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Rituximab and upset tum
Only one infusion so far on Friday last. Terrible diaries. Anyone had this or knows if it eases off
Only one infusion so far on Friday last. Terrible diaries. Anyone had this or knows if it eases off
28maggie11
in
NRAS
6 years ago
Rituxan / Rituximab -- gastrointestinal side effects or coinciding viral infection?
I was diagnosed with MPA in 2013. I was brought into remission with cyclophosphamide and prednisone but I've been receiving Rituxan infusions bi-annually for the past 2.5 years, as the drug seems to keep systemic issues in check. In late 2016, about 7 days post-infusion, I began to suffer gastrointestinal
I was diagnosed with MPA in 2013. I was brought into remission with cyclophosphamide and prednisone but I've been receiving Rituxan infusions bi-annually for the past 2.5 years, as the drug seems to keep systemic issues in check. In late 2016, about 7 days post-infusion, I began to suffer gastrointestinal
michichgo
in
Vasculitis UK
6 years ago
GPA, Rituximab and chicken pox...
Hi all, I am under treatment for GPA and am on pred (12.5mg)
rituximab
and various other meds. I was told at the start of my treatment that exposure to chicken pox is bad news. Luckily for me all three of my kids have it in differing stages. Do I need to lookout for anything?
Hi all, I am under treatment for GPA and am on pred (12.5mg)
rituximab
and various other meds. I was told at the start of my treatment that exposure to chicken pox is bad news. Luckily for me all three of my kids have it in differing stages. Do I need to lookout for anything?
Wengle82
in
Vasculitis UK
6 years ago
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what to take besides prednisone
taking 10mg prednisone now, been on prednisone for 2yrs, doctor wants to get me off prednisone ask me what i thought about cell cept or
rituximab
, has anyone tried these or know anything about these, also what have people tried besides prednisone and had any luck with
taking 10mg prednisone now, been on prednisone for 2yrs, doctor wants to get me off prednisone ask me what i thought about cell cept or
rituximab
, has anyone tried these or know anything about these, also what have people tried besides prednisone and had any luck with
Uzziah7
in
PMRGCAuk
6 years ago
Update on Round 2 FCR
Hi everyone! As promised I would let you know how it's going. Round 2 was uneventful as well ! It was such a relief to not have any side effects. I noticed I was a little tired one extra day after chemo was done. First round I was tired and not so hungry for 2 days. This time it was 3 days. Don't
Hi everyone! As promised I would let you know how it's going. Round 2 was uneventful as well ! It was such a relief to not have any side effects. I noticed I was a little tired one extra day after chemo was done. First round I was tired and not so hungry for 2 days. This time it was 3 days. Don't
GMa27
in
CLL Support
6 years ago
Lupus and hair loss
I am due to have
rituximab
.
I am due to have
rituximab
.
estpem
in
LUPUS UK
6 years ago
Night sweats after FCR
Hi All, Completed first round of FCR 4 days ago pulled up reasonably well went back to work on Monday so happy so far. One thing I am soaked at night with night sweats each night since. Has anybody else had the same? Advice please!! 😁
Hi All, Completed first round of FCR 4 days ago pulled up reasonably well went back to work on Monday so happy so far. One thing I am soaked at night with night sweats each night since. Has anybody else had the same? Advice please!! 😁
Shirty78
in
CLL Support
6 years ago
Ibrutinib and NHSE current position.
