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RoActemra
Does anyone know when the Patent for
RoActemra
(Tocilizumab) expires. The NHS will currently only pay for one year of injections. Current private costs is approx £250 per syringe. Once expired the price will go down
Does anyone know when the Patent for
RoActemra
(Tocilizumab) expires. The NHS will currently only pay for one year of injections. Current private costs is approx £250 per syringe. Once expired the price will go down
Niblick
in
PMRGCAuk
3 months ago
Calendar for Biologics
I started using
RoActemra
(Tocilizumab on Tuesday and the nurse said there was a calendar you could get so you could record the date and which side (my tummy) you did the injection. What do other people do who are on weekly injections? Thank you.
I started using
RoActemra
(Tocilizumab on Tuesday and the nurse said there was a calendar you could get so you could record the date and which side (my tummy) you did the injection. What do other people do who are on weekly injections? Thank you.
barbieg
in
NRAS
8 months ago
Cost of tocilizumab (2)
As suggested by Lemonzest I’ve exchanged a few emails with Roche UK, and here’s their response: “I have discussed your query with our Medical Affairs team and they have confirmed that unfortunately funding extensions are no longer available in the UK for
RoActemra
.
As suggested by Lemonzest I’ve exchanged a few emails with Roche UK, and here’s their response: “I have discussed your query with our Medical Affairs team and they have confirmed that unfortunately funding extensions are no longer available in the UK for
RoActemra
.
Duncoding
in
PMRGCAuk
4 months ago
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Any advice on tapering prednisolone with Methotrexate and RoActemra?
Started Methotrexate 5 weeks ago and 3rd
RoActemra
injection tomorrow. Was told to reduce steroids from a high of 55mg at 5mg/week back in May. Am now on 20mg, reducing to 15mg on this programme at the weekend.
Started Methotrexate 5 weeks ago and 3rd
RoActemra
injection tomorrow. Was told to reduce steroids from a high of 55mg at 5mg/week back in May. Am now on 20mg, reducing to 15mg on this programme at the weekend.
tweety_pie
in
PMRGCAuk
10 months ago
Tocilizumab (RoActemra) and low neutrophils?
I've been injecting TOC for just over a year, but in the last three months my neutrophil level has been falling and is now below normal at 1.6 x10^9. I understand that low neutrophils is a known side effect of TOC. My RA nurse asked if I have an infection but I'm not aware of one currently although
I've been injecting TOC for just over a year, but in the last three months my neutrophil level has been falling and is now below normal at 1.6 x10^9. I understand that low neutrophils is a known side effect of TOC. My RA nurse asked if I have an infection but I'm not aware of one currently although
Lolabridge
in
NRAS
1 month ago
testing for IL6
Is it possible to test for the IL 6 factor before starting Actemra to see if Actemra will work for you?
Is it possible to test for the IL 6 factor before starting Actemra to see if Actemra will work for you?
Mstiles
in
PMRGCAuk
2 days ago
Jaw locking while tapering for GCA
I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the right side of my jaw temporarily locked while brushing my teeth. If I am honest, my scalp is becoming a bit tender again, and my tinnitus has increased a notch. I was on the high doses of Prednisone for six weeks, and began
I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the right side of my jaw temporarily locked while brushing my teeth. If I am honest, my scalp is becoming a bit tender again, and my tinnitus has increased a notch. I was on the high doses of Prednisone for six weeks, and began
Bummed24
in
PMRGCAuk
3 days ago
Confused
Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginning of December 2023 I had a loss of vision in my left eye, as well as a terrible headache. I went to the hospital and was diagnosed with GCA. I was treated with high doses of corticosteroids. After fourteen days I was discharged
Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginning of December 2023 I had a loss of vision in my left eye, as well as a terrible headache. I went to the hospital and was diagnosed with GCA. I was treated with high doses of corticosteroids. After fourteen days I was discharged
Azulmarino
in
PMRGCAuk
6 days ago
Tyenne /Tocilizumab
Hi just to say I be just received a letter to say I’m changing from actemra to this brand. Hopefully a lower price will make it an option for more people.
Hi just to say I be just received a letter to say I’m changing from actemra to this brand. Hopefully a lower price will make it an option for more people.
Devoid
in
PMRGCAuk
14 days ago
Can't squat or raise arms without pain?
I have tapered down to 1 mg Prednisone over three years (from 15mg). I have the same weird symptoms that I've always had. If I squat, my legs feel an extreme fatigue/deadness. I can't raise my arms for more than 15-20 seconds without them feeling an extreme fatigue/pain/deadness. Does anyone else have
I have tapered down to 1 mg Prednisone over three years (from 15mg). I have the same weird symptoms that I've always had. If I squat, my legs feel an extreme fatigue/deadness. I can't raise my arms for more than 15-20 seconds without them feeling an extreme fatigue/pain/deadness. Does anyone else have
Greytree
in
PMRGCAuk
15 days ago
Tapering Regime while on Kevzara (or other biologic)
I'm in the U.S. getting Kevzara (third injection is this Tuesday i.e. week six). I am grateful I was allowed to try Kevzara after 9 years on prednisone and never being able to get below 5 mg without a flare amongst other reasons. I have tried to look up the tapering regime for attempting a taper with
I'm in the U.S. getting Kevzara (third injection is this Tuesday i.e. week six). I am grateful I was allowed to try Kevzara after 9 years on prednisone and never being able to get below 5 mg without a flare amongst other reasons. I have tried to look up the tapering regime for attempting a taper with
artfingers
in
PMRGCAuk
15 days ago
Tapering Pred from 2mg....to 1.5 or 1mg~?
