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Renal Replacement Therapy
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Total Hip Replacement Decision
Hello Friends, I have ET-MPL 515L, and this is year 10 with the disease, and I am doing well thanks to Pegasys. I have been informed, due to arthritis, I need a total hip replacement. Those of us with MPN's are at increased risk of vertebrae and hip fractures, YIKES! In discussions with my Oncologist
Hello Friends, I have ET-MPL 515L, and this is year 10 with the disease, and I am doing well thanks to Pegasys. I have been informed, due to arthritis, I need a total hip replacement. Those of us with MPN's are at increased risk of vertebrae and hip fractures, YIKES! In discussions with my Oncologist
Indigo42916
in
MPN Voice
4 months ago
Thyroid and the Menstrual Cycle?
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
JUUJOO
in
Thyroid UK
8 months ago
income options while waiting for treatment
My employer finally terminated my contract last month because of the nature of my job and the deteriorating condition of my knee. I have tricompartmental osteoarthritis in my knee which has now got to the point where every step I take is sore, my job was contracting to a large company working on kitchen
My employer finally terminated my contract last month because of the nature of my job and the deteriorating condition of my knee. I have tricompartmental osteoarthritis in my knee which has now got to the point where every step I take is sore, my job was contracting to a large company working on kitchen
Wolf68
in
Arthritis Action
1 month ago
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How I reinvented myself after PMR
This is per your request, PMRPro to add to your collection of our stories. See below: Sorry, don't know how to do a link so maybe you can cut and paste this. "Reinventing myself with PMR" - I have had PMR for 9 years, starting at age 62. It hit overnight like a sledgehammer and stopped me in my very
This is per your request, PMRPro to add to your collection of our stories. See below: Sorry, don't know how to do a link so maybe you can cut and paste this. "Reinventing myself with PMR" - I have had PMR for 9 years, starting at age 62. It hit overnight like a sledgehammer and stopped me in my very
artfingers
in
PMRGCAuk
5 months ago
What age to start HRT
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Bassem1979
in
Menopause and Perimenopause Support
8 months ago
Weird 6 day Miracale
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
Shumbah
in
Restless Legs Syndrome
9 months ago
Endo & HRT
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
meme2
in
Endometriosis UK
9 months ago
Rotigitine Patches
Happy New year everyone. I have had Restless Legs now for many years and in the beginning was given several drugs. Many years ago I went to see Dr Fackrell privately in Bath and he diagnosed me as having severe restless legs and put me on Rotigitine Patches, which over the years have been pretty
Happy New year everyone. I have had Restless Legs now for many years and in the beginning was given several drugs. Many years ago I went to see Dr Fackrell privately in Bath and he diagnosed me as having severe restless legs and put me on Rotigitine Patches, which over the years have been pretty
Gonzo123
in
Restless Legs Syndrome
5 months ago
Steve 6 and a half years since heart failure.
My heart problems materialised when my customer said to me you look terrible as I wheeled a barrow up a ramp with heavy concrete blocks. Next morning I was in a ward being told I had heart failure. Was a shock and after 2 years on meds was finally sent in for a aortic root and valve replacement. So
My heart problems materialised when my customer said to me you look terrible as I wheeled a barrow up a ramp with heavy concrete blocks. Next morning I was in a ward being told I had heart failure. Was a shock and after 2 years on meds was finally sent in for a aortic root and valve replacement. So
Bobbymrg
in
British Heart Foundation
5 months ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
9 months ago
Zoladex delay
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Saffie123
in
Endometriosis UK
9 months ago
Brain tumors galore, cushings disease
I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disease. Tumour removed 1st June 2023. Very successful and cured Cushings Disease - lots of symptoms resolved eg. lost 25 kilos (4 stone) in weight, quality of skin improved etc. Also discovered two other brain tumours - one
I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disease. Tumour removed 1st June 2023. Very successful and cured Cushings Disease - lots of symptoms resolved eg. lost 25 kilos (4 stone) in weight, quality of skin improved etc. Also discovered two other brain tumours - one
Audrey8Claude
in
The Brain Tumour Charity
5 months ago
Panic and panic attacks
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
jaxie28
in
Thyroid UK
9 months ago
Anxiety/peri menopause
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
Bassem1979
in
Menopause and Perimenopause Support
9 months ago
Angina, low dose aspirin
Was diagnosed with angina in 2022 stent fitted to LAD. Fast forward to now. Needing knee replacement, had a pre assessment appointment in december, went in thinking I would be offered surgery on jan. Blood test came back as low iron. Saw anesthetist who was happy regards heart but spoke to colorectal
Was diagnosed with angina in 2022 stent fitted to LAD. Fast forward to now. Needing knee replacement, had a pre assessment appointment in december, went in thinking I would be offered surgery on jan. Blood test came back as low iron. Saw anesthetist who was happy regards heart but spoke to colorectal
annpavitt250448
in
British Heart Foundation
5 months ago
Amitriptyline! Treatment for nerve damage.Anyone had this for nerve damage?
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
K2023
in
Endometriosis UK
9 months ago
Dad’s story
I’m writing on behalf of my dad who was diagnosed with rheumatoid arthritis back in 1982 when he was 28. He managed his condition very well with no medication, just diet and a healthy lifestyle until things started getting worse around 12 years ago. He was put on a medication which controlled things
I’m writing on behalf of my dad who was diagnosed with rheumatoid arthritis back in 1982 when he was 28. He managed his condition very well with no medication, just diet and a healthy lifestyle until things started getting worse around 12 years ago. He was put on a medication which controlled things
Milly123W
in
NRAS
5 months ago
perimenopause and heart stuff!
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
Mangojamontoast
in
British Heart Foundation
9 months ago
RLS and Glyxambi: empagliflozin 25 mg linagliptin 5mg
Hi every one. I have been on some diabetic medication for some time and wonder if anyone has any feedback on it especially with regard to the effect on RLS symptoms. I'm still having some irritating restlessness at night sometimes till 3 or 4 am and I'm grasping at straws. I've been able to add a
Hi every one. I have been on some diabetic medication for some time and wonder if anyone has any feedback on it especially with regard to the effect on RLS symptoms. I'm still having some irritating restlessness at night sometimes till 3 or 4 am and I'm grasping at straws. I've been able to add a
restlessstoz
in
Restless Legs Syndrome
5 months ago
Zoladex and HRT
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Sunset-lady
in
Endometriosis UK
9 months ago
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