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Severe macular oedema
A few months ago, I thought that I needed new spectacles so I went to an optometrist who immediately referred me to an ophthalmologist telling me that I had retinal bleeding in the right eye. The opthamologist diagnosed me to have a macular oedema consequent upon a retinal vein blockage and gave me
A few months ago, I thought that I needed new spectacles so I went to an optometrist who immediately referred me to an ophthalmologist telling me that I had retinal bleeding in the right eye. The opthamologist diagnosed me to have a macular oedema consequent upon a retinal vein blockage and gave me
Bazza1234
in
Macular Society
6 years ago
Tips for newcomers please
As a newly diagnosed sufferer of the wet version of age-related macular degeneration I am now being injected monthly in both eyes with a loading dose for the next three months. May I ask if between injections I can safely use moisturising eye drops ? Is there anything I can do the ease the discomfort
As a newly diagnosed sufferer of the wet version of age-related macular degeneration I am now being injected monthly in both eyes with a loading dose for the next three months. May I ask if between injections I can safely use moisturising eye drops ? Is there anything I can do the ease the discomfort
Clongowes
in
Macular Society
6 years ago
macular degeneration
how can i support my husband who has dry macular degeneration diagnosed 2 years ago
how can i support my husband who has dry macular degeneration diagnosed 2 years ago
monicawood5695
in
Macular Society
6 years ago
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17 with macular degeneration?
After going to the optometrist once again (3rd time) a few days ago I was told that my eyes were fine despite seeing wavy/bent lines and other distortions. The optometrist said "at this stage it is okay" and "come back in a year or two" without mentioning any Drusen or something wrong with my macular
After going to the optometrist once again (3rd time) a few days ago I was told that my eyes were fine despite seeing wavy/bent lines and other distortions. The optometrist said "at this stage it is okay" and "come back in a year or two" without mentioning any Drusen or something wrong with my macular
AnxiousGrunt
in
Macular Society
6 years ago
Drusen in macula at the age of 21
Hello I am 21 and I have been told that I have drusen in both eyes. I have no other symptoms except having high myopia(-8.00 L, -10.00R) since young (started wearing glasses when I was 6) I read up about Age-related Macular Degeneration and Myopic Macular Degeneration, know a little bit about the stages
Hello I am 21 and I have been told that I have drusen in both eyes. I have no other symptoms except having high myopia(-8.00 L, -10.00R) since young (started wearing glasses when I was 6) I read up about Age-related Macular Degeneration and Myopic Macular Degeneration, know a little bit about the stages
cutiepie88
in
Macular Society
6 years ago
Macroshield
Recently diagnosed with wet macular disease in left eye.had 3 injections so far.is it worth trying macroshield ?.I have been taking lutein and other supplements from Holland and barret.unfortunately macushield is expensive .what is the general opinion on this?.
Recently diagnosed with wet macular disease in left eye.had 3 injections so far.is it worth trying macroshield ?.I have been taking lutein and other supplements from Holland and barret.unfortunately macushield is expensive .what is the general opinion on this?.
pollyanna76
in
Macular Society
6 years ago
Is Macula-ped near the fovea relates to Macular degeneration ?
My brother been diagnosed left eye Macula-ped near the fovea. Does this mean he has Macular degeneration. We are shocked to hear this message as he is in 38. Ophthalmologist suggested Intravitreal injection ( L ) - Anti-vegf under gvp. Really we did not understand this terms. Can some one help us
My brother been diagnosed left eye Macula-ped near the fovea. Does this mean he has Macular degeneration. We are shocked to hear this message as he is in 38. Ophthalmologist suggested Intravitreal injection ( L ) - Anti-vegf under gvp. Really we did not understand this terms. Can some one help us
Dsrb
in
Macular Society
7 years ago
Ozurdex Injection
Hi, I'm getting an ozurdex injection. I have had somewhere between 75-100 injections with Lucentis and now Eyelea. It usually takes 24 hours for my eyes to start feeling normal again. How much more does the Ozurdex hurt? And does it take longer to recover?
Hi, I'm getting an ozurdex injection. I have had somewhere between 75-100 injections with Lucentis and now Eyelea. It usually takes 24 hours for my eyes to start feeling normal again. How much more does the Ozurdex hurt? And does it take longer to recover?
Rrme
in
Macular Society
7 years ago
macular scar and optic atropy
hi all. My son 11 yrs old(Down's syndrome child) has macular scar( scar on retina ) on both eyes since birth along with Optic atrophy. Please update me if there is any treatment.
hi all. My son 11 yrs old(Down's syndrome child) has macular scar( scar on retina ) on both eyes since birth along with Optic atrophy. Please update me if there is any treatment.
