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Managing OAB after proton RT
Hello everyone, This 73 year old treated an unfavorable intermediate localized PCa with 28 fractions of proton radiation, completed on Dec. 15th. Completed a 4 months course of oral Orgovyx on Dec. 28th. The side effects of the ADT were hot flashes (tolerable) and loss of libido. The side effects
Hello everyone, This 73 year old treated an unfavorable intermediate localized PCa with 28 fractions of proton radiation, completed on Dec. 15th. Completed a 4 months course of oral Orgovyx on Dec. 28th. The side effects of the ADT were hot flashes (tolerable) and loss of libido. The side effects
old_reliable
in
Prostate Cancer Network
6 months ago
Will T return?
As I near the end of my 2 years of ADT (Lupron + Abi), I am curious if I should expect a return of Testosterone. I would love to regain my libido and endurance. But after 2 years, I don't know what to expect. My MO has been pretty vague about what to expect. Another issue is that I didn't have a
As I near the end of my 2 years of ADT (Lupron + Abi), I am curious if I should expect a return of Testosterone. I would love to regain my libido and endurance. But after 2 years, I don't know what to expect. My MO has been pretty vague about what to expect. Another issue is that I didn't have a
jmarsh
in
Advanced Prostate Cancer
6 months ago
Breathing Problems
Hello everyone, I'm a long term severe asthmatic, chronic pain and spasms sufferer with many other medical conditions, I just wanted ask a question, I currently suffer from chronic pain and severe asthma, I sometimes get the following symptoms, shortness of breath, tight chest, ect, when I get up on
Hello everyone, I'm a long term severe asthmatic, chronic pain and spasms sufferer with many other medical conditions, I just wanted ask a question, I currently suffer from chronic pain and severe asthma, I sometimes get the following symptoms, shortness of breath, tight chest, ect, when I get up on
Giggles-Wig
in
Lung Conditions Community Forum
8 months ago
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PSA 6 months after RT
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
janebob99
in
Prostate Cancer Network
6 months ago
Testosterone was nearly back to normal, then dropped
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
Teddy28
in
Advanced Prostate Cancer
6 months ago
Radiation 10+ years after initial imrt
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Tommyj2
in
Advanced Prostate Cancer
3 months ago
BONE DENSITY TEST IS BAD
I am 68 with low volume metastatic to hip bones. Nothing elsewhere, at this time. Had PSA of 125 last April, and oncologist put me on Relogolix and Darolutemide. That along with going to plant based diet and adding weights and HITT exercise 3-4x per week, has brought me down to < .006. that’s the
I am 68 with low volume metastatic to hip bones. Nothing elsewhere, at this time. Had PSA of 125 last April, and oncologist put me on Relogolix and Darolutemide. That along with going to plant based diet and adding weights and HITT exercise 3-4x per week, has brought me down to < .006. that’s the
JL1955
in
Advanced Prostate Cancer
6 months ago
Holding very low stable usPSA - 0.03X range for six years; no ADT, no chemo.
Eight years ago this month had RP after considerable investigation - nadir 0.050. Eleven months later had salvage RT; done at 0.10. Then after a year of pondering ADT and chemo, when my usPSA was back up to 0.10, I went to Europe for Ferrotran nano-MRI combined with Ga68 PSMA. The nanoMRI lite up
Eight years ago this month had RP after considerable investigation - nadir 0.050. Eleven months later had salvage RT; done at 0.10. Then after a year of pondering ADT and chemo, when my usPSA was back up to 0.10, I went to Europe for Ferrotran nano-MRI combined with Ga68 PSMA. The nanoMRI lite up
NanoMRI
in
Advanced Prostate Cancer
6 months ago
Anyone tried hyperbaric Oxygen therapy?
