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CLL and related skin conditions
I am 73 and have had CLL for the last six years. I had FCR treatment some 5 years ago and more recently a milder form of FCR to keep the CLL at bay. One of the apparent side effects from the CLL has been an increase in Keratosis and Squamus Cell Carcinoma which have been treated with liquid nitrogen
I am 73 and have had CLL for the last six years. I had FCR treatment some 5 years ago and more recently a milder form of FCR to keep the CLL at bay. One of the apparent side effects from the CLL has been an increase in Keratosis and Squamus Cell Carcinoma which have been treated with liquid nitrogen
plett1234
in
CLL Support
5 years ago
Right decision? FCR vs. trial
Hi everyone I have been following and occasionally writing replies but have not introduced myself. This is a fantastic very supportive group and I am amazed but the helpful and very knowledgeable contributions my so many members. I was diagnosed in 2014 with a routine blood test at the age of 49
Hi everyone I have been following and occasionally writing replies but have not introduced myself. This is a fantastic very supportive group and I am amazed but the helpful and very knowledgeable contributions my so many members. I was diagnosed in 2014 with a routine blood test at the age of 49
schmitthj007
in
CLL Support
5 years ago
Flare ?
Hi but of a dilemma I started
rituximab
in October but my gp added Butec patch in as the rtx was taking forever to kick rtx took till just after Xmas to work, the rtx or the patch gave me horrendous ocd and anxiety and for the last few weeks since stoping the Butec patch .
Hi but of a dilemma I started
rituximab
in October but my gp added Butec patch in as the rtx was taking forever to kick rtx took till just after Xmas to work, the rtx or the patch gave me horrendous ocd and anxiety and for the last few weeks since stoping the Butec patch .
Vonnie10
in
NRAS
5 years ago
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New Diagnosis Hypothyroidism
I had my third set of
Rituximab
back In Jan but not been able to recover. Numerous blood tests and appointments later my TSH for thyroid is high so now being tested for hypothyroidism. Does anyone else have this with SLE?
I had my third set of
Rituximab
back In Jan but not been able to recover. Numerous blood tests and appointments later my TSH for thyroid is high so now being tested for hypothyroidism. Does anyone else have this with SLE?
LSurtees
in
LUPUS UK
5 years ago
CLL Remission
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
Kmegood
in
CLL Support
5 years ago
Rituximab
Had first
Rituximab
on 18th Jan abs second 1st Feb. After second I’ve been feeling awful. Really nauseous, headaches, tired. I’ve told Guys and they never called me back!!! They then emailed saying my consultant away and to go to local a&e 😞. I’m sweating a lot, can hardly eat as feel sick.
Had first
Rituximab
on 18th Jan abs second 1st Feb. After second I’ve been feeling awful. Really nauseous, headaches, tired. I’ve told Guys and they never called me back!!! They then emailed saying my consultant away and to go to local a&e 😞. I’m sweating a lot, can hardly eat as feel sick.
Wolf1
in
LUPUS UK
5 years ago
EXPERIENCE OF RITUXIMAB AND TRIXUMA INFUSIONS TO CONTROL RHEUMATOID ARTHRITIS - ALSO USE OF ABATACEPT with or without Methotrexate therapy
I have also heard from people who had had
Rituximab
infusions that they had a very rough and difficult time for 10/12 days post infusion and the same after the second infusion 2 weeks later. Very ill indeed.
I have also heard from people who had had
Rituximab
infusions that they had a very rough and difficult time for 10/12 days post infusion and the same after the second infusion 2 weeks later. Very ill indeed.
JGBH
in
Arthritis Action
5 years ago
Broken elbow? Anyone?
Hi, I have had RA for 5 years, but seem to have it mostly under control ( on
Rituximab
infusions) However, I have stupidly ( I say stupidly, as it was largely my fault I came off!) fallen off my bike onto my elbow.. yowch!
Hi, I have had RA for 5 years, but seem to have it mostly under control ( on
Rituximab
infusions) However, I have stupidly ( I say stupidly, as it was largely my fault I came off!) fallen off my bike onto my elbow.. yowch!
scorpiojack
in
NRAS
5 years ago
Impact of CT and pet scan on chemo drugs
I am under chemo immunotherapy of Bendsmustin and
Rituximab
. Finished 4 cycles and next one due on 6th March. My doctor wants me to have whole body CT and pet scan to see whether lymph nodes shrank and start the 5th Cycle Infusion.
I am under chemo immunotherapy of Bendsmustin and
Rituximab
. Finished 4 cycles and next one due on 6th March. My doctor wants me to have whole body CT and pet scan to see whether lymph nodes shrank and start the 5th Cycle Infusion.
