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Hi, I live in the US (Texas) and was diagnosed with APS/Hughes in 2011 after a series of surgeries, bleeding and blood transfusions. Apparently I had a DVT in my groin. It was very small (microclot?) and I wasn't given anything other than baby aspirin daily which I have been on consistently since.
Hi, I live in the US (Texas) and was diagnosed with APS/Hughes in 2011 after a series of surgeries, bleeding and blood transfusions. Apparently I had a DVT in my groin. It was very small (microclot?) and I wasn't given anything other than baby aspirin daily which I have been on consistently since.
junipers76
in
Hughes Syndrome APS Forum
9 years ago
Need some advice
Hi there looking for some advice i had oophorectomy in 2007 went to theatre for laparoscopy woke up in recovery I had had full section and cyst and my right ovary removed,I fell pregnant months later and and had my beautiful girl.since then my weight has went up and over the last 3 years I have had
Hi there looking for some advice i had oophorectomy in 2007 went to theatre for laparoscopy woke up in recovery I had had full section and cyst and my right ovary removed,I fell pregnant months later and and had my beautiful girl.since then my weight has went up and over the last 3 years I have had
Leah87
in
Endometriosis UK
9 years ago
Nightmare Night Sweats
I am worried 4 years ago I had a large endometroma removed and oopherectomy no real from problems since then. However, in the last few weeks I have had terrible night sweats. All blood works and MSU have returned normal. Only hope there's nothing going on with my final ovary. Would be pretty bad
I am worried 4 years ago I had a large endometroma removed and oopherectomy no real from problems since then. However, in the last few weeks I have had terrible night sweats. All blood works and MSU have returned normal. Only hope there's nothing going on with my final ovary. Would be pretty bad
derbalbert
in
Endometriosis UK
9 years ago
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HRT
Hi I'm a bit of a surgery veteran, having had 2 laprascopys a ovarian cyst removal and an hysterectomy. Today, after a long trial on hormone treatment (Zoladex and progesterone) I am now on the waiting list for a laparotic bilateral oophorectomy. I was wondering if anyone has had success with
Hi I'm a bit of a surgery veteran, having had 2 laprascopys a ovarian cyst removal and an hysterectomy. Today, after a long trial on hormone treatment (Zoladex and progesterone) I am now on the waiting list for a laparotic bilateral oophorectomy. I was wondering if anyone has had success with
katie1976crunch
in
Endometriosis UK
9 years ago
No better after treatment
Hi ladies, I'm struggling here, had a laparoscopy, D&C & hysteroscopy & polypectomy 6 weeks ago, found only small amount of old endo on uterine ligaments, however they put coil in for treatment. Since then nothing has changed, i've had pretty much constant bleeding or spotting, 2 periods which were heavy
Hi ladies, I'm struggling here, had a laparoscopy, D&C & hysteroscopy & polypectomy 6 weeks ago, found only small amount of old endo on uterine ligaments, however they put coil in for treatment. Since then nothing has changed, i've had pretty much constant bleeding or spotting, 2 periods which were heavy
Redcat15
in
Endometriosis UK
9 years ago
Can't decide on full or partial hysterectomy!
Hi, any advice very welcome. I'm Having a hysterectomy in 2 weeks snd have to decide whether to keep an ovary or not. I'm 46. My doctor wants to do a full hysterctomy with accompanying endo excision( he's experienced). My huge worry is headaches. I've been on prostap with oestrogen patches as ad-back
Hi, any advice very welcome. I'm Having a hysterectomy in 2 weeks snd have to decide whether to keep an ovary or not. I'm 46. My doctor wants to do a full hysterctomy with accompanying endo excision( he's experienced). My huge worry is headaches. I've been on prostap with oestrogen patches as ad-back
efagrug
in
Endometriosis UK
9 years ago
Recently diagnosed with stage 4 Endo
I have just had a Diagnostic Laproscopy and Hysteroscopy with Biopsy 4 days ago and have been told by consultant gynie that I have severe endo which has attached itself to a number of my reproductive organs, bladder and bowel. I also had a over 8cm endometrioma (chocolate Cyst) drained as he couldn't
I have just had a Diagnostic Laproscopy and Hysteroscopy with Biopsy 4 days ago and have been told by consultant gynie that I have severe endo which has attached itself to a number of my reproductive organs, bladder and bowel. I also had a over 8cm endometrioma (chocolate Cyst) drained as he couldn't
skt68
in
Endometriosis UK
9 years ago
Questions relating to post op and recovery time symptoms.
