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AUGH!
I have been battling for about 10 years with numerous health issues and was finally diagnosed about 2 years ago with PA along with many of the accompanying issues. Explained most, if not all of my ills. But finding a doctor that is knowledgeable has eluded me. The absolute worst for me is the mental
I have been battling for about 10 years with numerous health issues and was finally diagnosed about 2 years ago with PA along with many of the accompanying issues. Explained most, if not all of my ills. But finding a doctor that is knowledgeable has eluded me. The absolute worst for me is the mental
YearsNow
in
Pernicious Anaemia Society
7 days ago
Anybody outside the range part 2.
Hello again, the original post from yesterday and some more information and questions underneath. Thanks again for all the help. Part 1 Good afternoon everybody hope this makes sense Is there anybody out there that needs to run outside the ranges in order to feel good? At
Hello again, the original post from yesterday and some more information and questions underneath. Thanks again for all the help. Part 1 Good afternoon everybody hope this makes sense Is there anybody out there that needs to run outside the ranges in order to feel good? At
Jimjamio
in
Thyroid UK
7 days ago
PA weight gain and numbness
Hello PA community, I want to check with your guys if anyone has problem loosing weight, I have been on B12 for the nearly 10 years. I have been putting on weight and very hard to loose it. I pass menopause but still have hot flashes, constant numbness on my legs and fingers, specifically at night, I
Hello PA community, I want to check with your guys if anyone has problem loosing weight, I have been on B12 for the nearly 10 years. I have been putting on weight and very hard to loose it. I pass menopause but still have hot flashes, constant numbness on my legs and fingers, specifically at night, I
Icomaria
in
Pernicious Anaemia Society
7 days ago
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First post! Advice on bloods please and any tips on managing fatigue
Hi all - what a wonderful community! I've been lurking a few days but would appreciate some advice on my blood test results please (F53). It's a bit of a long history but I thought it may be useful for others and for when I have updates - blood results below if you want to skip it. I noticed a small
Hi all - what a wonderful community! I've been lurking a few days but would appreciate some advice on my blood test results please (F53). It's a bit of a long history but I thought it may be useful for others and for when I have updates - blood results below if you want to skip it. I noticed a small
annie2374
in
Thyroid UK
7 days ago
Help with latest blood results, dropping ferritin / B12 and whether to increase T3
Hello, I need some help with my latest bloods, whether to increase my T3 and how to address a drop in ferritin and active B12 Meds; 100mcg levothyroxine and 10mcg of liothyrinine. B complex, folate, zinc, omega 3, magnesium, vitamin D & K2 I’m gluten free Latest bloods done following all advice here
Hello, I need some help with my latest bloods, whether to increase my T3 and how to address a drop in ferritin and active B12 Meds; 100mcg levothyroxine and 10mcg of liothyrinine. B complex, folate, zinc, omega 3, magnesium, vitamin D & K2 I’m gluten free Latest bloods done following all advice here
Slowrunner1208
in
Thyroid UK
7 days ago
another excellent B12 article by B. Wolffenbuttel
https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0CMTEAAR37XhrBq5rOfXZyNhRlxKwMqJQjmPDuhMsrOeM1_0d8Mqo-RJyg4S-F-i8_aem_qrZvOGooSM1M-vVnqSUeNw I particularly liked the “50% of individuals require individualized injection regimens with more frequent administration, ranging
https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0CMTEAAR37XhrBq5rOfXZyNhRlxKwMqJQjmPDuhMsrOeM1_0d8Mqo-RJyg4S-F-i8_aem_qrZvOGooSM1M-vVnqSUeNw I particularly liked the “50% of individuals require individualized injection regimens with more frequent administration, ranging
PlatypusProfit8077
in
Pernicious Anaemia Society
7 days ago
Back pain
Hi everyone, I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor says the increased pain at certain times is just my Fibro. But I'm not so sure. I had loading doses at the beginning of February, then by mid April
Hi everyone, I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor says the increased pain at certain times is just my Fibro. But I'm not so sure. I had loading doses at the beginning of February, then by mid April
Kma123
in
Pernicious Anaemia Society
7 days ago
Suspect thyroid issue
Hi, new here. I recently had full blood tests done due to a range of symptoms including tiredness, lethargy, brain fog, aches and pains. I've now had the results back and an concerned about some of them that the doctor has dismissed as normal. The results I've had are: Vit D 39 nmol/L (normal range
Hi, new here. I recently had full blood tests done due to a range of symptoms including tiredness, lethargy, brain fog, aches and pains. I've now had the results back and an concerned about some of them that the doctor has dismissed as normal. The results I've had are: Vit D 39 nmol/L (normal range
Loulabelle78
in
Thyroid UK
7 days ago
Hashimoto flare up
Hello all, I've been posting on this board for the last week or so fairly regularly to get some support/help from the all of you great people here...for this i am eternally grateful as i self medicate and really have no Dr to turn to. I'm at a point where i need to make a decision now and seeking some
Hello all, I've been posting on this board for the last week or so fairly regularly to get some support/help from the all of you great people here...for this i am eternally grateful as i self medicate and really have no Dr to turn to. I'm at a point where i need to make a decision now and seeking some
ci00aaj
in
Thyroid UK
7 days ago
Gummies - BE CAREFUL
There is a huge range of substances now available in the form of gummies. And gummies are made to taste nice. And this disguises that they contain active ingredients with serious effects. They themselves seem entirely innocuous. Possibly there is more concern over any sugars and sweeteners than what
There is a huge range of substances now available in the form of gummies. And gummies are made to taste nice. And this disguises that they contain active ingredients with serious effects. They themselves seem entirely innocuous. Possibly there is more concern over any sugars and sweeteners than what
helvella
Thyroid UK
in
Thyroid UK
7 days ago
anyone help with article that states that it is not alright to prescribe different doses of Liothyronine on alternate days?