venk_46
in
CLL Support
5 years ago
Venetoclax plus Rituximab
Hi, I'm new to this forum and am wondering if anyone knows of any trials of Venetoclax plus
Rituximab
for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after
Rituximab
monotherapy failed, and am not so keen on starting on chemo road. Andrew
Hi, I'm new to this forum and am wondering if anyone knows of any trials of Venetoclax plus
Rituximab
for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after
Rituximab
monotherapy failed, and am not so keen on starting on chemo road. Andrew
greenvert
in
CLL Support
5 years ago
Painful weekend
Hi everyone, Been a while since my last post Just got back in the office since weekend following a flare up of my knees and hip felt shocking last 2 days, Have 12 week review with consultant tomorrow hopefully she will give me a steroid injection also had
Rituximab
infusion last July so starting to think
Hi everyone, Been a while since my last post Just got back in the office since weekend following a flare up of my knees and hip felt shocking last 2 days, Have 12 week review with consultant tomorrow hopefully she will give me a steroid injection also had
Rituximab
infusion last July so starting to think
phil_54
in
NRAS
5 years ago
Infusion
Has anyone tried
Rituximab
infusions has it helped any Problems ? What r the side effects like M worried After I read the side-effects more prone to side-effects infections please can somebody help me or tell me if it’s worth it or not thank you have a blessed day
Has anyone tried
Rituximab
infusions has it helped any Problems ? What r the side effects like M worried After I read the side-effects more prone to side-effects infections please can somebody help me or tell me if it’s worth it or not thank you have a blessed day
Mystik
in
LUPUS UK
5 years ago
I am CLL patient previusly treate with FR. I need to be treated again. I need some advice please.
(
Rituximab
plus Fludarabina) 2- Obinutuzumab plus chlorambucil. My Doctor recommends 2nd Option. According to my Doctor, Obinutuzmab (gazyvo) can be used also for patient previously treated. Can anyone give some clue/advice about this.
(
Rituximab
plus Fludarabina) 2- Obinutuzumab plus chlorambucil. My Doctor recommends 2nd Option. According to my Doctor, Obinutuzmab (gazyvo) can be used also for patient previously treated. Can anyone give some clue/advice about this.
tropicsurvivor
in
CLL Support
5 years ago
Guilt-free relaxing & Rituximab!
They've decided that the Cimzia injections are not working and have planned to start me on
Rituximab
infusions at the end of this month! For now I'm on a hearty dose of steroids which has given me such relief and left me feeling amazing.
They've decided that the Cimzia injections are not working and have planned to start me on
Rituximab
infusions at the end of this month! For now I'm on a hearty dose of steroids which has given me such relief and left me feeling amazing.
Savannahseger
in
NRAS
5 years ago
Eltrombopag stopped responding
I am refractory to steroids,
rituximab
, pappaya extract. Tried azathioprine but count is not going above 40000. My hamatologist started Eltrombopag and my count raised to 1.5 lac. Since last three months count has been dropping to 1.3 lac, 80k,40k eventhough on Eltrombopag.
I am refractory to steroids,
rituximab
, pappaya extract. Tried azathioprine but count is not going above 40000. My hamatologist started Eltrombopag and my count raised to 1.5 lac. Since last three months count has been dropping to 1.3 lac, 80k,40k eventhough on Eltrombopag.
Bhsl
in
ITP Support Association
5 years ago
CLL
I was diagnosed with CLL in 2010. In October 2013 I started Chemo FCR finishing in March 2014. I became stable but had some bad side effects like eczema and mouth ulcers and some other issues I was hospitalized 2 times for about a week each time after I finished the chemo. After about one year from the
I was diagnosed with CLL in 2010. In October 2013 I started Chemo FCR finishing in March 2014. I became stable but had some bad side effects like eczema and mouth ulcers and some other issues I was hospitalized 2 times for about a week each time after I finished the chemo. After about one year from the
Kmegood
in
CLL Support
5 years ago
Rituximab wait 😫
I have been treated with 6 monthly
rituximab
infusions now for two years with good results , now became of a backlog in rheumatology im 2 months overdue.
I have been treated with 6 monthly
rituximab
infusions now for two years with good results , now became of a backlog in rheumatology im 2 months overdue.
weathervane
in
LUPUS UK
5 years ago
Has anyone got WG?
I had a ‘flare up’ in Dec 2018, had treatment with
rituximab
in hospital. I’m interested in what treatments others have had and their effects. I get depressed and angry at having this incurable disease and although having to adjust myself to it have not accepted its presence.
I had a ‘flare up’ in Dec 2018, had treatment with
rituximab
in hospital. I’m interested in what treatments others have had and their effects. I get depressed and angry at having this incurable disease and although having to adjust myself to it have not accepted its presence.
egre
in
Vasculitis UK
5 years ago
Has anyone been on the combination therapy of Venetoclax, Ibrutinib and Obinutuzumab?
I was wondering if I could hear from someone who has had the combination of Venetoclax, Ibrutinib and Obinutuzumab (Gazyva). My CLL is completely resistant to Chemo and actually continued to spread while I was on FCR. Basically I have a rare c-myc mutation for CLL that has a poor prognosis. I have
I was wondering if I could hear from someone who has had the combination of Venetoclax, Ibrutinib and Obinutuzumab (Gazyva). My CLL is completely resistant to Chemo and actually continued to spread while I was on FCR. Basically I have a rare c-myc mutation for CLL that has a poor prognosis. I have
Time17
in
CLL Support
5 years ago
SLE & Lupus Nephritis, now liver problems
So currently on steroids and imunosuppresants and 6 monthly doses of
rituximab
for SLE & Lupus Nephritis. Saw my Nephrologist last Monday who was concerned that my Liver function result has been 'off ' for the last 5 years and getting worse and asked if it had ever been investigated.
So currently on steroids and imunosuppresants and 6 monthly doses of
rituximab
for SLE & Lupus Nephritis. Saw my Nephrologist last Monday who was concerned that my Liver function result has been 'off ' for the last 5 years and getting worse and asked if it had ever been investigated.
MOOG144
in
LUPUS UK
5 years ago
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