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Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
11 months ago
I Don't Want to Inject
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
A One Time Experience
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
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B1 Therapy INSTAGRAM live
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
Markbit
in
Cure Parkinson's
4 months ago
Newbie in need 😢🙏
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Molliesmamma
in
Fibromyalgia Action UK
4 months ago
Bloods advice pls -starting T3 combo
Morning everyone, hope you're good. 😁I'm getting ready to start t3 combo. There have been a few hiccups with thyroxine dosage/supply. So currently, my prescription of thyroxine has gone up to 87.5mcg, (was put down to 75 as they didn't stock 85) & 5mcg of T3. I just wanted to check in with you to
Morning everyone, hope you're good. 😁I'm getting ready to start t3 combo. There have been a few hiccups with thyroxine dosage/supply. So currently, my prescription of thyroxine has gone up to 87.5mcg, (was put down to 75 as they didn't stock 85) & 5mcg of T3. I just wanted to check in with you to
VEG71
in
Thyroid UK
9 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
4 months ago
19 struggling with ectopics
Hi all, I just wanted to come on here for a bit of advice or just to share what I’ve been struggling with recently, I’ve struggled with ectopic beats for over a year now, and they have been manageable as they have predominantly been quite spread out or predictable, and the only bad episodes happening
Hi all, I just wanted to come on here for a bit of advice or just to share what I’ve been struggling with recently, I’ve struggled with ectopic beats for over a year now, and they have been manageable as they have predominantly been quite spread out or predictable, and the only bad episodes happening
alexandral7
in
British Heart Foundation
1 year ago
19 struggling with ectopics
Hi all, I just wanted to come on here for a bit of advice or just to share what I’ve been struggling with recently, I’ve struggled with ectopic beats for over a year now, and they have been manageable as they have predominantly been quite spread out or predictable, and the only bad episodes happening
Hi all, I just wanted to come on here for a bit of advice or just to share what I’ve been struggling with recently, I’ve struggled with ectopic beats for over a year now, and they have been manageable as they have predominantly been quite spread out or predictable, and the only bad episodes happening
alexandral7
in
AF Association
1 year ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
4 months ago
Hypothyroidism and Pernicious Anaemia assistance please
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
yorkshiregirl4
in
Thyroid UK
4 months ago
High doses of B12
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Rafiki2
in
Cure Parkinson's
4 months ago
Vitamins
Does anyone know the link to the guide on all the other vitamins you must take alongside SI B12? Tried looking through them all and can't find, TIA
Does anyone know the link to the guide on all the other vitamins you must take alongside SI B12? Tried looking through them all and can't find, TIA
Rach77788
in
Pernicious Anaemia Society
5 months ago
My last post for a while, Thanks everyone!!!
I’d like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
I’d like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
38yroldmale
in
Cure Parkinson's
4 months ago
The good doctor
I had a GP appointment this morning (double appointment) for a Medication Review. I haven’t had one since pre-Covid when I lived in a different part of the country. I crept into the surgery with fear in my heart as I prepared to explain the ins and outs of NDT. OH came with me as I was in the middle
I had a GP appointment this morning (double appointment) for a Medication Review. I haven’t had one since pre-Covid when I lived in a different part of the country. I crept into the surgery with fear in my heart as I prepared to explain the ins and outs of NDT. OH came with me as I was in the middle
Hidden
in
Thyroid UK
10 months ago
Chlorella
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
Vonni7
in
Pernicious Anaemia Society
4 months ago
New to the group - looking for some realistic advice on recovery time after loading doses
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
ClaireWF1346
in
Pernicious Anaemia Society
4 months ago
Folate supplements with B12 injections
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
I am currently receiving loading doses (3 so far). I was low on B12 at 170 and low on folate (about 2) as well as macrocytic but not anaemic. Incidentally, I have low WBC but they are not sure if this is due to a bad infection a couple of months ago.I have been prescribed folate supplements but I didn't
La2016
in
Pernicious Anaemia Society
4 months ago
Thanks to all the advice on here
I think I'm getting to a better place - many thanks to all the people giving advice given on here. My meds/supplements include: 100mcg levo, 10mcg liothyronine (which i might increase to 15 mcg), vit b12/folate lozenge), vit D/k2 spray, glucosamine/chondroitin, calcium), new heart meds (disopyramide
I think I'm getting to a better place - many thanks to all the people giving advice given on here. My meds/supplements include: 100mcg levo, 10mcg liothyronine (which i might increase to 15 mcg), vit b12/folate lozenge), vit D/k2 spray, glucosamine/chondroitin, calcium), new heart meds (disopyramide
bikebabe
in
Thyroid UK
10 months ago
Can high B12 levels actually turn out to be B12 deficiency.
Hi M54 Have recently got bloods back from medichecks was an advanced thyroid test. Have basically suffered from an under active thyroid for over 4 years, symptoms including fatigue, depression, insomnia and always feeling cold. However recently have suffered from memory and concentration problems
Hi M54 Have recently got bloods back from medichecks was an advanced thyroid test. Have basically suffered from an under active thyroid for over 4 years, symptoms including fatigue, depression, insomnia and always feeling cold. However recently have suffered from memory and concentration problems
gerrycrilley1
in
Pernicious Anaemia Society
8 months ago
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