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Zarzio shots causing severe horrendous pain- any proven help for muscle and bone issues?
On and off neutropenic for two months now and now taking zarzio shots every other day but causing major debilitating pain in lower back to hips and shooting down both sides of legs making me bedridden... I’m 49 yrs old and don’t wanna keep taking pain meds . The FCR didn’t work on me and nodes are
On and off neutropenic for two months now and now taking zarzio shots every other day but causing major debilitating pain in lower back to hips and shooting down both sides of legs making me bedridden... I’m 49 yrs old and don’t wanna keep taking pain meds . The FCR didn’t work on me and nodes are
Luckyliss
in
CLL Support
6 years ago
What is the best first-line treatment combination for CLL?
I’m taking the liberty of cross posting this post I wrote from the UK CLL Facebook group. I’m trying to get my own head round what are the best first line treatments for CLL. Not least because I know that I’m obviously quite likely to need treatment at some point. I believe in the power of many
I’m taking the liberty of cross posting this post I wrote from the UK CLL Facebook group. I’m trying to get my own head round what are the best first line treatments for CLL. Not least because I know that I’m obviously quite likely to need treatment at some point. I believe in the power of many
AdrianUK
in
CLL Support
6 years ago
First rituximab infusion
not been good at all 😢 feels like I’m ill every day 😢 actually fed up listening to myself moaning 😜 god knows how my hubby feels , have had kenalog injections into finger joints 8 in total on 1 day pain was horrific later at night , but now 2 weeks on it’s done nothing 😢 had my first infusion of
rituximab
not been good at all 😢 feels like I’m ill every day 😢 actually fed up listening to myself moaning 😜 god knows how my hubby feels , have had kenalog injections into finger joints 8 in total on 1 day pain was horrific later at night , but now 2 weeks on it’s done nothing 😢 had my first infusion of
rituximab
Harrisgran1
in
LUPUS UK
6 years ago
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So exhausted but don’t want to go to bed!
- but still hopeful
Rituximab
will kick in in the next few weeks - such a long journey waiting for a lovely destination! x
- but still hopeful
Rituximab
will kick in in the next few weeks - such a long journey waiting for a lovely destination! x
TTCC
in
NRAS
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Rituximab
Just wondering peoples experiences- not of the actual infusion - (I’ve already had mine 1and 3 weeks ago) but when it actually started working. I know it is a 2 week to 3 month wait to see if it works average 8-10 weeks so it’s not about when it started working but the HOW it started working for people
Just wondering peoples experiences- not of the actual infusion - (I’ve already had mine 1and 3 weeks ago) but when it actually started working. I know it is a 2 week to 3 month wait to see if it works average 8-10 weeks so it’s not about when it started working but the HOW it started working for people
TTCC
in
NRAS
6 years ago
Hi! Just joining.
My neurologist wants to put me on
Rituximab
. Anyone have experience with it? Side effects?
My neurologist wants to put me on
Rituximab
. Anyone have experience with it? Side effects?
pihokken
in
My MSAA Community
6 years ago
Bendamustine & Rituximab
Has anyone else had similar reactions to
Rituximab
and do the symptoms reduce as the treatment progresses?
Has anyone else had similar reactions to
Rituximab
and do the symptoms reduce as the treatment progresses?
elizdonohoe
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Feel Terrible
I had my
Rituximab
last month and since I have slowly been declining, I am so drained, body aches, no voice, chest feeling heavy, eyes itching, sore throat, sores on my nose and mouth and the night sweats are just awful. Is this a flare? I really don't know what to do with myself.
I had my
Rituximab
last month and since I have slowly been declining, I am so drained, body aches, no voice, chest feeling heavy, eyes itching, sore throat, sores on my nose and mouth and the night sweats are just awful. Is this a flare? I really don't know what to do with myself.
LSurtees
in
LUPUS UK
6 years ago
Critical condition of ITP pateint.
Should i go to Rituxin (
Rituximab
). Plz help
Should i go to Rituxin (
Rituximab
). Plz help
salman2030
in
ITP Support Association
6 years ago
Finger fusion and tendon repair etc
I'm on biologics,
Rituximab
, and as soon as I get the nod from my consultant after the physical surgery healing (maybe 6 weeks), then I will be having my second lot of infusions.
I'm on biologics,
Rituximab
, and as soon as I get the nod from my consultant after the physical surgery healing (maybe 6 weeks), then I will be having my second lot of infusions.
Dragonfly4
in
NRAS
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Bruising
Hi I have completed my first week on the Flair Trial with Ibrutinib &
Rituximab
. First thing that I have noticed which is different is the large bruising where my cannula was put in & where bloods were taken.
Hi I have completed my first week on the Flair Trial with Ibrutinib &
Rituximab
. First thing that I have noticed which is different is the large bruising where my cannula was put in & where bloods were taken.
Sanphil
in
CLL Support
6 years ago
Introduction.
In 2004 following the most incredible pain in a wrist I was diagnosed with RA which hit most joints in very quick succession, the stiffness was incredible to the point of almost losing the ability to walk by the third year, I was then approved biologics and more recently
Rituximab
infusions.
In 2004 following the most incredible pain in a wrist I was diagnosed with RA which hit most joints in very quick succession, the stiffness was incredible to the point of almost losing the ability to walk by the third year, I was then approved biologics and more recently
Rituximab
infusions.
juneann
in
NRAS
6 years ago
Night sweats are back
Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
cwturley
in
CLL Support
6 years ago
Chemo
Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
Flabal
in
CLL Support
6 years ago
What about the AQP4 antibody? Just another twist in this sordid tale to diagnosis...
NMO is treated more aggressively and with many of the same drugs (cellcept/mm, azathioprine,
rituximab
). But, if you have an acute attack it requires 5 days of MP I.V. or plasmapheresis. I'm just feeling a bit out of sorts.
NMO is treated more aggressively and with many of the same drugs (cellcept/mm, azathioprine,
rituximab
). But, if you have an acute attack it requires 5 days of MP I.V. or plasmapheresis. I'm just feeling a bit out of sorts.
DRunnerchick
in
LUPUS UK
6 years ago
Relapse or something else?
Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years
rituximab
maintenance I have lived well until now. I am now experiencing regular night sweats and fairly rapid weight loss. My consultant is arranging a ct scan.
Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years
rituximab
maintenance I have lived well until now. I am now experiencing regular night sweats and fairly rapid weight loss. My consultant is arranging a ct scan.
pmurdo
in
Non Hodgkin's Lymphoma Friends
6 years ago
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