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CHA PAR are back..
I have been in remission for 15 months & now it's back.. My Husband passed away in Jan, within 2 weeks I started feeling like I had the flu & progressively felt worse but no real symptoms of anything going on. Finally I got so weak it took all I had to get from room to room, then My scalp started to
I have been in remission for 15 months & now it's back.. My Husband passed away in Jan, within 2 weeks I started feeling like I had the flu & progressively felt worse but no real symptoms of anything going on. Finally I got so weak it took all I had to get from room to room, then My scalp started to
beringer
in
PMRGCAuk
7 years ago
actemra
The FDA also granted priority review designation for Actemra/
RoActemra
for the treatment of GCA. The designation is based on the positive outcome of the Phase III GiACTA study evaluating Actemra/
RoActemra
in people with GCA.
The FDA also granted priority review designation for Actemra/
RoActemra
for the treatment of GCA. The designation is based on the positive outcome of the Phase III GiACTA study evaluating Actemra/
RoActemra
in people with GCA.
mamacline
in
PMRGCAuk
7 years ago
Actemra Effective at Maintaining Steroid-Free Remission In GCA
https://globalgenes.org/raredaily/genentech-phase-iii-study-shows-actemra-effective-at-maintaining-steroid-free-remission-in-patients-with-giant-cell-arteritis/
https://globalgenes.org/raredaily/genentech-phase-iii-study-shows-actemra-effective-at-maintaining-steroid-free-remission-in-patients-with-giant-cell-arteritis/
Marie1479
in
PMRGCAuk
7 years ago
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Tocilizumab
Has anyone experienced infusions of this drug ( Actemra ) ? I don't believe I've seen it mentioned here. Have a wonderful Easter weekend everyone! Chris
Has anyone experienced infusions of this drug ( Actemra ) ? I don't believe I've seen it mentioned here. Have a wonderful Easter weekend everyone! Chris
8080
in
NRAS
7 years ago
Actemra issues
Anyone else having issues with the Actemra (Tocilizumab) wearing off before the next infusion? I am finding that my infusions hold for around 3 weeks. Then the pain, stiffness and fatigue set in hard! My bloodwork shows absolutely nothing for inflammation which i am thankful for as my c reactive protein
Anyone else having issues with the Actemra (Tocilizumab) wearing off before the next infusion? I am finding that my infusions hold for around 3 weeks. Then the pain, stiffness and fatigue set in hard! My bloodwork shows absolutely nothing for inflammation which i am thankful for as my c reactive protein
dwsurquhart
in
NRAS
7 years ago
GCA FLARE WITH PLUS NEW AUTOIMMUNE DISORDER
As i have shared in recent posts, my GCA flared up several months ago. I was put back on Prednisone 40mg, and have restarted the Actemra monthly infusions. I am now on Prednisone 30mg and tapering. I have also been recently diagnosed with ocular myasthenia travis. This autoimmune disorder is causing
As i have shared in recent posts, my GCA flared up several months ago. I was put back on Prednisone 40mg, and have restarted the Actemra monthly infusions. I am now on Prednisone 30mg and tapering. I have also been recently diagnosed with ocular myasthenia travis. This autoimmune disorder is causing
Joyful13
in
PMRGCAuk
7 years ago
GCA FLAREUP
I recently started a flare up with GCA. I have been off the Actemra of which I had monthly IV infusions for 10 months. I stopped the Actemra in October. During those 10 months, I slowly reduced the Prednisone to 4 mg. Several weeks ago, I began having severe frontal and temporal headaches, along with
I recently started a flare up with GCA. I have been off the Actemra of which I had monthly IV infusions for 10 months. I stopped the Actemra in October. During those 10 months, I slowly reduced the Prednisone to 4 mg. Several weeks ago, I began having severe frontal and temporal headaches, along with
Joyful13
in
PMRGCAuk
7 years ago
Actemra
Haven't posted in a while, been sick, but try to read post almost every day. Ask this question months ago if anyone is on at Actemra now wondering how they are doing. See rheumatologist tomorrow and I Dr are all pushing it. Just can't seem to get off of 40 mg. Seem to spike when I get down to 33 or
Haven't posted in a while, been sick, but try to read post almost every day. Ask this question months ago if anyone is on at Actemra now wondering how they are doing. See rheumatologist tomorrow and I Dr are all pushing it. Just can't seem to get off of 40 mg. Seem to spike when I get down to 33 or
casse
in
PMRGCAuk
7 years ago
Will GCA return?
I had GCA PMR for 3 years. Was on a monthly infusion of Actemra, I've been drug free for 8 months now & doing fine. My Husband of 59 years passed away 1 week ago & I've been a total depressed crying lump since. Do You think this could cause everything to return? I did get a 5.0 aorta ascending aneurysm
I had GCA PMR for 3 years. Was on a monthly infusion of Actemra, I've been drug free for 8 months now & doing fine. My Husband of 59 years passed away 1 week ago & I've been a total depressed crying lump since. Do You think this could cause everything to return? I did get a 5.0 aorta ascending aneurysm
beringer
in
PMRGCAuk
7 years ago
Increased shoulder, buttocks and thigh pain- PMR relapse?
I am having increasing pain in my right shoulder, buttocks, thighs. I was taken off Actemra for the GCA in November due to severe GI problems, although we are not sure if they are related. What I have been thinking is Restless Leg Syndrome, could the severe pain with the restless legs be PMR relapse.