My bestie who is battling ovarian cancer is using this as part of her overcoming cancer plan and reckons it really helps. It gives her a boost of energy and seemes to have helped get her through the chemo stages with hardly any fatigue or sickness. It seems to be endorsed at least unofficially by many
My bestie who is battling ovarian cancer is using this as part of her overcoming cancer plan and reckons it really helps. It gives her a boost of energy and seemes to have helped get her through the chemo stages with hardly any fatigue or sickness. It seems to be endorsed at least unofficially by many
tangocharlie
in
PMRGCAuk
8 months ago
Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
Blood test prep
Hi, Please can someone remind me what I need to stop taking before thyroid blood tests are carried out? I’m currently taking HRT transdermal oestrogen, DHEA tablets and progesterone tablets. I also started taking b vit complex, methylated folate, niacinimide, omega oils. I’m undiagnosed currently
Hi, Please can someone remind me what I need to stop taking before thyroid blood tests are carried out? I’m currently taking HRT transdermal oestrogen, DHEA tablets and progesterone tablets. I also started taking b vit complex, methylated folate, niacinimide, omega oils. I’m undiagnosed currently
Fizzwhizz
in
Thyroid UK
6 months ago
Enzalutimide and Amolidipine
Hi back again and you have heard it before but this time something new has been found which l wanted to share Wrote after Xmas re husband being on 160mg as 2nd add on to Adt due to CRPC . 12 Weeks in and Blood Pressure went off the wall, we were given a prescription of 5mg Amolidipine which did nothing
Hi back again and you have heard it before but this time something new has been found which l wanted to share Wrote after Xmas re husband being on 160mg as 2nd add on to Adt due to CRPC . 12 Weeks in and Blood Pressure went off the wall, we were given a prescription of 5mg Amolidipine which did nothing
Knittingque
in
Advanced Prostate Cancer
6 months ago
More Evidence Linking ADT for PCa to Adverse Neurocognitive Effects -Meta-analysis shows increased risk of dementia, Parkinson's, depression
[i]As if we needed more reasons to dislike or avoid ADT, here is additional evidence of negative neurocognitive effects. This MedPage Today article will expecially be of special interest to those of us well into our "Golden Years" and on or considering ADT. [/i]
More Evidence Linking ADT for Prostate
[i]As if we needed more reasons to dislike or avoid ADT, here is additional evidence of negative neurocognitive effects. This MedPage Today article will expecially be of special interest to those of us well into our "Golden Years" and on or considering ADT. [/i]
More Evidence Linking ADT for Prostate
cujoe
in
Fight Prostate Cancer
6 months ago
QoLing on a Prayer - a year later & PSA update
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
dockam
in
Advanced Prostate Cancer
3 months ago
given a choice about duration of ADT
Tall Allen and others. Clean PSMA, , 3+4, 3+4, and 4+3., biopsy. 77yrs old, hit gym daily but have significant side effects of lupron.. Being treated at Comprensive cancer center. Plan was one year of Lupron. After five SBRT, and nine months on adt, my doc is willing to let me terminate my Lupron
Tall Allen and others. Clean PSMA, , 3+4, 3+4, and 4+3., biopsy. 77yrs old, hit gym daily but have significant side effects of lupron.. Being treated at Comprensive cancer center. Plan was one year of Lupron. After five SBRT, and nine months on adt, my doc is willing to let me terminate my Lupron
Photographerhere
in
Prostate Cancer Network
6 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
3 months ago
Endometriosis, HRT and Mirena coil.
Hello.After starting HRT about a year ago, I started symptoms of Endometriosis. In November I had a large Endometriosis cyst, ovary and tube removal through laparoscopy. The laparoscopy also discovered further cysts and evidence of Endometriosis apparent which was decided not to be touch whilst having
Hello.After starting HRT about a year ago, I started symptoms of Endometriosis. In November I had a large Endometriosis cyst, ovary and tube removal through laparoscopy. The laparoscopy also discovered further cysts and evidence of Endometriosis apparent which was decided not to be touch whilst having
Finechina
in
Endometriosis UK
6 months ago
Are Lymph nodes a filter?
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Aldo62
in
Advanced Prostate Cancer
6 months ago
Recovery of Testosterone
We all have heard about how long it takes to recover testosterone after you stop ADT. You probably also heard how age affects recovery time. The older you are the longer it takes and the T may never recover. The type of ADT you take can also affect recovery time - shot versus pill. I am 78 and I have
We all have heard about how long it takes to recover testosterone after you stop ADT. You probably also heard how age affects recovery time. The older you are the longer it takes and the T may never recover. The type of ADT you take can also affect recovery time - shot versus pill. I am 78 and I have
Mgtd
in
Prostate Cancer Network
6 months ago
Discussion about SHARE webinar: "Understanding Uterine Cancer Treatment Options" What would you like to learn more about?
For your convenience, here is the link: https://www.sharecancersupport.org/understanding-uterine-cancer-treatment-options-video/ Such a great presentation with lots information. I keep having to go back and look at it. It's one of the few webinars that even talk about my treatment option and talks
For your convenience, here is the link: https://www.sharecancersupport.org/understanding-uterine-cancer-treatment-options-video/ Such a great presentation with lots information. I keep having to go back and look at it. It's one of the few webinars that even talk about my treatment option and talks
Merma
Moderator
in
SHARE Uterine Cancer Support
6 months ago
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