Painful weekend: Hi everyone, Been a while since my... - NRAS

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Painful weekend

phil_54 profile image
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Hi everyone, Been a while since my last post Just got back in the office since weekend following a flare up of my knees and hip felt shocking last 2 days, Have 12 week review with consultant tomorrow hopefully she will give me a steroid injection also had Rituximab infusion last July so starting to think maybe its wareing off a little does anyone who has had the infusion know how long this can last up to i was told from 6 mths to a year.

Thanks, Hope your all well today

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phil_54
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sunnyweek profile image
sunnyweek

Hi Phil sorry to hear of your flare up. Glad you have an appointment tomorrow. I've had six retuximab infusions, the first three lasted 7-8 months, then increased to a year. You can usually start to feel the fatigue returning and generally slowing up. I sometimes start naproxen inbetween infusions as I've found I have to wait to be allocated a chair in the day case unit.

Hope you get sorted tomorrow, and have a pain free day as much as possible today. Don't overdo it.

phil_54 profile image
phil_54

Thanks sunnyweek, you are quite right the fatigue/tiredness seems daily yet unable to sleep at nightime usually have to come downstairs and try to sleep on setee, I will try Naproxen at least in the short term and hopefully i will get a second infusion soon.

Thanks for your reply, Really helpful

sunnyweek profile image
sunnyweek in reply to phil_54

Yes its true the fatigue/tiredness doesn't necessarily mean we will sleep! Best wishes for a positive result tomorrow.

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