in the morning and 4 x Sinemet during the day but is'nt getting much relieve from the Sinemet like she used to ( diagnosed for 5 years) She also takes 1 x Opicapone in the evening She seems to be getting
Hi Everyone Has anyone changed their Sinemet for Madopar? My friend currently takes one Madopar in the morning and 4 x Sinemet during the day but is'nt getting much relieve from the Sinemet like she used to ( diagnosed for 5 years) She also takes 1 x Opicapone in the evening She seems to be getting
Seashore60
in
Cure Parkinson's
6 years ago
I can not take any extender that is used for Carbidopa-Levodopa.
This includes any extender one that is added to Carbidopa-Levodopa or any that are stand alone. This includes For me Rytary, Sinemet time release. If i take any extended release Carbidopa-Levodopa i have bouts of depression , i cry for no reason. I get angry i cuss and fuss. [i] [/i] I can not think
This includes any extender one that is added to Carbidopa-Levodopa or any that are stand alone. This includes For me Rytary, Sinemet time release. If i take any extended release Carbidopa-Levodopa i have bouts of depression , i cry for no reason. I get angry i cuss and fuss. [i] [/i] I can not think
Bailey_Texas
in
Cure Parkinson's
6 years ago
Parkinson’s
Hi, I have had Parkinson’s for about three years. I have tried so many medicines but they have not given me respite. In February I was in Cambodia when I ran out of my meds. In Cambodia I found Sinemet, this seemed to give me total rest of all my symptoms. Sadly when I got home, I was not able to find
Hi, I have had Parkinson’s for about three years. I have tried so many medicines but they have not given me respite. In February I was in Cambodia when I ran out of my meds. In Cambodia I found Sinemet, this seemed to give me total rest of all my symptoms. Sadly when I got home, I was not able to find
berniemyk
in
Cure Parkinson's
6 years ago
1
...
35
36
37
...
68
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
1185 results
Restless Legs Syndrome
69 results
PSP Association
56 results
View top 10 communities
Sort by
Most Relevant
Newest