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ED Recovery -- Are there signs of improvement?
Really, it's a two part question: (1) For those of you who had a radical prostatectomy, how many have recovered to where an erection capable of penetration without pills, needles, implants, etc has occurred? (2) If you have recovered erectile capability, was it an "overnight" event, or are there signals
Really, it's a two part question: (1) For those of you who had a radical prostatectomy, how many have recovered to where an erection capable of penetration without pills, needles, implants, etc has occurred? (2) If you have recovered erectile capability, was it an "overnight" event, or are there signals
baw1955
in
Prostate Cancer Network
5 years ago
HDT DOSING : How Much Should We Take??? A Reference Page To Add Your Dosing Information To
With Dr. Costantini unavailable for consults due to his current health, the HU Forum and others have a definite need for HDT dosing information that other members can use as a guideline. I am asking all members who are currently testing or using HDT to please post any dosing information that you feel
With Dr. Costantini unavailable for consults due to his current health, the HU Forum and others have a definite need for HDT dosing information that other members can use as a guideline. I am asking all members who are currently testing or using HDT to please post any dosing information that you feel
Hidden
in
Cure Parkinson's
5 years ago
Prospective comparison of whole-body MRI and 68Ga-PSMA PET/CT for the detection of BCR of prostate cancer after radical prostatectomy.
"68Ga-PSMA PET/CT significantly out-performed wb-MRI in the detection of biochemical recurrence in Pca patients after radical prostatectomy." https://www.ncbi.nlm.nih.gov/pubmed/30879122
"68Ga-PSMA PET/CT significantly out-performed wb-MRI in the detection of biochemical recurrence in Pca patients after radical prostatectomy." https://www.ncbi.nlm.nih.gov/pubmed/30879122
tango65
in
Advanced Prostate Cancer
5 years ago
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Ouch MOUTH SORES
I am on my second month of Ibrutinib , it started of great until this week I noticed how dry everything feels. My eyes and noses are really dry . But the worst are the mouth sores that have started. Blisters on my touché and lips. I have amped up Vitamin B , lysine and folic acid but it doesn’t seem
I am on my second month of Ibrutinib , it started of great until this week I noticed how dry everything feels. My eyes and noses are really dry . But the worst are the mouth sores that have started. Blisters on my touché and lips. I have amped up Vitamin B , lysine and folic acid but it doesn’t seem
Mellowbubble
in
CLL Support
5 years ago
Overturning Dogma -- Using Testosterone in Prostate Cancer
Are all dogmas still valid? Overturning Dogma -- Using Testosterone in Prostate Cancer In Subset of Hypogonadal Men Neil Osterweil March 20, 2019 BARCELONA, Spain — Conventional wisdom got a swift kick in the pants from a study showing that testosterone replacement therapy (TRT) significantly improved
Are all dogmas still valid? Overturning Dogma -- Using Testosterone in Prostate Cancer In Subset of Hypogonadal Men Neil Osterweil March 20, 2019 BARCELONA, Spain — Conventional wisdom got a swift kick in the pants from a study showing that testosterone replacement therapy (TRT) significantly improved
kryciakrycia
in
Advanced Prostate Cancer
5 years ago
EAU19 Barcelona – 15-19 March 2019 - blood pressure drugs
"four fifths of men with prostate cancer are also on blood pressure medication." Is that really so? ... "Those who were taking angiotensin II receptor blockers (known as ARBs) – which include common pills such as Valsartan and Losartan – had the lowest chance of death during the study period." ... I
"four fifths of men with prostate cancer are also on blood pressure medication." Is that really so? ... "Those who were taking angiotensin II receptor blockers (known as ARBs) – which include common pills such as Valsartan and Losartan – had the lowest chance of death during the study period." ... I
pjoshea13
in
Advanced Prostate Cancer
5 years ago
EAU19 Barcelona – 15-19 March 2019 - Testosterone slows PCa recurrence in low-risk patients.
