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Too heavy, feeling depressed.
Hi & happy, healthy new year 🎉 Prev spoke with Slow Dragon 💝 was so grateful for the good advice back then. My Levothyroxine dose increased to 200 i had hoped it would help me loose some weight. No such luck and after recent blood test, I was told to reduce dose to 175. I feel fine, tbh no different
Hi & happy, healthy new year 🎉 Prev spoke with Slow Dragon 💝 was so grateful for the good advice back then. My Levothyroxine dose increased to 200 i had hoped it would help me loose some weight. No such luck and after recent blood test, I was told to reduce dose to 175. I feel fine, tbh no different
MaSet
in
Thyroid UK
6 months ago
Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
2 months ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
2 months ago
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Pre-CRPC Supplements/Drugs - Potential Risks vs Rewards?
With some substances there could be a "tipping" point depending on the substance, the dosage and the patient's stage of cancer where the substance may have a higher chance of having a negative effect instead of positive. It usually relates to ROS levels. Adequate levels of ROS are important for cancer
With some substances there could be a "tipping" point depending on the substance, the dosage and the patient's stage of cancer where the substance may have a higher chance of having a negative effect instead of positive. It usually relates to ROS levels. Adequate levels of ROS are important for cancer
jazj
in
Advanced Prostate Cancer
6 months ago
Functional B12 diagnosis query
Hi, Can anyone advise me what kind of specialist is needed in the UK to diagnose Functional B12 deficiency? My GP practice doesn’t seem to know. After a frustrating few months waiting weeks for phone appointments, we are still no further on with being able to access B12 injections under medical supervision
Hi, Can anyone advise me what kind of specialist is needed in the UK to diagnose Functional B12 deficiency? My GP practice doesn’t seem to know. After a frustrating few months waiting weeks for phone appointments, we are still no further on with being able to access B12 injections under medical supervision
Zmalp
in
Pernicious Anaemia Society
6 months ago
My Remedy!!!
I thought twice about writing this because I am hoping it is still working after 4 days!!I was beginning to experience sleepless nights only being able to grab 3 or 4 hours 'here & there'!! but mai lying due to serious itchiness evidenced by small eruptions on my skin on my arms & legs I decided to
I thought twice about writing this because I am hoping it is still working after 4 days!!I was beginning to experience sleepless nights only being able to grab 3 or 4 hours 'here & there'!! but mai lying due to serious itchiness evidenced by small eruptions on my skin on my arms & legs I decided to
m1946
in
Restless Legs Syndrome
6 months ago
UPDATE on Iron and Vitamin D
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
Batty1
in
Thyroid UK
2 months ago
Decapeptyl/Total hysterectomy
Hi I'm just wondering if anyone has had a total hysterectomy after having decapeptyl SR treatment and has this made an improvement.Endometriosis diagnosis 2005 multiple surgeries decapeptyl injections 2.5 years and ongoing. Monthly pain and bleeding returning with a vengeance pain relief zomorph 30mg
Hi I'm just wondering if anyone has had a total hysterectomy after having decapeptyl SR treatment and has this made an improvement.Endometriosis diagnosis 2005 multiple surgeries decapeptyl injections 2.5 years and ongoing. Monthly pain and bleeding returning with a vengeance pain relief zomorph 30mg
Madcathatter
in
Endometriosis UK
1 year ago
Daughters repeat bloods , off to Rapid Access this afternoon.
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Polo22
in
Pernicious Anaemia Society
6 months ago
Tributes to Dr Joseph Chandy, RIP ... ☹️ 😥 😢- the PEOPLE'S B12d identifying, & treating CHAMPION.
There are MANY ways in which tributes may be paid to celebrate the life & notable dedication to patient/service user care, of the late Dr JC. His funeral details are on another recent thread, that being on 12noon on Friday 12 January 2024: https://healthunlocked.com/pasoc/posts/150369759/dr-chandys-funeral-friday
There are MANY ways in which tributes may be paid to celebrate the life & notable dedication to patient/service user care, of the late Dr JC. His funeral details are on another recent thread, that being on 12noon on Friday 12 January 2024: https://healthunlocked.com/pasoc/posts/150369759/dr-chandys-funeral-friday
Sid_Arthur
in
Pernicious Anaemia Society
6 months ago
Hevert B12 ampoules
Hi everyone and Happy New Year. I have recieved the above B12 ampoules which are Hydroxocobalamine 1000 ug however the volume inside the ampoule is 2ml , I usually inject just 1ml Panpharma is it safe to inject the 2ml and does this equate to 1000ug, thank you
Hi everyone and Happy New Year. I have recieved the above B12 ampoules which are Hydroxocobalamine 1000 ug however the volume inside the ampoule is 2ml , I usually inject just 1ml Panpharma is it safe to inject the 2ml and does this equate to 1000ug, thank you
Helliborous
in
Pernicious Anaemia Society
6 months ago
Duty Reclaim - Ongoing Saga!
