Experiences with

Shingrix

Has anyone in the Uk had the Shingrix vaccination? I understand it’s not available on the NHS. The only clinic I can find is HH Pharmacy, Hampstead Heath, London? Not getting much joy from the hospital I’m under. Took over a month to inform my dr and that’s only because I made a nuisance of myself.

2 months ago I had the first of the two Shingrix vaccines and had a pretty awful reaction. Horrible arm soreness, blisters in my throat, throat swelling, fatigue so bad I really did not want to move. GP told me to go ahead and get the second shot. Hemeo doc said get the second shot.

All About the MMR Vaccine Shingrix Vaccine The new vaccine (Shingrix), which is not a live virus vaccine, is more effective and probably safe in MS patients, although data on patients with immunocompromised systems isn't available yet.

Anyone else had problems vis a vis the Shingrix? Paddy

Two weeks ago I got the Shingrix vaccine for shingles. One week ago, I woke up with cog fog. Oh, that dreaded familiar feeling.....😠. Fatigue has started to rear it's head and now I'm having trouble breathing well. Off for an MRI next week and a fluoroscopy sniff test. Anyone ever had one?

In particular has anyone had a reduction in pain after getting the Shingrix vaccine?

I am considering having the Shingrix vaccine (first in series of two), and I'm wondering if anyone has suggestions on what to do to help with the apparently unpleasant side effects. I can't take NSAIDs due to Dr. orders.

I'm not sure if the NHS currently allows shingrix (non-live virus) in the UK, but my CCG doesn't support it. I cross the magic 70 threshold next year so we will see what happens then, when I will need to have the jab myself. Once again, thanks for your replies and support John

I’ve also read about the Shingrix vaccine that isn’t a live vaccine but not sure if this is available in the uk?

It is called and Maus wrote about it recently so this is a repeat in case some of you missed it. Have a wonderful day everyone - if you can. Kryssy xxxxxx

I am seriously considering the new Shingrix vaccine for shingles that is not a live virus. Has anyone else received the new vaccine? How did you make out?

B/C I missed the opportunity for the Shingrix (shingles vaccine) and b/c O can increase risk of shingles/herpes, and after discussion with the infusion Oncologist, I am going to take Valtrex as a preventive for potential shingles reactivation.

Ironically, it was the day I intended to get my flu and Shingrix shots in preparation to start Ocrevus. Since there has to be a 6 week window b/w immunizations and infusions, and no immunizations with active shingles, it looks like I will forgo the shots this yr.

I had an appointment with my Rheumatologist a couple of weeks ago and she advised me to have a Shingles vaccine. She said the new one is ok for people with Lupus. My brother in law had recently had Shingles and it was terrible for him so I thought, ok, I'll do it. Now, 2 weeks later, I am pretty sure

Lamanna first talking about Shingrix https://www.youtube.com/watch?v=M6apIz6GtyE Many others to follow. I am hoping that the CLL PAG will publish an index or table of contents. (if you reply- remember this is an unlocked post- open to everyone on Google) Len

This is an article from last November that talks more about people in immunosuppressed states. https://www.nytimes.com/2017/11/10/health/shingrix-shingles-vaccine.html This article out of Canada has more details comparing people who took Shingrix vs Placebo under the Clinical Trials section.

I took the lead and had the first shot of Shingrix. Shingrix is the new shingles virus vaccine that is safe for people with immune compromised systems and is 99% effective. I will need to have a second booster shot 2-6 months from now.

She was also a bit cross that I hadn't got the Shingrix vaccine. She gave a prescription to hubby, and one for me, when he visited her last week, but he didn't think to tell her I'd never had chicken pox.

Hi Everyone - So i spoke to my oncologist about getting this new Shingrix vaccination for shingles and this is what i was told. “Ibrutinib is an immunosuppressant drug, which may diminish the therapeutic effect of Vaccines (Inactivated).

Per webinar just attended: 90-97% effective for at least 4 yrs. (may need a booster but is more efficacious than Zostavax) Approved > 50yrs. Old Not yet approved for immunocompromised (so not for those on immunosuppressing DMTs) Yes, give if you've had shingles or you've had the prior shingles vaccine