I am having increasing pain in my right shoulder, buttocks, thighs. I was taken off Actemra for the GCA in November due to severe GI problems, although we are not sure if they are related. What I have been thinking is Restless Leg Syndrome, could the severe pain with the restless legs be PMR relapse.
Joyful13
in
PMRGCAuk
8 years ago
Roactemra
Hi I am taking actemra injections number 10 tomorrow.just wondering if any else is taking these and how are they getting on.started on enbrel in february had side effects then onto simponi now actemra.
Hi I am taking actemra injections number 10 tomorrow.just wondering if any else is taking these and how are they getting on.started on enbrel in february had side effects then onto simponi now actemra.
Trace1974
in
NRAS
8 years ago
Frightening news - White CBC of 22,000 and liver panels elevated - RA, PMR and GCA with an ALL leukemia history
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
Nitrobunny
in
NRAS
8 years ago
Worst Pleurisy of my lifetime - Does anyone have any wisdom for getting through this?
I woke with the worst pleurisy of my lifetime yesterday morning. Unlike prior bouts with it, this is strictly my RA acting up. No fever, pneumonia or obvious infection. Yesterday was very uncomfortable but by evening I was having some moderate relief from increased prednisone. This morning the pain
I woke with the worst pleurisy of my lifetime yesterday morning. Unlike prior bouts with it, this is strictly my RA acting up. No fever, pneumonia or obvious infection. Yesterday was very uncomfortable but by evening I was having some moderate relief from increased prednisone. This morning the pain
Nitrobunny
in
NRAS
8 years ago
Rituxan
Wow, this process is so exhausting. I have been trying to write a letter , describing my situation, for weeks. I keep getting off track. I start on Rituxan next week. It took time to get funding approved. It costs 12,000 for initial doses. Ridiculous, if you ask me. But now that it is approved, it took
Wow, this process is so exhausting. I have been trying to write a letter , describing my situation, for weeks. I keep getting off track. I start on Rituxan next week. It took time to get funding approved. It costs 12,000 for initial doses. Ridiculous, if you ask me. But now that it is approved, it took
Damaged
in
Arthritis Action
8 years ago
3rd infusion of Actemra next week (first at full dosage) hoping to hear from anyone with success when increasing dosage. Thank you!
Pain, pain, pain, pain!!!! Did I mention I'm in pain????? Ugh!!!!!!! Flaring badly from the inconsistent weather, and just short of a week out from my Actemra infusion. This will be my third infusion and first at full strength. My hands, feet, fingers and toes are swollen. My joints feel like someone
Pain, pain, pain, pain!!!! Did I mention I'm in pain????? Ugh!!!!!!! Flaring badly from the inconsistent weather, and just short of a week out from my Actemra infusion. This will be my third infusion and first at full strength. My hands, feet, fingers and toes are swollen. My joints feel like someone
Nitrobunny
in
NRAS
8 years ago
A baffling virus
Wow! What an unbelievable month of pain. I have PMR/GCA. I am in Actemra monthly infusions for the GCA, and have slowly reduced the prednisone to 4mg. However, I have developed sciatica this past month. My symptoms are severe pain in the coccyx area, lower back , right hip, and right gluteal muscles
Wow! What an unbelievable month of pain. I have PMR/GCA. I am in Actemra monthly infusions for the GCA, and have slowly reduced the prednisone to 4mg. However, I have developed sciatica this past month. My symptoms are severe pain in the coccyx area, lower back , right hip, and right gluteal muscles
Joyful13
in
PMRGCAuk
8 years ago
Actemra injection
Hi I have taken my 8th injection of actemra on thursday .Since last week seem to be having an allergic reaction to something?anyone ever have an allergic reaction to actemra?
Hi I have taken my 8th injection of actemra on thursday .Since last week seem to be having an allergic reaction to something?anyone ever have an allergic reaction to actemra?
Trace1974
in
NRAS
8 years ago
Pain in coccyx and lower back
Hello friends! I have PMR and GCA. For the past several weeks, I have been having severe pain in the coccyx and lower back. I have had X-rays which showed some osteoarthritis in the sacroiliac joints and symphysis pubis, but nothing notable in the coccyx area. This pain awakens me during the night, and
Hello friends! I have PMR and GCA. For the past several weeks, I have been having severe pain in the coccyx and lower back. I have had X-rays which showed some osteoarthritis in the sacroiliac joints and symphysis pubis, but nothing notable in the coccyx area. This pain awakens me during the night, and
Joyful13
in
PMRGCAuk
8 years ago
Salvation from Pax Labs..
I , as many of you know, have been drug free since June 27th 2015. I saw an Internists on Tuesday. He will not approve Actemra until I have another scope. I am at a loss. How long does this continue.? It could be months before a scope is scheduled. What am I to do in the interim. Then when you consider
I , as many of you know, have been drug free since June 27th 2015. I saw an Internists on Tuesday. He will not approve Actemra until I have another scope. I am at a loss. How long does this continue.? It could be months before a scope is scheduled. What am I to do in the interim. Then when you consider
Damaged
in
Arthritis Action
8 years ago
Simponi
Hi folks, well it's been 2 years since the
RoActemra
MTX taper trial started but now the inflammation markers are rising again necessitating 6 monthly preds. So I've had advice that Rituximab is the way to go.
Hi folks, well it's been 2 years since the
RoActemra
MTX taper trial started but now the inflammation markers are rising again necessitating 6 monthly preds. So I've had advice that Rituximab is the way to go.
harryhunt43
in
NRAS
8 years ago
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