I am on T3 and Levo 75mcg. but I feel hypo since I was taken off 10mcg T3 daily and put onto T3 at 10mcg /5mcg on alternate days Has anyone a reference regarding this unorthodox prescribing of T3 in split different doses I can send to him to support my case against this splitting of the T3 like
I am on T3 and Levo 75mcg. but I feel hypo since I was taken off 10mcg T3 daily and put onto T3 at 10mcg /5mcg on alternate days Has anyone a reference regarding this unorthodox prescribing of T3 in split different doses I can send to him to support my case against this splitting of the T3 like
HilaryWB
in
Thyroid UK
8 days ago
Supplements before blood test?
Hi all - now that I am finally medicated and also had loading doses of B12 (and I paid for vit D3) injections, figuring out supplements I need to take alongside figuring out what is triggering my hyperthyroidism - I wanted to check which I should NOT take prior to the blood test I have finally got to
Hi all - now that I am finally medicated and also had loading doses of B12 (and I paid for vit D3) injections, figuring out supplements I need to take alongside figuring out what is triggering my hyperthyroidism - I wanted to check which I should NOT take prior to the blood test I have finally got to
eatingbiscuits
in
Thyroid UK
8 days ago
Am I wrong?,
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
Popcorn12345
in
Pernicious Anaemia Society
8 days ago
Endocrinologist and vitamins tests info
Hi everyone, I would like to have some info or personal recommendations of some endocrinologists please. I know this is done through private messaging so I would be very grateful if someone can shed some light and share their experiences with me. I am also trying to source some tests done on Vitamins
Hi everyone, I would like to have some info or personal recommendations of some endocrinologists please. I know this is done through private messaging so I would be very grateful if someone can shed some light and share their experiences with me. I am also trying to source some tests done on Vitamins
Jspringer
in
Thyroid UK
8 days ago
How do I know if I have PA?
My issues with B12 only came to light after booking an iron infusion with Dr. Klein earlier this year. He asked me to stop taking any b vits for a month prior to my blood test. After 3 weeks of not taking B12 and other b complex supplements my health rapidly deteriorated. I became weaker by the day
My issues with B12 only came to light after booking an iron infusion with Dr. Klein earlier this year. He asked me to stop taking any b vits for a month prior to my blood test. After 3 weeks of not taking B12 and other b complex supplements my health rapidly deteriorated. I became weaker by the day
Krysagnes
in
Pernicious Anaemia Society
8 days ago
Symptom flare up after working out (?!) advice please
Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years ago and have injections from GP once every 2 months but supplement with my own when feeling low. I'm 36 years old and female. Have a busy life, work full time with a young child. My question is about exercise. If I exert
Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years ago and have injections from GP once every 2 months but supplement with my own when feeling low. I'm 36 years old and female. Have a busy life, work full time with a young child. My question is about exercise. If I exert
DocAJB
in
Pernicious Anaemia Society
8 days ago
PA to have treatment?
do you have to have PA to have b12 injections from the doctor? My PA test was negative but I’m obv having symptoms and I just wanted to get clarity on this. Thanks.
do you have to have PA to have b12 injections from the doctor? My PA test was negative but I’m obv having symptoms and I just wanted to get clarity on this. Thanks.
Em19911
in
Pernicious Anaemia Society
8 days ago
Weight Loss Advice
I know this is a topic that drives us all mad lol but any advice is welcome.I was a long distance runner before I had my 5th child and then 11 months later diagnosed with Hasimotos. I gained 3 stone after the pregnancy before diagnosis. I have lost 2 stone but this last stone does not shift no matter
I know this is a topic that drives us all mad lol but any advice is welcome.I was a long distance runner before I had my 5th child and then 11 months later diagnosed with Hasimotos. I gained 3 stone after the pregnancy before diagnosis. I have lost 2 stone but this last stone does not shift no matter
Jutokids
in
Thyroid UK
8 days ago
Enter The Dragon
Dear All, As a community, our journey can be extremely arduous. There is no set pattern to recovery, once we believe that we are on an even keel, something can tip the balance. Hey presto, more tomfoolery, antics and don’t start on the capers. I wished to share this piece with you. Vitamin B12 transforms
Dear All, As a community, our journey can be extremely arduous. There is no set pattern to recovery, once we believe that we are on an even keel, something can tip the balance. Hey presto, more tomfoolery, antics and don’t start on the capers. I wished to share this piece with you. Vitamin B12 transforms
Narwhal10
in
Pernicious Anaemia Society
8 days ago
B12 5mg, is it worth it?
Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has anyone had any experience with these, does it give you a mega boost so I wouldn't have to have as many 1mg injections? Thanks in advance for any advice
Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has anyone had any experience with these, does it give you a mega boost so I wouldn't have to have as many 1mg injections? Thanks in advance for any advice
VMITCHELL78
in
Pernicious Anaemia Society
8 days ago
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