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Rosai-Dorfman disease
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After Pluvicto #6 results
Finished my 6th and final Pluvicto and am now getting lab results. I see that somehow I neglected to put results after #5 -- may have been distracted by doctors freaking out that my kidney function was going down and my calcium shot up. My nuclear medicine doc made a judgement call to give me a full
Finished my 6th and final Pluvicto and am now getting lab results. I see that somehow I neglected to put results after #5 -- may have been distracted by doctors freaking out that my kidney function was going down and my calcium shot up. My nuclear medicine doc made a judgement call to give me a full
Miccoman
in
Advanced Prostate Cancer
5 months ago
Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
Michel0220
in
Cure Parkinson's
5 months ago
Cirosis
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
Curryblue
in
British Liver Trust
5 months ago
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How Long To Discontinue 5-ARIs and/or Select Supplements to "Unmask" PSA?
Disregarding the discussion as whether to temporarily discontinue or not discontinue in fht efirst place... Purportedly some substances may "mask" PSA. I believe the general rule of thumb is on 5-ARIs like Avodart (Dutasteride) you are supposed to double the PSA reading to get the "real" PSA? In addition
Disregarding the discussion as whether to temporarily discontinue or not discontinue in fht efirst place... Purportedly some substances may "mask" PSA. I believe the general rule of thumb is on 5-ARIs like Avodart (Dutasteride) you are supposed to double the PSA reading to get the "real" PSA? In addition
jazj
in
Advanced Prostate Cancer
5 months ago
Chronic Liver Disease Post Transplant
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Dawnejoy
in
British Liver Trust
5 months ago
some suggestions - PCa websites?
Hey all: As I’ve mentioned before, I’m doing a comic about this experience. I want to have a short section at the end with websites that are good for learning about prostate cancer. I have room for a few more, and am looking for suggestions. Not an exhaustive list, but hoping for a useful list: Thanks
Hey all: As I’ve mentioned before, I’m doing a comic about this experience. I want to have a short section at the end with websites that are good for learning about prostate cancer. I have room for a few more, and am looking for suggestions. Not an exhaustive list, but hoping for a useful list: Thanks
Jpburns
in
Advanced Prostate Cancer
5 months ago
nose bleed
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
Daytym
in
British Liver Trust
5 months ago
1st transplant done in trial of Parkinson’s cell therapy ANPD001
This experimental therapy for Parkinson’s uses a type of stem cell called an induced pluripotent stem cell, or iPSC, which is able to generate nearly any type of cell in the body — including dopamine-producing neurons. Its manufacturing is a three-step process. https://parkinsonsnewstoday.com/news
This experimental therapy for Parkinson’s uses a type of stem cell called an induced pluripotent stem cell, or iPSC, which is able to generate nearly any type of cell in the body — including dopamine-producing neurons. Its manufacturing is a three-step process. https://parkinsonsnewstoday.com/news
Farooqji
in
Cure Parkinson's
5 months ago
When were you going to mention I had early CKD? Oh I see, stage II isn’t anything to worry my little head about 😠
As my profile name implies, I have spent 20+ years in the healthcare industry. It took longer than I’d like to admit to awakening to how broken, corrupted and frankly dangerous this “Healthcare Industrial Complex” is. I recently had my annual exam with a PCP that I have always had great respect for
As my profile name implies, I have spent 20+ years in the healthcare industry. It took longer than I’d like to admit to awakening to how broken, corrupted and frankly dangerous this “Healthcare Industrial Complex” is. I recently had my annual exam with a PCP that I have always had great respect for
DisillusionedRN
in
Early CKD Support
5 months ago
fell kt/v again going to do EXTRANEAL bags question about that
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Beachgirl32
in
Kidney Dialysis
5 months ago
Are bone and CT scans required quarterly if PSA and testosterone are basically zero and no symptoms?
I have stage IV prostate cancer with a spot on my lung being the only known spread of my cancer. After my chemo regimen, my CT and bone scans have been clean for a year now. And my blood work is perfect at the moment. I am on Zytiga and getting a Lupron shot quarterly. My doc still wants
I have stage IV prostate cancer with a spot on my lung being the only known spread of my cancer. After my chemo regimen, my CT and bone scans have been clean for a year now. And my blood work is perfect at the moment. I am on Zytiga and getting a Lupron shot quarterly. My doc still wants
Wildfun44
in
Advanced Prostate Cancer
5 months ago
Blood test results
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hi, three weeks ago I had a Fibroscan in a mobile community testing van, the result was a reading of 15.1. The nurse suggested cirrhosis of the liver and said a referral for a CT scan was appropriate. I hadn't heard anything for two weeks, as you can imagine, I was beside myself with worry, I phoned
Hidden
in
British Liver Trust
5 months ago
Muscle loss
I'm sure this is a beaten horse topic, but I am unable to perform my previous weight training insofar as weight and stamina. I'm on eligard every 3 months and nightly erleada pill. Can I incorporate creatine monohydrate without effecting my PSA or exacerbating my BPH? I'm Stage 4, Gleason 9, mets to
I'm sure this is a beaten horse topic, but I am unable to perform my previous weight training insofar as weight and stamina. I'm on eligard every 3 months and nightly erleada pill. Can I incorporate creatine monohydrate without effecting my PSA or exacerbating my BPH? I'm Stage 4, Gleason 9, mets to
Mrtewills
in
Advanced Prostate Cancer
5 months ago
Hello Good people
I did MR for my kidneys: after 1 year of my operation 16mm which the Dr. removed from my right kidney. Declarative MRI of kidneys/urinary tract without and with contrast. 2024-03-26 at 12:38 Normal Large kidneys. In the lower part of the right kidney Ventrolateral there is parenchymal indentation
I did MR for my kidneys: after 1 year of my operation 16mm which the Dr. removed from my right kidney. Declarative MRI of kidneys/urinary tract without and with contrast. 2024-03-26 at 12:38 Normal Large kidneys. In the lower part of the right kidney Ventrolateral there is parenchymal indentation
NOCanceros
in
Advanced Prostate Cancer
5 months ago
liver
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
rogertb
in
British Liver Trust
5 months ago
XTANDI(Enzalutamide) Granted European Commission Approval for Use in Additional Recurrent Early Prostate Cancer Treatment Setting
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
Maxone73
in
Advanced Prostate Cancer
5 months ago
Any proof that removing a tumor off prostate bed by radiation or surgery is better than just systemic therapy ?
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Headaches
Hi everyone I was diagnosed with Graves in 2021 and had treatment which put the Graves in remission. I am starting to feel unwell again and getting headaches and just feeling lousy but wondered if the headaches is a symptom of Graves. I do suffer with migraines. I am having my bloods done tomorrow
Hi everyone I was diagnosed with Graves in 2021 and had treatment which put the Graves in remission. I am starting to feel unwell again and getting headaches and just feeling lousy but wondered if the headaches is a symptom of Graves. I do suffer with migraines. I am having my bloods done tomorrow
Titch18
in
Thyroid UK
5 months ago
Hope for confusion/brain fog
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
Umecrine Cognition is developing a completely new type of drug for neurological disorders in the brain that can occur as a result of a number of underlying diseases and lead to severely reduced cognition and alertness. The results from an internationally recognized clinical phase 2 study indicate that
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Tuesday 'tips'
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
[i]What are some ways you cope with the fatigue?[/i] [i]How has the fatigue affected your life overall?[/i] [i]What have you found helpful on those days?[/i] [i]finally.....[/i][i]
..has you doctor ever asked you "how's the fatigue?"
[/i][i] I know for me, he has never ever asked me in the 20
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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