Dear all As you know I am fighting for the right to be prescribed the drug my consultant thinks is the best treatment for me which is Ibrutinib. However because my relapse is after the 3 year point (3.8 years) I am denied that treatment. As part of the invite for a review in July by NHSE I emailed my
Dear all As you know I am fighting for the right to be prescribed the drug my consultant thinks is the best treatment for me which is Ibrutinib. However because my relapse is after the 3 year point (3.8 years) I am denied that treatment. As part of the invite for a review in July by NHSE I emailed my
Mick491
in
CLL Support
6 years ago
FCR Treatment, 4 cycles or 6, follow up
About a month ago, I posted that I was considering stopping FCR treatment after 4 cycles pending a Bone Marrow Biopsy and PET scan. The results are in and the BMB showed "NO residual CLL detected" and the Normocellular at 40% cellular, Normal for my age. The March BMB, when I was diagnosed, showed
About a month ago, I posted that I was considering stopping FCR treatment after 4 cycles pending a Bone Marrow Biopsy and PET scan. The results are in and the BMB showed "NO residual CLL detected" and the Normocellular at 40% cellular, Normal for my age. The March BMB, when I was diagnosed, showed
severdon
in
CLL Support
6 years ago
Third FCR dose
After the third dose of the treatment, I think my body got over the treatment more quickly. I felt very nauseous for 5 days, but then much better and more like myself. Has anyone else felt the same? Maybe my body is better at dealing with the chemo now? Still neutrophenic after the treatment though
After the third dose of the treatment, I think my body got over the treatment more quickly. I felt very nauseous for 5 days, but then much better and more like myself. Has anyone else felt the same? Maybe my body is better at dealing with the chemo now? Still neutrophenic after the treatment though
Mandy56
in
CLL Support
6 years ago
medication r a hell, help
hi everyone, was diagnosed in nov 2016 with R A since then ive been on 4 different medication, none of them have agreed with me and with severe side effects, I am getting worse day by day ,consultant now wants to put me on
rituximab
but I am scared because of the side effects I have already experienced
hi everyone, was diagnosed in nov 2016 with R A since then ive been on 4 different medication, none of them have agreed with me and with severe side effects, I am getting worse day by day ,consultant now wants to put me on
rituximab
but I am scared because of the side effects I have already experienced
astrajewel
in
NRAS
6 years ago
thank you
hi , I just wanted to say a very big thank you to all who responded to my post. it has lifted my heart to to hear other peoples stories concerning
rituximab
, and has calmed me down about facing having it, I really don't have a choice now but to take it regardless of my fears, as I cant stand to be
hi , I just wanted to say a very big thank you to all who responded to my post. it has lifted my heart to to hear other peoples stories concerning
rituximab
, and has calmed me down about facing having it, I really don't have a choice now but to take it regardless of my fears, as I cant stand to be
astrajewel
in
NRAS
6 years ago
Any suggestions
I have just returned from hosp with the news that treatment should begin. I have two choices the conventional fcr treatment or the Flair trial which may still mean fcr if that’s what the computer recommends has anyone any thoughts or advice, Thank you
I have just returned from hosp with the news that treatment should begin. I have two choices the conventional fcr treatment or the Flair trial which may still mean fcr if that’s what the computer recommends has anyone any thoughts or advice, Thank you
dandelup
in
CLL Support
6 years ago
Cold medication
Hi guys my hubby currently having FCR for CLL he seems to be taking the cold does anyone know what cold medication he could take if any ???
Hi guys my hubby currently having FCR for CLL he seems to be taking the cold does anyone know what cold medication he could take if any ???
Sailormoon11
in
CLL Support
6 years ago
Relapsing polychondritis
I believe this is very rare ,3.5 people in a million is quoted but would like to know what the best treatment is if
Rituximab
is not working. Thank you.
I believe this is very rare ,3.5 people in a million is quoted but would like to know what the best treatment is if
Rituximab
is not working. Thank you.
trebar
in
Vasculitis UK
6 years ago
Frustrated with ITP and not sure be able to keep working as a physical therapist
I have been working as a PT for 20 years and in my mid 50-this was diagnosed with ITP, had multiple
Rituximab
infusions but still running low 20K (lowest was 14K), had no bleeds but bruised often and now can not work 10 hours days or keep up with physical load of being physical therapist due to fatigue
I have been working as a PT for 20 years and in my mid 50-this was diagnosed with ITP, had multiple
Rituximab
infusions but still running low 20K (lowest was 14K), had no bleeds but bruised often and now can not work 10 hours days or keep up with physical load of being physical therapist due to fatigue
hannaITP
in
ITP Support Association
6 years ago
Fusion
After five months of no RA meds only a steroid jag to keep me going I am awaiting phone call from nurse to arrange
rituximab
infusion. Apprehensive as so far I have not tolerated methotrexate or humira. In my system for six months if I have a problem
After five months of no RA meds only a steroid jag to keep me going I am awaiting phone call from nurse to arrange
rituximab
infusion. Apprehensive as so far I have not tolerated methotrexate or humira. In my system for six months if I have a problem
28maggie11
in
NRAS
6 years ago
Lymphocyte count post FCR
Three years ago my husband had FCR which was very effective and he became MRD- (ie complete remission). Everything has been going very well and he is feeling much healthier than he had done for years before FCR (he had 2 years in W&W but had clearly had CLL for years before diagnosis). Straight after
Three years ago my husband had FCR which was very effective and he became MRD- (ie complete remission). Everything has been going very well and he is feeling much healthier than he had done for years before FCR (he had 2 years in W&W but had clearly had CLL for years before diagnosis). Straight after
Fowey2009
in
CLL Support
6 years ago
unmutated cll patient treatment with fcr
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
Neoklis
in
CLL Support
6 years ago
Blood transfusion after first round of FCR
The start of the FCR went so well, though I was breathless from the first dose of
Rituximab
. That went worse as time went on and my heart felt like it was labouring.
The start of the FCR went so well, though I was breathless from the first dose of
Rituximab
. That went worse as time went on and my heart felt like it was labouring.
Mandy56
in
CLL Support
6 years ago
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