maximussharma
in
Macular Society
7 years ago
Injections for Macular Degeneration
I am new here. I was diagnosed with wet macular degeneration last July in my right eye. I had it for awhile but did not realize until my annual check up. My left eye is still dry but can switch at any time. I had 3 injections of Avastin and did well. I wanted to switch to Eyelea and finally
I am new here. I was diagnosed with wet macular degeneration last July in my right eye. I had it for awhile but did not realize until my annual check up. My left eye is still dry but can switch at any time. I had 3 injections of Avastin and did well. I wanted to switch to Eyelea and finally
Maculardegeneration
in
Macular Society
7 years ago
Treatment differences for myopic macular degeneration by MDs
Hi I have been diagnosed with myopic macular degeneration. After 18 months of monthly injections my doctor left and I had to go to another. The new doctor used an angiogram and OCT test to tell me my eye was no longer leaking blood and I did not need an injection. Two days later I had my last appointment
Hi I have been diagnosed with myopic macular degeneration. After 18 months of monthly injections my doctor left and I had to go to another. The new doctor used an angiogram and OCT test to tell me my eye was no longer leaking blood and I did not need an injection. Two days later I had my last appointment
Mariannecambodia
in
Macular Society
7 years ago
#TalkAboutCharlesBonnet
We have launched a campaign to raise awareness of visual hallucinations caused by sight loss, known as Charles Bonnet Syndrome. We are always keen to highlight that these hallucinations are a natural experience and not a sign of mental illness. We are encouraging people to talk more about their hallucinations
We have launched a campaign to raise awareness of visual hallucinations caused by sight loss, known as Charles Bonnet Syndrome. We are always keen to highlight that these hallucinations are a natural experience and not a sign of mental illness. We are encouraging people to talk more about their hallucinations
macularsociety1
Macular Society
in
Macular Society
7 years ago
Testosterone issues
Hi I am just wanting some advice on some TRT issues I am facing at the moment any advice/info welcome. I am under private doc/nutitionist however want some opinions. I have been taking testogel 5mg sachets for a year plus along side finasteride (to stop conversion into DHT) and resveratrol (to stop conversion
Hi I am just wanting some advice on some TRT issues I am facing at the moment any advice/info welcome. I am under private doc/nutitionist however want some opinions. I have been taking testogel 5mg sachets for a year plus along side finasteride (to stop conversion into DHT) and resveratrol (to stop conversion
Ravs347
in
Thyroid UK
7 years ago
Choroidal Neovascularisation Help Please
I was diagnosed with CNV secondary to pathologic myopia a week ago , I had first injection of Lucentis today, wasn't too bad hospital staff were great but can't stop worrying about my good eye, at moment scans all normal would like to here from anyone with similar experience and if injections have helped
I was diagnosed with CNV secondary to pathologic myopia a week ago , I had first injection of Lucentis today, wasn't too bad hospital staff were great but can't stop worrying about my good eye, at moment scans all normal would like to here from anyone with similar experience and if injections have helped
Corriesboy
in
Macular Society
7 years ago
Worried lady
I am still new at this having only been diagnosed month ago, still trying to get some timescale if possible on this condition and the difference on wet and dry AMD. I have dry AMD I feel I have been told and the left to get on with it. I Live alone and am quite afraid of the dark. Silly I know.
I am still new at this having only been diagnosed month ago, still trying to get some timescale if possible on this condition and the difference on wet and dry AMD. I have dry AMD I feel I have been told and the left to get on with it. I Live alone and am quite afraid of the dark. Silly I know.
Boxnox7174
in
Macular Society
7 years ago
Macushield has saved my eyesight.
iI was diagnosed with wet macular degeneration six years ago. for a year I took injections every six weeks. My eye did not get any better. about a year ago my sister (who lives in London) read an article by a doctor who recommended Macushield, one of the primary ingredients is marigokd. My sister began
iI was diagnosed with wet macular degeneration six years ago. for a year I took injections every six weeks. My eye did not get any better. about a year ago my sister (who lives in London) read an article by a doctor who recommended Macushield, one of the primary ingredients is marigokd. My sister began
Shazamalama
in
Macular Society
7 years ago
Injections
I was recently diagnosed with wet macular degeneration, I am 38 years old. I am receiving injections and I am wondering how much pain afterward is normal. For a full day or longer I feel as tho my eye is simultaneously on fire and about to explode. That is as close to describing it as I can. It is to
I was recently diagnosed with wet macular degeneration, I am 38 years old. I am receiving injections and I am wondering how much pain afterward is normal. For a full day or longer I feel as tho my eye is simultaneously on fire and about to explode. That is as close to describing it as I can. It is to
Helen0303
in
Macular Society
7 years ago
Help with Charles Bonnet Syndrome
If anyone has any suggestions or know of anything that might help a sufferer of Charles Bonnet Syndrome - who is having constant extremely disturbing hallucinations, which are disrupting their daily activities and preventing them getting a good nights sleep. It would be appreciated. Has been prescribed
If anyone has any suggestions or know of anything that might help a sufferer of Charles Bonnet Syndrome - who is having constant extremely disturbing hallucinations, which are disrupting their daily activities and preventing them getting a good nights sleep. It would be appreciated. Has been prescribed
Sharpay
in
Macular Society
7 years ago
35yr old newly diagnosed with dry macular degeneration
Hi i have just been diagnosed with dry macular degeneration, i am 35yrs old and have been referred for a ERG. I am still getting head around this condition and what it means. I am worried what they will be testing for with an ERG. I have a cope of my clinic letter and it just says they are sending
Hi i have just been diagnosed with dry macular degeneration, i am 35yrs old and have been referred for a ERG. I am still getting head around this condition and what it means. I am worried what they will be testing for with an ERG. I have a cope of my clinic letter and it just says they are sending
Jol81
in
Macular Society
8 years ago
VitD results
25OH VitD2 <5 25OH Vit D3 13 Prescribed 20,000 IU one a day for two weeks then one monthly for six months then re-test. Prescription of Fultium have gelatin in them, refined maize oil, butylated hydroxytoluene, glycerol, quinoline yellow, purified water. Not happy with gelatin and concerned about
25OH VitD2 <5 25OH Vit D3 13 Prescribed 20,000 IU one a day for two weeks then one monthly for six months then re-test. Prescription of Fultium have gelatin in them, refined maize oil, butylated hydroxytoluene, glycerol, quinoline yellow, purified water. Not happy with gelatin and concerned about
Hidden
in
Thyroid UK
8 years ago
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