I was recently diagnosed with wet macular degeneration, I am 38 years old. I am receiving injections and I am wondering how much pain afterward is normal. For a full day or longer I feel as tho my eye is simultaneously on fire and about to explode. That is as close to describing it as I can. It is to the point of being almost unbearable. Is this normal?

8 Replies

  • I am 73 years old, diagnosed

    With wet AMD last Nov, I will soon have my 5th injection of

    Avestin, all along no pain what so ever good luck

  • Some people react to the iodine which is put into the eye to help clean it before the injection some people have reported a lot of pain because of the iodine so request a flush out of it afterwards. Could it be the iodine do you think?

  • My hospital give me drops called evolve (carmellose) which are taken 4 times a day for 5 days and soothe the eye a lot- worth asking about this

  • So sorry to hear that you are having so much pain after injections. I found that I had different degrees of pain, discomfort, and length of time, depending on who did the injection. I've had very sore runny eyes for as long as a week. Also times when after a night's sleep, I was almost back to normal. I read on this forum about iodine being the cause of so much discomfort. Since I have asked the injector, on every visit, to go easy on the iodine, I haven't had so much to complain about. Have you told the person injecting, exactly what you are experiencing? Your description of the pain sounds really awful.

    Wishing you good luck for the next time.

  • Hi Helen,

    I had very sore eyes for 2-3 days after my first injection and every now and again still have soreness, but most of the time it is only a little sore for a few hours and is usually very minor the following day so for me the experience varies. I do agree that it's best to tell the doctors when you go back for your follow up appointment and also when you go back if you're going to have further injections. I think that washing the iodine out thoroughly helps a good deal x

  • i agree ..the pain varies ..and does depend who's injecting , try and have a word with consultant, heard lots say about iodine prob, hope it improves for you xxxxxx

  • Dear Helen0303,

    I am sorry to read about the pain that you have been experiencing post injection. I am copying a link below to our leaflet on pain in the eye following injections. It is important that you feed back your experiences to the eye clinic. The leaflet may be useful as a discussion point with your ophthalmologist. It is possible to contact them via their secretary. it is important that you do this in advance of your next injection to try and avoid a repeat:

    Please contact us to discuss your condition further.

    Just to make you aware, we are currently offering free 6 month membership. This is a good way to keep up with current developments. Please ring us if you would like to benefit from this, or join via the following link:

    The Macular Society helpline is open 9am – 5pm Monday to Friday on 0300 3030 111.

    Alternately, you can contact us via:

    Kind regards,

  • I had my second injection of Lucentin two days ago and since then I have been experienceing severe pain in my joints. Normally I am quite active and free from pain although I am 86. I am wondereing if I have had a reaction to the drug although the first injection went smoothly. I am really worried about this and quite frightened as at the moment I can't get arounf without hobbling and am finding it difficult and very painful to get in an d out of chairs. Has anyone else experienced this effect and does it disappearf in time?

You may also like...