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Introducing a long time sufferer of RL. I'm new here and looking forward to some great info and support.
Hi, I just wanted to say how good it is to see a site especially for RL sufferers. I am 61 years old and I have had RL for over 15 years and my neurologist says I am in the top 2% of sufferers. What an amazing achievement! :( I have type 2 diabetes and control it with diet and exercise. I lost 31+
Hi, I just wanted to say how good it is to see a site especially for RL sufferers. I am 61 years old and I have had RL for over 15 years and my neurologist says I am in the top 2% of sufferers. What an amazing achievement! :( I have type 2 diabetes and control it with diet and exercise. I lost 31+
restlessstoz
in
Restless Legs Syndrome
6 years ago
Restless Legs Medication
I have severe RLS and tried several dopamine type medicins. Unfortunately severe augemntation after several months. I needed more and more.. Consequences: RLS symptoms started during the day more severe and also in arms.. Thereafter I have been on Neupro and Lyrica. It seems that I get augmentation
I have severe RLS and tried several dopamine type medicins. Unfortunately severe augemntation after several months. I needed more and more.. Consequences: RLS symptoms started during the day more severe and also in arms.. Thereafter I have been on Neupro and Lyrica. It seems that I get augmentation
brt53
in
Restless Legs Syndrome
6 years ago
Neurology, Oxycodone, and only two days until I finally give up Ropinirole!
Hello all I’ve not been able to post earlier as I was without Internet access for three weeks – what did we do before we had it!!! I am now down to 0.25mg Ropinirole. I’m glad I didn’t keep reducing when I was coming up to the concert (which went well enough!). But reduced that night and again six
Hello all I’ve not been able to post earlier as I was without Internet access for three weeks – what did we do before we had it!!! I am now down to 0.25mg Ropinirole. I’m glad I didn’t keep reducing when I was coming up to the concert (which went well enough!). But reduced that night and again six
RosieRow
in
Restless Legs Syndrome
6 years ago
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A gallop!
Hi ladies I’ve been suffering pain for a long time and had a vertebraplasty in October which was disappointing as still in pain..I’ve been having steady rides with the help of oxycodone!! Today my horse was frisky as it was early morning and very cold..anyway I let him have a gallop..first time for about
Hi ladies I’ve been suffering pain for a long time and had a vertebraplasty in October which was disappointing as still in pain..I’ve been having steady rides with the help of oxycodone!! Today my horse was frisky as it was early morning and very cold..anyway I let him have a gallop..first time for about
Barbteeth
in
SHARE Metastatic Breast Cancer
6 years ago
Constipation formula
On a recent post, someone posted a formula they used daily to fight constipation. My husband is having a horrible time with this since he has started taking oxycodone for pain. Please write if you have something that works for you. Thank you. Susan
On a recent post, someone posted a formula they used daily to fight constipation. My husband is having a horrible time with this since he has started taking oxycodone for pain. Please write if you have something that works for you. Thank you. Susan
Craigslife
in
Advanced Prostate Cancer
6 years ago
Stopped Mirapex, started hell!
I stopped taking Mirapex about 4 weeks ago, I had a compulsive gambling issue linked to the Mirapex. I was on Mirapex for 15 years, started out on 1 - 0.25mg at bedtime, it was like a miracle. Over the years my Neurologist, who has very little experience with RLS , would just up my dosage as needed.
