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What is the saddest part of depression for you?
The saddest part of depression for me is having everything in the world....adoring husband, wonderful adult children, a gorgeous grandchild who is a joy, more money than I will ever need, etc.....yet feeling absolutely no joy at all, not enjoying the things you used to, never laughing, wanting to live
The saddest part of depression for me is having everything in the world....adoring husband, wonderful adult children, a gorgeous grandchild who is a joy, more money than I will ever need, etc.....yet feeling absolutely no joy at all, not enjoying the things you used to, never laughing, wanting to live
Hidden
in
Anxiety and Depression Support
3 years ago
Jaw pain with PSP?
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
WindyGirl
in
PSP Association
4 years ago
Disc Haemorrhage and Eye/Head Pains
I have a family history of Glaucoma and have been monitored by a hospital since since 2017. Last November, my local optician found a haemorrhage in right eye rim of optic disk. Things were OK at the time but since then there has been an increase in head aches, in particular around the right eye. My
I have a family history of Glaucoma and have been monitored by a hospital since since 2017. Last November, my local optician found a haemorrhage in right eye rim of optic disk. Things were OK at the time but since then there has been an increase in head aches, in particular around the right eye. My
RoyBen
in
Glaucoma UK
4 years ago
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Eylea experiences please
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
Hidden
in
Macular Society
4 years ago
Positive outcome
Had a telephone consultation with my rumy on Monday inflammation markers down enough to start reducing steroids 5mg per week looks like the Tocilìzumab is going to work for me next treatment Monday 15th March. I am a little concerned about the light sensitivity in my left eye the 1 I lost the sight
Had a telephone consultation with my rumy on Monday inflammation markers down enough to start reducing steroids 5mg per week looks like the Tocilìzumab is going to work for me next treatment Monday 15th March. I am a little concerned about the light sensitivity in my left eye the 1 I lost the sight
Rosh99
in
PMRGCAuk
4 years ago
Ceptava Mycophenolic acid
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Dear all Is anyone taking this above medication for lupus or RA ? Please can anyone give me any experience of using this medication ? I was given Mycohenolate leaflet by rheumatologist last Thursday . Yet my the pharmacist at the hospital had given me the Mycophenolic acid ? I enclose a photo of
Willow1414
in
LUPUS UK
4 years ago
White bump on retina
Hello. I keep joining this site, posting and then leaving it as I’m too scared to see the responses. So I’ve been having a few issues with my eyesight. I’m very myopic and had retinal detachments nearly 30 years ago. All going great until about 4 years ago when my vision began to deteriorate. Cataracts
Hello. I keep joining this site, posting and then leaving it as I’m too scared to see the responses. So I’ve been having a few issues with my eyesight. I’m very myopic and had retinal detachments nearly 30 years ago. All going great until about 4 years ago when my vision began to deteriorate. Cataracts
SueDev
in
Macular Society
4 years ago
About two weeks ago I had Botox shots around my eyes. Two week later-I am not able to see clearly, blurred vision dry eyes. Is this PSP?
Since my last visit with my Neurologist, two weeks ago, I have not been able to see clearly. At that visit he injected Botox shots around my eyes to prevent them from closing. I have never had a side effect from the injections My vision is blurred, my eyes feel dry, they water, are swollen and I have
Since my last visit with my Neurologist, two weeks ago, I have not been able to see clearly. At that visit he injected Botox shots around my eyes to prevent them from closing. I have never had a side effect from the injections My vision is blurred, my eyes feel dry, they water, are swollen and I have
JaydeeGee
in
PSP Association
4 years ago
Going through a rough time
I’m going through a rough time right now with depression primarily. It’s a chronic problem and has progressed to be quite severe over the past 3 years. To where I’m barely able to take care of myself (I’m talking about bathing, brushing my teeth type things, let alone major things like work and having
I’m going through a rough time right now with depression primarily. It’s a chronic problem and has progressed to be quite severe over the past 3 years. To where I’m barely able to take care of myself (I’m talking about bathing, brushing my teeth type things, let alone major things like work and having
Ronny11
in
Anxiety and Depression Support
3 years ago
Inflammation reducing diets
I’m wondering whether there is actually any published peer reviewed scientific evidence rather than anecdotal to show that ANY diet affects PMR and inflammation? I can see than eating less of fatty and sugary foods would lead to weight loss itself . However both my GP and Rheumatologist says leaving
I’m wondering whether there is actually any published peer reviewed scientific evidence rather than anecdotal to show that ANY diet affects PMR and inflammation? I can see than eating less of fatty and sugary foods would lead to weight loss itself . However both my GP and Rheumatologist says leaving
Breconblue
in
PMRGCAuk
4 years ago
Bloodshot eye
I had an Eylea injection to my left eye on Monday and it became very bloodshot straight away. The white of my eye is a very dark red. It’s now Saturday and it is not getting any better. The nurse who did the injection said it would take a few days to clear. Could anyone advise me how long it will take
I had an Eylea injection to my left eye on Monday and it became very bloodshot straight away. The white of my eye is a very dark red. It’s now Saturday and it is not getting any better. The nurse who did the injection said it would take a few days to clear. Could anyone advise me how long it will take
photomon9
in
Macular Society
4 years ago
Prednisone Induced Myopathy PIM
Hello GCA buddies. I met with my new rheumy yesterday and she feels I might have PIM. Does anyone have experience with this? I am seeing her in person in 2 weeks. Til then, stick w the current prednisone and cut out the Actemra. Then she will do blood tests to see where I am at. Feeling like
Hello GCA buddies. I met with my new rheumy yesterday and she feels I might have PIM. Does anyone have experience with this? I am seeing her in person in 2 weeks. Til then, stick w the current prednisone and cut out the Actemra. Then she will do blood tests to see where I am at. Feeling like
alvertta
in
PMRGCAuk
4 years ago
Anyone had to massage eye themselves post trabeculectomy ?