Hello I am 52 and had my Full oophorectomy and abdominal hysterectomy following unstoppable heavy period and enormous fibroids. I consider myself very lucky to have had a non eventful and successful operation and recovery and returned to work on a reduced timetable in February, the reason for this post
Hello I am 52 and had my Full oophorectomy and abdominal hysterectomy following unstoppable heavy period and enormous fibroids. I consider myself very lucky to have had a non eventful and successful operation and recovery and returned to work on a reduced timetable in February, the reason for this post
Smilersmum
in
Healthy Happy Woman
9 years ago
Advice on thyroid and appendectomy surgery
Hi I'm new here I need some advice I had my thyroid removed in sept 2009 goitre that was cancerous I'm currently taking 175mg of thyroxine On 10th march I had surgery for appendix and ovary removal I felt ok after surgery not to bad but it got infected and had to go on heavy antibiotics and a lot of
Hi I'm new here I need some advice I had my thyroid removed in sept 2009 goitre that was cancerous I'm currently taking 175mg of thyroxine On 10th march I had surgery for appendix and ovary removal I felt ok after surgery not to bad but it got infected and had to go on heavy antibiotics and a lot of
Summerjay
in
Thyroid UK
9 years ago
Left ovary removal, pain in leg, groin back. Feel down :-(
Diagnosed with cycts on both ovaries in 2012 removal of cycts successful came back large on left removal of ovary scheduled Nov 2012.woke up from op nothing donem. Anthroscopickly couldn't get in ovary stuck to bowl Endo disgnised. Back in 2 weeks later 22 staples across tummy. 2years 4 mo this later
Diagnosed with cycts on both ovaries in 2012 removal of cycts successful came back large on left removal of ovary scheduled Nov 2012.woke up from op nothing donem. Anthroscopickly couldn't get in ovary stuck to bowl Endo disgnised. Back in 2 weeks later 22 staples across tummy. 2years 4 mo this later
Looo
in
Endometriosis UK
10 years ago
Letrozole
Hi have not posted on here before but wondered if anyone had been given Letrozole after being found to platinum resistant I think it is called. I have had 18 sessions of chemo but it has not been a huge success so am now taking Letrozole daily to try and slow growth down. I was diagnosed with ovarian
Hi have not posted on here before but wondered if anyone had been given Letrozole after being found to platinum resistant I think it is called. I have had 18 sessions of chemo but it has not been a huge success so am now taking Letrozole daily to try and slow growth down. I was diagnosed with ovarian
5gems
in
My Ovacome
10 years ago
Stage IV Endo - hysterectomy
Hi - I have always had painful periods (that made me sick & pass out frequently) and after a particularly bad one where I couldn't get out of bed I was diagnosed with an ovarian cyst that was removed during surgery when I was 25. This was when they diagnosed stage IV Endo. I'm extremely lucky that I
Hi - I have always had painful periods (that made me sick & pass out frequently) and after a particularly bad one where I couldn't get out of bed I was diagnosed with an ovarian cyst that was removed during surgery when I was 25. This was when they diagnosed stage IV Endo. I'm extremely lucky that I
Endonaw
in
Endometriosis UK
10 years ago
Uterine Polyp Removed today...
Hi Ladies, What are the chances of getting pregnant after Uterine polyp removal ? Any ideas or experience to share? I got my uterine polyp (1 cm) removed today.
Hi Ladies, What are the chances of getting pregnant after Uterine polyp removal ? Any ideas or experience to share? I got my uterine polyp (1 cm) removed today.
BabyHope
in
Fertility Network UK
10 years ago
PROGESTOGEN ONLY PILL
Hi all, I would love to hear from anyone who has had experience of the progestogen only pill. Did it work in reducing the endo growths, stopping periods, relieving pain, or have any side effects, or anything else that anyone would like to share. Just a brief summary of my experience so far. I am 38.
