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Update on new anti-VEGF
I had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask the
I had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask the
Annsandra13
in
Macular Society
5 years ago
Amaurosis Fugex
Hi I just wondered Is it possible or has anybody still had symptoms such as loss of vision when INR is in range ?
Hi I just wondered Is it possible or has anybody still had symptoms such as loss of vision when INR is in range ?
Lind8
in
Hughes Syndrome APS Forum
5 years ago
Holiday insurance
I have booked a holiday and in the process of taking out insurance. When I come to the health question do I need to tell them of my eye problem? Diagnosis - Central vein occlusion with neovascularisation as well as macular oedema. I am having 2 monthly injections which will not be due for at least a
I have booked a holiday and in the process of taking out insurance. When I come to the health question do I need to tell them of my eye problem? Diagnosis - Central vein occlusion with neovascularisation as well as macular oedema. I am having 2 monthly injections which will not be due for at least a
Mrdg
in
Macular Society
5 years ago
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SHOULD I STOP MY EYE SHOTS?
I have wet Macular degeneration in both eyes with my right eye is the least affected at this point. I been receiving Lucentis at first and now and now Eylea for 12 years. At first I received shots every 2 weeks in alternating eyes. The shots have slowly been stretched out over the years. Now I don
I have wet Macular degeneration in both eyes with my right eye is the least affected at this point. I been receiving Lucentis at first and now and now Eylea for 12 years. At first I received shots every 2 weeks in alternating eyes. The shots have slowly been stretched out over the years. Now I don
Eyetime
in
Macular Society
6 years ago
No treatment?
I noticed my eyesight was blurry in mid october last year. I went to my gp who sent me straight away to the eye clinic at hospital. After several tests I was told they were unsure what was wrong and would ring me the next day after they had consulted a specialist.The phone call the next day was upsetting
I noticed my eyesight was blurry in mid october last year. I went to my gp who sent me straight away to the eye clinic at hospital. After several tests I was told they were unsure what was wrong and would ring me the next day after they had consulted a specialist.The phone call the next day was upsetting
norwh59
in
Macular Society
6 years ago
Macular degeneration / Atherosclerosis
I have been diagnosed with above. Is it safe for me to fly long haul to India in December, before receiving any treatment?
I have been diagnosed with above. Is it safe for me to fly long haul to India in December, before receiving any treatment?
felicity99
in
Macular Society
6 years ago
I am new here.
I have had 8 Eylea injections for Wet AMD in my Right eye which has worked very well and I am being kept under observation by the hospital but I was told that Macu Shield tablets may help the Dry AMD in my left eye but I am reluctant to try these as I can't get much information about them. Has anyone
I have had 8 Eylea injections for Wet AMD in my Right eye which has worked very well and I am being kept under observation by the hospital but I was told that Macu Shield tablets may help the Dry AMD in my left eye but I am reluctant to try these as I can't get much information about them. Has anyone
rosegard
in
Macular Society
6 years ago
Great news, not so great news and the AMD learning curve
My 1st Eylea injection in my left eye was June last year after which I've gone from every 4, then eventually 6, 8, 10 and now a 12 week gap between injections. The great news is that after my next injection in another 12 weeks they will stop but continue to monitor as the wet MD is pretty well dry now
My 1st Eylea injection in my left eye was June last year after which I've gone from every 4, then eventually 6, 8, 10 and now a 12 week gap between injections. The great news is that after my next injection in another 12 weeks they will stop but continue to monitor as the wet MD is pretty well dry now
Catseyes235
in
Macular Society
6 years ago
Wanting to find out what is wrong with me
Elevated anion Gap, GFR low 56, B12 elevated 1701, hemoglobin high, haematocrit high and MCH High. My doctor doesn't seem to think any of this is abnormal
Elevated anion Gap, GFR low 56, B12 elevated 1701, hemoglobin high, haematocrit high and MCH High. My doctor doesn't seem to think any of this is abnormal
Kat421
in
Pernicious Anaemia Society
6 years ago
Consultants in two specialties: Compare and contrast
In the recent High Court case determining whether the NHS is allowed to continue using Avastin rather than the far more expensive Lucentis (or the even more expensive alternative) one thought has repeatedly come to me. In treatment for wet macular degeneration, the consultants have been very strongly
In the recent High Court case determining whether the NHS is allowed to continue using Avastin rather than the far more expensive Lucentis (or the even more expensive alternative) one thought has repeatedly come to me. In treatment for wet macular degeneration, the consultants have been very strongly
helvella
Thyroid UK
in
Thyroid UK
6 years ago
IM injection technique question
When you inject, do you pull back on the needle to see if blood is drawn up? I've seen some advice to do this, but some instructions I've seen skips this step.