Hi hope everyone is doing ok? I have just had my one week post trabeculectomy check up and I am healing well, possibly too well !!! My IOP was up at 30 but consultant got it down to 10 by massaging lower lid. I bled a lot during op and needed a massage following day to break up blood clot which was
Hi hope everyone is doing ok? I have just had my one week post trabeculectomy check up and I am healing well, possibly too well !!! My IOP was up at 30 but consultant got it down to 10 by massaging lower lid. I bled a lot during op and needed a massage following day to break up blood clot which was
Hidden
in
Glaucoma UK
4 years ago
Breathless while walking
Breathless when walking Recently I notice more and more being out of breath while walking. I take apixaban and perindopril I have asymptomatic AF and I am a 72 years female. I just wonder if this is due to age or has my AF deteriorated. To get a GP appointment is difficult at this time. Has anyone
Breathless when walking Recently I notice more and more being out of breath while walking. I take apixaban and perindopril I have asymptomatic AF and I am a 72 years female. I just wonder if this is due to age or has my AF deteriorated. To get a GP appointment is difficult at this time. Has anyone
emsling
in
AF Association
4 years ago
Hi everyone...I am 26 years old and last year was diagnosed with myopic CNV and PIC in my left eye...
Hi everyone... I am 26 years old and last year was diagnosed with myopic CNV and PIC in my left eye. I’ve just had my 6th Lucentis injection. I am going back to see the doctor next week to discuss immunosuppressant treatment. I would be keen to know anyone’s experience from taking these? (The side
Hi everyone... I am 26 years old and last year was diagnosed with myopic CNV and PIC in my left eye. I’ve just had my 6th Lucentis injection. I am going back to see the doctor next week to discuss immunosuppressant treatment. I would be keen to know anyone’s experience from taking these? (The side
Janki_x
in
Macular Society
4 years ago
High IOP’s but NOT GLAUCOMA. Why continue with drops?
Hi all, So I have had a first appt with a glaucoma consultant (went private) due to waiting time on NHS - was the SAME consultant I had been referred to on NHS! My history - Previously had cataracts (both ages 18 now 50) and lens implants both eyes. Then retinal detachments both eyes and artisan lens
Hi all, So I have had a first appt with a glaucoma consultant (went private) due to waiting time on NHS - was the SAME consultant I had been referred to on NHS! My history - Previously had cataracts (both ages 18 now 50) and lens implants both eyes. Then retinal detachments both eyes and artisan lens
Tiger31
in
Glaucoma UK
4 years ago
Dental Problems with Behçet’s
Please take the time to read I know this is a long post but I really need help. I have had the effects of Behçet’s since 2009 and because of the pain in my mouth I spent almost 5 years completely unable to use toothpaste or a toothbrush I was only able to use interdental brushes on top of that the only
Please take the time to read I know this is a long post but I really need help. I have had the effects of Behçet’s since 2009 and because of the pain in my mouth I spent almost 5 years completely unable to use toothpaste or a toothbrush I was only able to use interdental brushes on top of that the only
paige1991
in
Vasculitis UK
4 years ago
Eye problems and dry mouth etc
Hello again to this lovely forum which has been so supportive. As you may know from my previous posts , I have had Graves’ disease for 22 years and am on Carbimazole , having refused the alternative treatments. Over the past few weeks I have started having increasing eye problems - these came to a
Hello again to this lovely forum which has been so supportive. As you may know from my previous posts , I have had Graves’ disease for 22 years and am on Carbimazole , having refused the alternative treatments. Over the past few weeks I have started having increasing eye problems - these came to a
Bananas4ski
in
Thyroid UK
4 years ago
Not coping
Been diagnosed since December just crying all the time. Convinced I will go blind
Been diagnosed since December just crying all the time. Convinced I will go blind
Hidden
in
Glaucoma UK
4 years ago
Appointment
I was diagnosed with Glaucoma in December so scared. They say they have caught it early my optician found the glaucoma. Went to the hospital and they done tests and also said my optician was very good and catching this. They have me drops Lantanprost preservative free. One drop each night in each eye
I was diagnosed with Glaucoma in December so scared. They say they have caught it early my optician found the glaucoma. Went to the hospital and they done tests and also said my optician was very good and catching this. They have me drops Lantanprost preservative free. One drop each night in each eye
Hidden
in
Glaucoma UK
4 years ago
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