Hi all, I would love to hear from anyone who has had experience of the progestogen only pill. Did it work in reducing the endo growths, stopping periods, relieving pain, or have any side effects, or anything else that anyone would like to share. Just a brief summary of my experience so far. I am 38.
Janae15
in
Endometriosis UK
10 years ago
Surgical Menopause without hrt
Hi, I'm looking for information on getting through surgical menopause without hrt as I am having ovaries/fallopian tubes removed due to brca1. I am unable to take hrt due to having blood clot caused by Contraception injection. Any good advice will be greatly appreciated. thanks Sarah
Hi, I'm looking for information on getting through surgical menopause without hrt as I am having ovaries/fallopian tubes removed due to brca1. I am unable to take hrt due to having blood clot caused by Contraception injection. Any good advice will be greatly appreciated. thanks Sarah
speacock36
in
My Ovacome
10 years ago
Endometriosis on/ in small bowel
Hello I wondered if anyone has been diagnosed with this. After many laps I had another one a week or so and surgeon found endo on and suspects within the small. Bowel.He did say surgery on small bowel is more tricky than that on the larger bowel. I do have an appointment with him next week and I do
Hello I wondered if anyone has been diagnosed with this. After many laps I had another one a week or so and surgeon found endo on and suspects within the small. Bowel.He did say surgery on small bowel is more tricky than that on the larger bowel. I do have an appointment with him next week and I do
mablesky
in
Endometriosis UK
10 years ago
Got the call for Surgery, Yahoo!
How twisted is that to be excited about getting a date for surgery! But after 9 and a half months of pain I'm ready. The hospital had an opening sooner than I was expecting. So next Tuesday, after it being 11 years since my last surgery I don't know what I could be in for, maybe it's nothing, maybe it
How twisted is that to be excited about getting a date for surgery! But after 9 and a half months of pain I'm ready. The hospital had an opening sooner than I was expecting. So next Tuesday, after it being 11 years since my last surgery I don't know what I could be in for, maybe it's nothing, maybe it
givemeananswer
in
Endometriosis UK
10 years ago
Told I had ovarian cancer but after major surgery it was severe endometriosis
Hi After being admitted to hospital late November with suspected gallstones it was discovered that I had blood clot in lung and then told I had ovarian cysts. My ca125 count was over 6000 and after mri and ct and pet scan and oncologist appointments who all said it was ovarian cancer. Had a radical
Hi After being admitted to hospital late November with suspected gallstones it was discovered that I had blood clot in lung and then told I had ovarian cysts. My ca125 count was over 6000 and after mri and ct and pet scan and oncologist appointments who all said it was ovarian cancer. Had a radical
Sunshinegirl00
in
Endometriosis UK
10 years ago
Lymphoedema in pubic area and top of thighs
Hi Mum still suffering very badly after vulval cancer and bi-lateral lymph node removal 8 months ago.Severe swelling in pubic area and underneath causing pain and skin to go red. Can anything be done to move the fluid from this area? Tried spanx but too painful to wear. She cries for hours every day.
Hi Mum still suffering very badly after vulval cancer and bi-lateral lymph node removal 8 months ago.Severe swelling in pubic area and underneath causing pain and skin to go red. Can anything be done to move the fluid from this area? Tried spanx but too painful to wear. She cries for hours every day.
marvi1970
in
LSN
10 years ago
Hand and arm swelling
After a mastectomy and lymph node removal in June 2014 I've developed lymphoedema in my hand and arm. I finished radio therapy at the end of nov 2014. My Lymphoedema nurse has prescribed garments which I wear religiously. She has told me that we now need to give things three months to settle down. I
After a mastectomy and lymph node removal in June 2014 I've developed lymphoedema in my hand and arm. I finished radio therapy at the end of nov 2014. My Lymphoedema nurse has prescribed garments which I wear religiously. She has told me that we now need to give things three months to settle down. I
Fit4eva
in
LSN
10 years ago
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