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Vaccination names!
I'm on
Rituximab
and my jab was named a booster, do I need to get the name changed? I do realise they are both the same vaccination. Thanks
I'm on
Rituximab
and my jab was named a booster, do I need to get the name changed? I do realise they are both the same vaccination. Thanks
trenarren
in
Arthritis Action
3 years ago
Acalabrutinib or Ibrutinib.
Hi, Age is 46. Six cycles of FCR is done in Oct 2019. Latest absolute count of lymphocytes is 6108. But lymph nodes are increasing . Specially under arms the lymph node size is around 5 inch and near neck is 4 inch. Doctor suggested to take either Acalabrutinib or Ibrutinib. Which one is good and
Hi, Age is 46. Six cycles of FCR is done in Oct 2019. Latest absolute count of lymphocytes is 6108. But lymph nodes are increasing . Specially under arms the lymph node size is around 5 inch and near neck is 4 inch. Doctor suggested to take either Acalabrutinib or Ibrutinib. Which one is good and
pbaddi
in
CLL Support
2 years ago
Has anybody had muscle pain after Rituximab
Just had my 3rd
Rituximab
infusion 3 weeks ago and like last time experiencing some pretty powerful muscle pain. After first infusion it was in my shoulder and neck and this time in my right bicep and tricep. It feels like a cramp.
Just had my 3rd
Rituximab
infusion 3 weeks ago and like last time experiencing some pretty powerful muscle pain. After first infusion it was in my shoulder and neck and this time in my right bicep and tricep. It feels like a cramp.
Investigator1
in
Vasculitis UK
3 years ago
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Very happy jagged person
Last week I wrote to the rheumatologist to try to expedite my covid jag to work with my
rituximab
infusion. He left a message for me to get blood tests. I reported they'd been done.
Last week I wrote to the rheumatologist to try to expedite my covid jag to work with my
rituximab
infusion. He left a message for me to get blood tests. I reported they'd been done.
cathie
in
NRAS
3 years ago
acquired angioedema
Has anyone been diagnosed with AAE caused by their CLL.? I was diagnosed with CLL in 2008, but the cause of all the swelling attacks I was having was not figured out until 2013. I have been through two 6 month treatments with FCR, the first because the CLL had reached the treatment stage and the second
Has anyone been diagnosed with AAE caused by their CLL.? I was diagnosed with CLL in 2008, but the cause of all the swelling attacks I was having was not figured out until 2013. I have been through two 6 month treatments with FCR, the first because the CLL had reached the treatment stage and the second
hertler13
in
CLL Support
2 years ago
Understanding mechanisms of resistance to Pirtobrutinib in Chronic Lymphocytic Leukaemia
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
CLLerinOz
Administrator
in
CLL Support
2 years ago
CT scan while on Venetoclax + Rituximab
I wonder whether any of you being on Venetoclax +
Rituximab
treatment has had a CT scan to monitor changes in lymph nodes and if so at what point in treatment time has this been carried out. I am currently in week 4 (200mg daily) of ramp-up.
I wonder whether any of you being on Venetoclax +
Rituximab
treatment has had a CT scan to monitor changes in lymph nodes and if so at what point in treatment time has this been carried out. I am currently in week 4 (200mg daily) of ramp-up.
RamsesII
in
CLL Support
3 years ago
Having to travel 59 miles for 3rd Pfizer Jab
I am due my
Rituximab
in 4 weeks so at the limit for vaccine. GP surgery said contact 119. I did but they said can’t book it now because the 6 months since your last jab isn’t up until Thursday.
I am due my
Rituximab
in 4 weeks so at the limit for vaccine. GP surgery said contact 119. I did but they said can’t book it now because the 6 months since your last jab isn’t up until Thursday.
Investigator1
in
Vasculitis UK
3 years ago
Advice needed- Return to the workplace after working from home due to being immunosuppressed.
I take MMF 3g a day,
Rituximab
infusions every 6 months, hydroxychloroquine, prednisolone and other medication. I've been advised that I will be expected to return to the office once FFP3 facemasks are provided. I feel very uncomfortable about returning to work as it is a public facing role.
I take MMF 3g a day,
Rituximab
infusions every 6 months, hydroxychloroquine, prednisolone and other medication. I've been advised that I will be expected to return to the office once FFP3 facemasks are provided. I feel very uncomfortable about returning to work as it is a public facing role.
Yellow92
in
LUPUS UK
3 years ago
Rituximab
Rituximab
. Sorry the infusion was
rituximab
x
Rituximab
. Sorry the infusion was
rituximab
x
debjw
in
NRAS
3 years ago
Allergic Reaction to Rituximab!What's the Alternatives?