When you inject, do you pull back on the needle to see if blood is drawn up? I've seen some advice to do this, but some instructions I've seen skips this step.
cdragin
in
Pernicious Anaemia Society
6 years ago
Porcelain gallbladder
Hi, I was diagnosed with having porcelain gallbladder back in January and after having more tests and recently a ct scan the consultant now says the ultrasound says it’s porcelain gallbladder but ct scan shows not and it’s unusual, now got to wait and see what radiologist thinks, anybody had anything
Hi, I was diagnosed with having porcelain gallbladder back in January and after having more tests and recently a ct scan the consultant now says the ultrasound says it’s porcelain gallbladder but ct scan shows not and it’s unusual, now got to wait and see what radiologist thinks, anybody had anything
B2lue
in
Thyroid UK
6 years ago
Lucentis Experience?
Hello! I'm new here and would appreciate any and all insight. I was recently diagnosed with myopic choroidal neovascularization. I have two young kids, and my job largely depends on my ability to read and write so I am pretty depressed at the diagnosis. I received a shot of Lucentis yesterday, but
Hello! I'm new here and would appreciate any and all insight. I was recently diagnosed with myopic choroidal neovascularization. I have two young kids, and my job largely depends on my ability to read and write so I am pretty depressed at the diagnosis. I received a shot of Lucentis yesterday, but
besottedblue
in
Macular Society
6 years ago
AREDS2
I have been treated for wet macular degeneration in my right eye for approx 4years initially with Lucentis injections every month & for the last 12months Eylea injections every 12 weeks. I realise there is no cure for this but am seeking advise for taking an ARED2 formula to help prevent the same damage
I have been treated for wet macular degeneration in my right eye for approx 4years initially with Lucentis injections every month & for the last 12months Eylea injections every 12 weeks. I realise there is no cure for this but am seeking advise for taking an ARED2 formula to help prevent the same damage
lmoore
in
Macular Society
6 years ago
Trying to keep positive, how is it possible?
Hello everyone, As you can see, I gave myself a number, which with hindsight rather makes me look as if I came from a concentration camp! Wish that I had chosen a username instead. I was diagnosed with dry AMD, around last October, 2017. I was shocked to the core because I was not aware of any visual
Hello everyone, As you can see, I gave myself a number, which with hindsight rather makes me look as if I came from a concentration camp! Wish that I had chosen a username instead. I was diagnosed with dry AMD, around last October, 2017. I was shocked to the core because I was not aware of any visual
Hidden
in
Macular Society
6 years ago
Wet macular degeneration and blood thinners
Has anyone been diagnosed with wet macular degeneration after being given Clopidogrel or other blood thinners. Have seen some posts about it on a USA sites but nothing on UK sites. I find the second round of eye injections very painful and distressing. Dreading the next one, feel really shook up for
Has anyone been diagnosed with wet macular degeneration after being given Clopidogrel or other blood thinners. Have seen some posts about it on a USA sites but nothing on UK sites. I find the second round of eye injections very painful and distressing. Dreading the next one, feel really shook up for
Twoes
in
Macular Society
6 years ago
Macular degeneration and plane altitude
Does flying affect MD. ? I was diagnosed with wet macular degeneration immediately after a flight from Boise Idaho to Detroit. Does altitude affect this/ or cause sudden wet MD? I have dry MD in my other eye
Does flying affect MD. ? I was diagnosed with wet macular degeneration immediately after a flight from Boise Idaho to Detroit. Does altitude affect this/ or cause sudden wet MD? I have dry MD in my other eye
bondojon
in
Macular Society
6 years ago
Anybody here with Central Retinal vein occlusion CVRO
-- and associated macular edema??? I was diagnosed with this and had an injection almost immediately. At that time, my vision loss was not very bad and within 1 week I had gained my vision. BUT - I was unable to have another injection for 9 weeks and by that time my vision was VERY bad with quite severe
-- and associated macular edema??? I was diagnosed with this and had an injection almost immediately. At that time, my vision loss was not very bad and within 1 week I had gained my vision. BUT - I was unable to have another injection for 9 weeks and by that time my vision was VERY bad with quite severe
Bazza1234
in
Macular Society
6 years ago
Possible misdiagnosed Macular Degeneration at 17 years old?
4 years ago, when I was 17, my vision got drastically worse and an opthalmologist told me I’ve got macular degeneration (my mom had it). I was also told that your condition cannot improve, you can only control it after it gets diagnosed. I got some meds prescribed, which, as an irresponsible teeen,
4 years ago, when I was 17, my vision got drastically worse and an opthalmologist told me I’ve got macular degeneration (my mom had it). I was also told that your condition cannot improve, you can only control it after it gets diagnosed. I got some meds prescribed, which, as an irresponsible teeen,
Reepz101
in
Macular Society
6 years ago
How to prepare for my first Eyelea/lucentis injection and is it safe to fly 4 days later
My doc is not absolutely sure if I have wet macular but I have definite vision change in left eye ( dry amd in both eyes) and while he says its not typical, he wants to try eyelea or lucentis to get rid of fluid I have on the retina ( i had CSR ten years ago). Problem is I am scheduled to to a 22 hours
My doc is not absolutely sure if I have wet macular but I have definite vision change in left eye ( dry amd in both eyes) and while he says its not typical, he wants to try eyelea or lucentis to get rid of fluid I have on the retina ( i had CSR ten years ago). Problem is I am scheduled to to a 22 hours
NelleK
in
Macular Society
6 years ago
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