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Mitral valve repair
Hello allI would like advice or information from anyone who has been through this. I've had mild to moderate mitral regurgitation for 30 years with no symptoms. However last couple of years things have worsened. I have developed atrial fibrillation and heart failure and my mitral regurgitation.is now
Hello allI would like advice or information from anyone who has been through this. I've had mild to moderate mitral regurgitation for 30 years with no symptoms. However last couple of years things have worsened. I have developed atrial fibrillation and heart failure and my mitral regurgitation.is now
honey1958
in
British Heart Foundation
11 months ago
8 months on pred - Update from recent bloods
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
Gimme
in
PMRGCAuk
8 months ago
PSA increase nearly one year after triplet therapy (mHSPC), what's next?
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Sissel25
in
Advanced Prostate Cancer
6 months ago
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Another experience proving we are all different
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
Peacefulneedshelp
in
Atrial Fibrillation Support
1 month ago
I Too Have Persistent Afib
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
theluckyone
in
Atrial Fibrillation Support
1 month ago
Benefit of coherent breathing
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
PhilFreeToAsk
in
PMRGCAuk
1 month ago
HF ongoing issues
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Nomis21
in
Atrial Fibrillation Support
1 month ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
3 months ago
PSA analysis 6 months after radiation
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
Mgtd
in
Advanced Prostate Cancer
6 months ago
Low BP
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
Fishie1
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
❤️ Social Check-In 18th July 2023
Morning community, The BHF Heart Hero Awards are here! Here are three inspiring BHF-funded projects shortlisted for the research award that are tackling some of the biggest challenges into heart and circulatory disease. ⭐ Professor Massimo Caputo at University of Bristol who has developed a ground-breaking
Morning community, The BHF Heart Hero Awards are here! Here are three inspiring BHF-funded projects shortlisted for the research award that are tackling some of the biggest challenges into heart and circulatory disease. ⭐ Professor Massimo Caputo at University of Bristol who has developed a ground-breaking
Amy-BHF
Partner
in
British Heart Foundation
11 months ago
TSH 37 - taking Levothyroxine 200mg
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
Jadewhitcombe
in
Thyroid UK
3 months ago
Belimumab treatment
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Spacecadet73
in
LUPUS UK
3 months ago
Interesting article about curing autoimmune diseases
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
CatsandCars
in
My MSAA Community
3 months ago
Fibroscan update
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Dontworrydarling
in
British Liver Trust
6 months ago
REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
michaellasmith
Administrator
in
LUPUS UK
3 months ago
Focus group with Kuma Health - 8th March 10.30am until 12pm!
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
michaellasmith
Administrator
in
LUPUS UK
3 months ago
Ambroxol update
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
CuriousMe12
in
Cure Parkinson's
6 months ago
questions after tadiotherapy?
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
pj1121
in
Advanced Prostate Cancer
6 months ago
Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?
They have been so delayed. .
They have been so delayed. .
wedgewood
in
Pernicious Anaemia Society
3 months ago
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