Hello everyone, my daughter had her 1st infusion of her 2nd cycle of
Rituximab
in April 2021. The 2nd dose 2 weeks later was stopped immediately following a severe reaction ie breathing difficulties, rapid heart rate & body itching.
Hello everyone, my daughter had her 1st infusion of her 2nd cycle of
Rituximab
in April 2021. The 2nd dose 2 weeks later was stopped immediately following a severe reaction ie breathing difficulties, rapid heart rate & body itching.
Wangpaupau
in
NRAS
3 years ago
Any advice on shingles misery?
I’ve been diagnosed with oral shingles (and a big thank you to Bellabee for recognising the symptoms and making me go to the doctor). I’m 6 days into aciclover and tegretol. I’m also using alcohol free mouth wash several times a day, but the pain is miserable. Paracetamol barely touches it and I’m so
I’ve been diagnosed with oral shingles (and a big thank you to Bellabee for recognising the symptoms and making me go to the doctor). I’m 6 days into aciclover and tegretol. I’m also using alcohol free mouth wash several times a day, but the pain is miserable. Paracetamol barely touches it and I’m so
Mandy56
in
CLL Support
2 years ago
Pregnancy
I'm still getting
rituximab
every 6 months for the next year and half and immunologist say I have to wait a year atleast after stopping treatment to conceive. I'm just worried but would love to hear of peoples experiences. Elle 😊
I'm still getting
rituximab
every 6 months for the next year and half and immunologist say I have to wait a year atleast after stopping treatment to conceive. I'm just worried but would love to hear of peoples experiences. Elle 😊
Elle2090
in
Encephalitis International
3 years ago
Rituximab
Hi all, I’ve had my first round of this infusion and I wondered if anyone else had very high blood pressure after this? I’ve now been put on meds as it was so high. Thanks and I look forward to hearing x
Hi all, I’ve had my first round of this infusion and I wondered if anyone else had very high blood pressure after this? I’ve now been put on meds as it was so high. Thanks and I look forward to hearing x
debjw
in
NRAS
3 years ago
10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
lankisterguy
Volunteer
in
CLL Support
2 years ago
STARTING 4th CYCLE OF NX-2127 TRIAL
Here's an update from my newest clinical trial, Nurex-2127. This first phase is the dose finding part. I started on 300mg, the max amount at the time. Things started off well, but after three weeks, my anc dropped to 1.0, the study requires 1.5 or higher. I found myself off of the study until I got
Here's an update from my newest clinical trial, Nurex-2127. This first phase is the dose finding part. I started on 300mg, the max amount at the time. Things started off well, but after three weeks, my anc dropped to 1.0, the study requires 1.5 or higher. I found myself off of the study until I got
steve5441
in
CLL Support
2 years ago
Venetoclax
consider it a miracle drug in May I was doing real bad needed blood transfusion WBC was 278,000 platelets 58 and rbc 2 now after 4 months on Venetoclax my latest blood test wbc 3,82 hgb 15 plt 117 neut2.22 and baso .01 have more energy and all the swelling is gone , I take in conjunction with monthly
rituximab
consider it a miracle drug in May I was doing real bad needed blood transfusion WBC was 278,000 platelets 58 and rbc 2 now after 4 months on Venetoclax my latest blood test wbc 3,82 hgb 15 plt 117 neut2.22 and baso .01 have more energy and all the swelling is gone , I take in conjunction with monthly
rituximab
starlifter
in
CLL Support
3 years ago
LLS Ciitizen USA Study Shows Most Blood Cancer Patients Benefit from an Additional (3rd) COVID-19 Vaccine Dose
Jeffrey Curtis, chair of the American College of Rheumatology (ACR) COVID Vaccine Guidance Task Force, “patients receiving
rituximab
for rheumatologic conditions should speak to their provider about the timing of vaccination in relation to their
rituximab
dosing.
Jeffrey Curtis, chair of the American College of Rheumatology (ACR) COVID Vaccine Guidance Task Force, “patients receiving
rituximab
for rheumatologic conditions should speak to their provider about the timing of vaccination in relation to their
rituximab
dosing.
lankisterguy
Volunteer
in
CLL Support
3 years ago
I am new here and about to start venetoclax/rituximab treatment.
No treatment for CLL so far other than
rituximab
to treat haemolytic anemia.
No treatment for CLL so far other than
rituximab
to treat haemolytic anemia.
RamsesII
in
CLL Support
3 years ago
Anyone else have the same dilemma?
I am on
rituximab
and created no antibodies after my first vaccine so not hopeful I have much protection, if any against covid at all.
I am on
rituximab
and created no antibodies after my first vaccine so not hopeful I have much protection, if any against covid at all.
Galaxy2
in
Vasculitis UK
3 years ago
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