Hi All 26 days ago I posted about my shock at receiving a charge from customs. I made a reclaim based on that the B12 was for personal use and I received this reply: "[i]I am currently assessing your BOR286 refund request for your shipment of Vitamin B12 injectable Hydroxocobalamin. This shipment
Hi All 26 days ago I posted about my shock at receiving a charge from customs. I made a reclaim based on that the B12 was for personal use and I received this reply: "[i]I am currently assessing your BOR286 refund request for your shipment of Vitamin B12 injectable Hydroxocobalamin. This shipment
Wwwdot
in
Pernicious Anaemia Society
6 months ago
jaw bone decay?
hi , I have had Osteoporosis for 12 years, and been taking Vitamin D supplements I over the past year have been diagnosed with lower mandible of the jaw bone , I had some bone removed last October all seemd to go well , , but now I think it's spreading again in my lower jaw , it's very inflamed and
hi , I have had Osteoporosis for 12 years, and been taking Vitamin D supplements I over the past year have been diagnosed with lower mandible of the jaw bone , I had some bone removed last October all seemd to go well , , but now I think it's spreading again in my lower jaw , it's very inflamed and
Trevor6
in
Bone Health and Osteoporosis UK
6 months ago
TSH STILL 00.1 AFTER HALVING T3 DOSE TO CONCIEVE AND REPRODUCTIVE ENDOCRINOLOGIST RECOMMENDATIONS IN LONDON OR MANCHESTER PLEASE
Hi all HMY! I have been on T3 for about 8 years very successfully and VERY happy on 20mg daily T3 and 150mcg thyroxine. I felt great. Whichever endo I see private or nhs has told me despite feeling well that I am over medicated as my TSH is 0.01 and I need to reduce my T3. I have always refused
Hi all HMY! I have been on T3 for about 8 years very successfully and VERY happy on 20mg daily T3 and 150mcg thyroxine. I felt great. Whichever endo I see private or nhs has told me despite feeling well that I am over medicated as my TSH is 0.01 and I need to reduce my T3. I have always refused
AuntieMandy
in
Thyroid UK
6 months ago
Looking for advice for my daughter.
Hi it's me again but this time I'm looking for advice for my daughter who has had Hypothyroidism since a teenager. Now 45. I've told her she needs to increase her thyroxine but thought I would ask the experts. They have never tested her T4 or T3. Her vitamins were tested last in October 2022 which
Hi it's me again but this time I'm looking for advice for my daughter who has had Hypothyroidism since a teenager. Now 45. I've told her she needs to increase her thyroxine but thought I would ask the experts. They have never tested her T4 or T3. Her vitamins were tested last in October 2022 which
Otto11
in
Thyroid UK
6 months ago
3 Months of EOD B12 Injections
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
FancyPants54
in
Pernicious Anaemia Society
6 months ago
Vitamin D dropped again
Hi everyone I had my Vitamin tested in January and I was deficient. January 2024: Vitamin D deficient (Vitamin D: 27.4 ng/ml (Low) ….(30-100) I decided to sit outside instead of supplement (weather has been very mild) I just got my results for April 2024 and Im worse off… April 2024: Vitamin
Hi everyone I had my Vitamin tested in January and I was deficient. January 2024: Vitamin D deficient (Vitamin D: 27.4 ng/ml (Low) ….(30-100) I decided to sit outside instead of supplement (weather has been very mild) I just got my results for April 2024 and Im worse off… April 2024: Vitamin
Batty1
in
Thyroid UK
2 months ago
B12 Deficiency
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
MaryF
Administrator
in
Hughes Syndrome APS Forum
4 months ago
folate and b12
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
Confused1806
in
Pernicious Anaemia Society
4 months ago
The eternal supplement conundrum!
Hi all, hope all doing well and all optimistic going into 2024 - and/or grateful for what we’re leaving behind. I’m reviewing our supplements going into ‘24 as a friend of a similar age is on so many I think she must rattle! She is on her IVF journey ahead of me so getting all the advice she can -
Hi all, hope all doing well and all optimistic going into 2024 - and/or grateful for what we’re leaving behind. I’m reviewing our supplements going into ‘24 as a friend of a similar age is on so many I think she must rattle! She is on her IVF journey ahead of me so getting all the advice she can -
Darcy1996
in
Fertility Network UK
6 months ago
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