I stopped taking Mirapex about 4 weeks ago, I had a compulsive gambling issue linked to the Mirapex. I was on Mirapex for 15 years, started out on 1 - 0.25mg at bedtime, it was like a miracle. Over the years my Neurologist, who has very little experience with RLS , would just up my dosage as needed.
mtm19
in
Restless Legs Syndrome
6 years ago
Hi Everyone
My name is Chris and I am the founder of a chronic pain self support group based in the North East of Scotland, called "Affa Sair". Scots for "Awfully Sore". I have been in pain since 1978 starting with Ankylosing Spondylitis then changed to CRPS in 1995 following by-pass surgery for my legs. I
My name is Chris and I am the founder of a chronic pain self support group based in the North East of Scotland, called "Affa Sair". Scots for "Awfully Sore". I have been in pain since 1978 starting with Ankylosing Spondylitis then changed to CRPS in 1995 following by-pass surgery for my legs. I
AffaSair
in
Pain Concern
6 years ago
Change in my medication help needed
Further update to my leg ulcer Lymphorrhoea I am in hospital after they couldn't cure it in the community. I am starting my 4th week and they have stopped my antibiotics today to see what happens. But last Friday someone from the pain team came to see me. She immediately gave me a panic attack because
Further update to my leg ulcer Lymphorrhoea I am in hospital after they couldn't cure it in the community. I am starting my 4th week and they have stopped my antibiotics today to see what happens. But last Friday someone from the pain team came to see me. She immediately gave me a panic attack because
Loramay
in
LSN
6 years ago
Question on pain relief from bone Mets.....
Pain getting worse. Extensive bone Mets Who has a suggestion other than oxycodone that has worked for pain relief???
Pain getting worse. Extensive bone Mets Who has a suggestion other than oxycodone that has worked for pain relief???
DSEE
in
Advanced Prostate Cancer
6 years ago
Grateful for this Forum (continued)
Other info I've learned on this forum, for which I'm grateful: I refused a prescription for a dopamine agonist and tossed out a prescription for Wellbutrin after what I've read on here about augmentation AND other research, which suggested that Wellbutrin can increase insomnia---the very last thing this
Other info I've learned on this forum, for which I'm grateful: I refused a prescription for a dopamine agonist and tossed out a prescription for Wellbutrin after what I've read on here about augmentation AND other research, which suggested that Wellbutrin can increase insomnia---the very last thing this
Restlesssinger
in
Restless Legs Syndrome
6 years ago
Breakthrough pain
I have read many posts which write about breakthrough pain. However until the MacMillan nurse who visited me at home yesterday mentioned this I hadn't really thought it applied to me. I am now on palliative care so I know the disease is growing - again who knows at what strength and rate? Over the
I have read many posts which write about breakthrough pain. However until the MacMillan nurse who visited me at home yesterday mentioned this I hadn't really thought it applied to me. I am now on palliative care so I know the disease is growing - again who knows at what strength and rate? Over the
Janet235
in
My Ovacome
6 years ago
Clonidine to counteract alertness from Opioid
Hi - After taking mirapex for 10 years and then augmenting, withdrawal etc, (many of you know the awful drill,) I was prescribed low dose oxycodone which resolves the RLS symptoms completely, but seems to cause inability to sleep or alerting. I have now been prescribed clonidine to help with the restlessness
Hi - After taking mirapex for 10 years and then augmenting, withdrawal etc, (many of you know the awful drill,) I was prescribed low dose oxycodone which resolves the RLS symptoms completely, but seems to cause inability to sleep or alerting. I have now been prescribed clonidine to help with the restlessness
Walras
in
Restless Legs Syndrome
6 years ago
Poopedout
I lost half my blood in 2004 after I found that out from bloodwork that I had done, I was told to go to the emergency room , nine doctors looked at me and admitted me for a blood transfusion and then sent me home the next day at noon not finding where the blood I lost came from ? I was still bleeding
I lost half my blood in 2004 after I found that out from bloodwork that I had done, I was told to go to the emergency room , nine doctors looked at me and admitted me for a blood transfusion and then sent me home the next day at noon not finding where the blood I lost came from ? I was still bleeding
Poopedout
in
IBS Network
6 years ago
DAs addicting?