To complete the picture, I do take an injection of Actemra weekly. My GCA started in 2019 and getting this low is a first. My dosage was increased last fall due to other health issues and being off my Actemra. Since September 2023, I've gone down from 60mg per day with no issue. I've been on 2
To complete the picture, I do take an injection of Actemra weekly. My GCA started in 2019 and getting this low is a first. My dosage was increased last fall due to other health issues and being off my Actemra. Since September 2023, I've gone down from 60mg per day with no issue. I've been on 2
Grammy80
in
PMRGCAuk
1 month ago
Another Pred journey
I have been 5 years on Pred and 3 years on Actemra A bit of up’s and downs but did very well with no side effects ( except bone loss) Lately got to 3 and poof back to square one again after major flare. Up to 20 mg with a probable 2 year tapering schedule. Probably same thing will happen again below
I have been 5 years on Pred and 3 years on Actemra A bit of up’s and downs but did very well with no side effects ( except bone loss) Lately got to 3 and poof back to square one again after major flare. Up to 20 mg with a probable 2 year tapering schedule. Probably same thing will happen again below
Sunny1947
in
PMRGCAuk
1 month ago
Methotrexate added to Pred now
Hello lovely support group, 20 months into my PMR GCA journey now. I saw my rheumy yesterday and she wants me to get lower on the Pred. She suggested Methotrexate before, but I pushed back. I was on Actemra before but it was causing worse headaches so I had to stop it. This past week, I was on 10.5mg
Hello lovely support group, 20 months into my PMR GCA journey now. I saw my rheumy yesterday and she wants me to get lower on the Pred. She suggested Methotrexate before, but I pushed back. I was on Actemra before but it was causing worse headaches so I had to stop it. This past week, I was on 10.5mg
potterylady
in
PMRGCAuk
1 month ago
Pain in Left Eye
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Lenore58
in
PMRGCAuk
1 month ago
flare
What is a PMR and GCA flare up symptoms? I was on prednisone X4 month, on Actemra shots weeklynow,my shoulder is painful, my ear feel stuffy, have knee pain, my Rheumatologist sees me every 3 months, when I told her about my knee pain she referred me to an orthopedic, when I told her about my ear she
What is a PMR and GCA flare up symptoms? I was on prednisone X4 month, on Actemra shots weeklynow,my shoulder is painful, my ear feel stuffy, have knee pain, my Rheumatologist sees me every 3 months, when I told her about my knee pain she referred me to an orthopedic, when I told her about my ear she
Cubanurse49
in
PMRGCAuk
1 month ago
GCA Tapering
Thanks to my kind, thoughtful, and new found wise consultants who understand, [u]all of you[/u], I developed some patience, and am finding that time and rest from your wise counsel have lessened my GCA symptoms by about 80%. Learning that Actemra needs more time to lessen the inflammation was helpful
Thanks to my kind, thoughtful, and new found wise consultants who understand, [u]all of you[/u], I developed some patience, and am finding that time and rest from your wise counsel have lessened my GCA symptoms by about 80%. Learning that Actemra needs more time to lessen the inflammation was helpful
Bummed24
in
PMRGCAuk
1 month ago
Remission
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
Preacherball
in
PMRGCAuk
1 month ago
Any advice to get back on track please?
Hi kind and wise experts, I have completely stuffed up my GCA dosing regime and am an aching, weepy, exhausted (and clearly self indulgent!) mess😱😂 I wrote several months back asking for advice on coming off Actemra, after 2 yrs, and upping prednisone to cover it. I had been on 1.5mg pred daily
Hi kind and wise experts, I have completely stuffed up my GCA dosing regime and am an aching, weepy, exhausted (and clearly self indulgent!) mess😱😂 I wrote several months back asking for advice on coming off Actemra, after 2 yrs, and upping prednisone to cover it. I had been on 1.5mg pred daily
Happyexplorer
in
PMRGCAuk
1 month ago
Melanoma Surgery while taking Actemra and Prednisone
Hello, I have GCA/PMR and currently on 2.5mg prednisone and Actemra every other week. I just found out I have to have a melanoma surgery, and a surgery called “lymph node biopsy” where they remove some lymph nodes to determine if cancer has spread. My question is: should I increase/decrease prednisone
Hello, I have GCA/PMR and currently on 2.5mg prednisone and Actemra every other week. I just found out I have to have a melanoma surgery, and a surgery called “lymph node biopsy” where they remove some lymph nodes to determine if cancer has spread. My question is: should I increase/decrease prednisone
Pamk1949
in
PMRGCAuk
1 month ago
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