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Dental abscess under tooth
On 7.5 pred and
rituximab
infusions every six months. I have got an abscess under my 2nd from back tooth which will not heal up! Had route canal and it's been cleaned out 4 times!
On 7.5 pred and
rituximab
infusions every six months. I have got an abscess under my 2nd from back tooth which will not heal up! Had route canal and it's been cleaned out 4 times!
joannebond360
in
LUPUS UK
8 years ago
No symptoms! frustrating!!
If that fails will try
Rituximab
again. And if that fails then its spleenectomy for me. I'm preparing for it now by taking my injections and immunisations I need before, just so we don't hold up any operation.
If that fails will try
Rituximab
again. And if that fails then its spleenectomy for me. I'm preparing for it now by taking my injections and immunisations I need before, just so we don't hold up any operation.
Ironspur14
in
ITP Support Association
8 years ago
Question about Nausea, and non-wafarin treatment options for APS
Rituximab
), complement inhibition (via "Complement 5a", but still in clinical trials), peptide thereapy (still in trials), and Vitamin D is recommended for all APS patients, as Vitamin D has important immunomodulatory functions.
Rituximab
), complement inhibition (via "Complement 5a", but still in clinical trials), peptide thereapy (still in trials), and Vitamin D is recommended for all APS patients, as Vitamin D has important immunomodulatory functions.
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
8 years ago
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Daughter of Newly Diagnosed CLL Patient - 3 Weeks Until Chemotherapy - Any information greatly appreciated!
Brand new to this forum, not a patient myself. My father was diagnosed this month and is already scheduled for treatment to begin in 4 weeks. Seems that many of you had lengthy W&W periods, but 5 years passed during which my father went without even visiting his GP. This was discovered this month, with
Brand new to this forum, not a patient myself. My father was diagnosed this month and is already scheduled for treatment to begin in 4 weeks. Seems that many of you had lengthy W&W periods, but 5 years passed during which my father went without even visiting his GP. This was discovered this month, with
LaurenM427
in
CLL Support
8 years ago
Atrial fibrillation on Imbruvica
Just had surgery for a hernia, stopped Imbruvica for a week before, holding off for another week before re starting. Really feel that advice to do so was good, healing is impaired with this medication. During routine pre opereative evaluation i was found to have premature Atrial contractions(PAC). and
Just had surgery for a hernia, stopped Imbruvica for a week before, holding off for another week before re starting. Really feel that advice to do so was good, healing is impaired with this medication. During routine pre opereative evaluation i was found to have premature Atrial contractions(PAC). and
Lenny123
in
CLL Support
8 years ago
Rituximab dose and frequency
I have been on
rituximab
for nearly two years now. It works well but at the six month mark it definitely wears off. Was with Rheumy last week and he is giving me one dose this round as he is worried about side effects of the two doses. Has anyone else had just one and has it worked?
I have been on
rituximab
for nearly two years now. It works well but at the six month mark it definitely wears off. Was with Rheumy last week and he is giving me one dose this round as he is worried about side effects of the two doses. Has anyone else had just one and has it worked?
Stynk
in
NRAS
8 years ago
Mantle Cell Lymphoma
Anyone familiar with Bendamustine/
Rituximab
followed by Autologous SCT? Thank you, Reem
Anyone familiar with Bendamustine/
Rituximab
followed by Autologous SCT? Thank you, Reem
Reem-ayoub
in
Lymphoma Canada
8 years ago
IBRUTINIB - for 21 months, now stopped
It's been a year or so since I last posted about my Ibrutinib progress. Here is my latest situation. After FCR failure, I was put on Ibrutinib. This did its work and I was on the miracle drug for 21 months. Then suddenly my kidney function deteriorated dramatically and my blood calcium level became
It's been a year or so since I last posted about my Ibrutinib progress. Here is my latest situation. After FCR failure, I was put on Ibrutinib. This did its work and I was on the miracle drug for 21 months. Then suddenly my kidney function deteriorated dramatically and my blood calcium level became
Haileybury
in
CLL Support
8 years ago
11q CLL FCR hope
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5111525/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5111525/
Hidden
in
CLL Support
8 years ago
11q hope
11q (16%) unmutated young and fit started FCR
11q (16%) unmutated young and fit started FCR
Hidden
in
CLL Support
8 years ago
Disabled or not!
I have just been advised of a formal warning in work due to Sick time (2 days) after my
Rituximab
infusions. Joy of working in the NHS!!. Are we classed as disabled having GPA? I have blue badges and have been classed as disabled with my local council and have a Hearing social worker.
I have just been advised of a formal warning in work due to Sick time (2 days) after my
Rituximab
infusions. Joy of working in the NHS!!. Are we classed as disabled having GPA? I have blue badges and have been classed as disabled with my local council and have a Hearing social worker.
Llinos
in
Vasculitis UK
8 years ago
Rituximab and prednisone
Hi everyone as anyone who has GPA been treated with
Rituximab
while on high dose of prednisone (40mg)i If so how did you feel for the following months? It is now four month since my infusion I am down to 12mg pried but not feeling any better I get very tired and muscle ache back ache etc etc!!!
Hi everyone as anyone who has GPA been treated with
Rituximab
while on high dose of prednisone (40mg)i If so how did you feel for the following months? It is now four month since my infusion I am down to 12mg pried but not feeling any better I get very tired and muscle ache back ache etc etc!!!
102637
in
Vasculitis UK
8 years ago
Rituximab
I have been waiting for about a year now for funding &licensing for a
rituximab
infusion which I've now been accepted for. Has anybody else ever had one?
I have been waiting for about a year now for funding &licensing for a
rituximab
infusion which I've now been accepted for. Has anybody else ever had one?
madonbrew
in
Early CKD Support
8 years ago
How remission is decided...
The nutcase in me is rearing her ugly head again! I saw my consultant last week, 2 weeks after completing 6 rounds of FCR. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo
The nutcase in me is rearing her ugly head again! I saw my consultant last week, 2 weeks after completing 6 rounds of FCR. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo
Bethan49
in
CLL Support
8 years ago
MRD Negative in the Bone Marrow - clinical trial update
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Debinoz
in
CLL Support
8 years ago
Dr. Andrew Roberts with new data from EHA on Venetoclax used in combination with Rituximab. And my quick visit to San Francisco tomorrow
Andrew Roberts from a discussion we had about the new data on Venetoclax used in combination with
Rituximab
for relapsed refractory CLL. You can find the interview on our front page. On Saturday, October 29th I will be in San Francisco, CA.
Andrew Roberts from a discussion we had about the new data on Venetoclax used in combination with
Rituximab
for relapsed refractory CLL. You can find the interview on our front page. On Saturday, October 29th I will be in San Francisco, CA.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Molecular remission after 6 rounds of FCR
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
ucallihaul
in
CLL Support
8 years ago
Yakult
Hi, does anyone know if it's ok to have yakult or actively while taking methotrexate and
Rituximab
infusions please? x
Hi, does anyone know if it's ok to have yakult or actively while taking methotrexate and
Rituximab
infusions please? x
dozzer15
in
NRAS
8 years ago
FCR/UNmutated IGVH
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
YjbCLL
in
CLL Support
8 years ago
Rituximab and Denosumab
Has anyone had
Rituximab
for GPA and Denosumab for osterpororis ? What I want to know is are they compatible ? Has anyone experienced side effects?
Has anyone had
Rituximab
for GPA and Denosumab for osterpororis ? What I want to know is are they compatible ? Has anyone experienced side effects?
102637
in
Vasculitis UK
8 years ago
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