I am currently not on anything for RLS. Still struggling with withdrawal from pramipexole. It’s been going on for months. I went to a sleep specialist who’s only plan would include a DA. I told him I cannot take DAs since I get terrible side effects, both while on the drug and after withdrawal. He
I am currently not on anything for RLS. Still struggling with withdrawal from pramipexole. It’s been going on for months. I went to a sleep specialist who’s only plan would include a DA. I told him I cannot take DAs since I get terrible side effects, both while on the drug and after withdrawal. He
Yakester
in
Restless Legs Syndrome
6 years ago
Symptoms all mixed up now
Hi everyone I feel in a mess and a muddle at the moment... After the Rotterdam Regime which finished mid May ( which did give me some remission) my appetite gradually diminished until now I am scarcely able to eat a third of my normal intake. My energy levels have plummeted so most of my time is now
Hi everyone I feel in a mess and a muddle at the moment... After the Rotterdam Regime which finished mid May ( which did give me some remission) my appetite gradually diminished until now I am scarcely able to eat a third of my normal intake. My energy levels have plummeted so most of my time is now
Janet235
in
My Ovacome
6 years ago
Anyone experienced recurrent meningitis? And did you get any answers as to why it keeps happening?
I had meningitis four years ago (suspected bacterial, but was already heavily medicated with IV antibiotics and steroids prior to my lumbar puncture) viral meningitis two years later, and now here I am again slowly recovering from a third bout of viral meningitis. I have about 2 years of peace between
I had meningitis four years ago (suspected bacterial, but was already heavily medicated with IV antibiotics and steroids prior to my lumbar puncture) viral meningitis two years later, and now here I am again slowly recovering from a third bout of viral meningitis. I have about 2 years of peace between
Munners
in
Meningitis Now
6 years ago
11 days post Operation ..... The journey starts here
This Post is dedicated to the following people The thoughtful caring Zena who has been an absolute Rock and is now a friend The lovely “Alison” who I now consider a friend who has her op in October “Rugbymad” who also has his op in October “Laura” who has flown in from Dubai and had her op yesterday
This Post is dedicated to the following people The thoughtful caring Zena who has been an absolute Rock and is now a friend The lovely “Alison” who I now consider a friend who has her op in October “Rugbymad” who also has his op in October “Laura” who has flown in from Dubai and had her op yesterday
Ticktock61
in
British Heart Foundation
6 years ago
SpaceOar
I went to the UNM Cancer Center for the SpaceOar injection on Monday. This was because my local hospital cancer doesn’t do the procedure. If it wasn’t for the 120 miles round-trip drive I would have selected the UNM Cancer Center for my radiation treatment as it was 39 zaps. Similarly, if it wasn't 750
I went to the UNM Cancer Center for the SpaceOar injection on Monday. This was because my local hospital cancer doesn’t do the procedure. If it wasn’t for the 120 miles round-trip drive I would have selected the UNM Cancer Center for my radiation treatment as it was 39 zaps. Similarly, if it wasn't 750
Hidden
in
Prostate Cancer Network
6 years ago
Failed trial of oxycodone
Hi Jelbea here, I don't think I know how this system works. In the past I was talking to a lot of you and got great help. I can't seem to talk with you all now - only Involuntary Dancer. I was telling her my trial with oxycodone has come to an end. 5 mg. daily was ok for the first month but then
Hi Jelbea here, I don't think I know how this system works. In the past I was talking to a lot of you and got great help. I can't seem to talk with you all now - only Involuntary Dancer. I was telling her my trial with oxycodone has come to an end. 5 mg. daily was ok for the first month but then
Jelbea
in
Restless Legs Syndrome
6 years ago
My Journey With RLS, Experience With Kratom
Hi! First time posting, but wanted to share my experience because I'm kind of on top of the world right now! I have battled RLS for many years, and imagine like most have felt helpless at times, felt like no one understands what it really is and won't take it seriously, and have spent countless hours
Hi! First time posting, but wanted to share my experience because I'm kind of on top of the world right now! I have battled RLS for many years, and imagine like most have felt helpless at times, felt like no one understands what it really is and won't take it seriously, and have spent countless hours
BHogan
in
Restless Legs Syndrome
6 years ago
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