US researchers have found out that testosterone replacement slows the recurrence of prostate cancer in low-risk patients. One of the largest studies undertaken so far may call into question the general applicability of Nobel-Prize winning hormonal prostate treatment. The work was presented at the European
US researchers have found out that testosterone replacement slows the recurrence of prostate cancer in low-risk patients. One of the largest studies undertaken so far may call into question the general applicability of Nobel-Prize winning hormonal prostate treatment. The work was presented at the European
pjoshea13
in
Advanced Prostate Cancer
5 years ago
My Story
I was diagnosed March 2015 with mestatic prostate cancer Gleason 9. I've had 6 cycles docetaxel chemo and radical radiotherapy to the prostrate, pelvic lymph nodes and left pubic ramus. In 2018 I started enzalutamide which, sadly failed after 3 months. November 2018 I started cabazitaxel chemo but
I was diagnosed March 2015 with mestatic prostate cancer Gleason 9. I've had 6 cycles docetaxel chemo and radical radiotherapy to the prostrate, pelvic lymph nodes and left pubic ramus. In 2018 I started enzalutamide which, sadly failed after 3 months. November 2018 I started cabazitaxel chemo but
ellyras
in
Advanced Prostate Cancer
5 years ago
Statins and Ibrutinib
My GP has advised that I should be taking statins, however the Ibrutinib patient info states: The effects of IMBRUVICA or other medicines may be influenced if you take IMBRUVICA together with any of the following medicines: ….. medicines called statins to treat high cholesterol – rosuvastatin Any other
My GP has advised that I should be taking statins, however the Ibrutinib patient info states: The effects of IMBRUVICA or other medicines may be influenced if you take IMBRUVICA together with any of the following medicines: ….. medicines called statins to treat high cholesterol – rosuvastatin Any other
RobertCLL
in
CLL Support
5 years ago
New to this ‘stage’
Hi there, While avoiding Dr Google I stumbled across this forum, which seems to be full of lovely supportive and informative people. My dad was diagnosed with prostate cancer in 2010 (Gleason 7) and following a radical prostatectomy has had no further treatment due to stable PSA readings. A rise in
Hi there, While avoiding Dr Google I stumbled across this forum, which seems to be full of lovely supportive and informative people. My dad was diagnosed with prostate cancer in 2010 (Gleason 7) and following a radical prostatectomy has had no further treatment due to stable PSA readings. A rise in
Mish80
in
Advanced Prostate Cancer
5 years ago
Liquid multi-vitamin supporting methylation
MTHFR mutations, along with diagnoses of Parkinson's (my father), Alzheimers' (my mother), Chronic Fatigue (me) autism (my son), and depression (my husband) are all within my immediate family - we obtained genetic testing results through 23andme. I spent over 20 years researching the biomedical aspects
MTHFR mutations, along with diagnoses of Parkinson's (my father), Alzheimers' (my mother), Chronic Fatigue (me) autism (my son), and depression (my husband) are all within my immediate family - we obtained genetic testing results through 23andme. I spent over 20 years researching the biomedical aspects
autismcoach
in
Cure Parkinson's
5 years ago
Blood Loss during Radical Prostatectomy [RP] & outcomes.
New German-Canadian study [1]. Of interest to me because of my RP experiense. I donated the maximum 2 units of blood prior to surgery. My surgeon said that he would probably not need them. There was usually very little blood. This was not the case in the early days, when the surgeon was typically
New German-Canadian study [1]. Of interest to me because of my RP experiense. I donated the maximum 2 units of blood prior to surgery. My surgeon said that he would probably not need them. There was usually very little blood. This was not the case in the early days, when the surgeon was typically
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Vitamin & mineral blood tests interpretation
Hi everyone, I've had nutritional blood tests taken for the 1st time and am confused about the results. I wonder why the vitamin B results are arranged like this. Dificient >1.25 and <1.15 normal . I would have thought it would be the other way around so the highest amount would be normal and lowest
Hi everyone, I've had nutritional blood tests taken for the 1st time and am confused about the results. I wonder why the vitamin B results are arranged like this. Dificient >1.25 and <1.15 normal . I would have thought it would be the other way around so the highest amount would be normal and lowest
LPR12
in
Thyroid UK
5 years ago
Dx and treatment plan
Hi all. Just got biopsy result. No sign of spread on bone scan, but they will confirm with PSMA next week. PSA score 81. * Level = “Intermediate” * Gleason 3+4 7 * T1C * No signs of spread on bone scan * Wants to have an MO do PSMA and BRCA next week to confirm no spread * His clinical estimates
Hi all. Just got biopsy result. No sign of spread on bone scan, but they will confirm with PSMA next week. PSA score 81. * Level = “Intermediate” * Gleason 3+4 7 * T1C * No signs of spread on bone scan * Wants to have an MO do PSMA and BRCA next week to confirm no spread * His clinical estimates
C-RI
in
Advanced Prostate Cancer
5 years ago
Iron testing results
Daughter (16yo) has been diagnosed hypothyroid (as part of the investigation of the source of her mental illness symptoms) and is being treated with NDT, currently at 60mg of Armour. In November 2018, ferritin was tested and found to be 38.1 (20-324) and B12 was 820 (200-900) at the same time. She
Daughter (16yo) has been diagnosed hypothyroid (as part of the investigation of the source of her mental illness symptoms) and is being treated with NDT, currently at 60mg of Armour. In November 2018, ferritin was tested and found to be 38.1 (20-324) and B12 was 820 (200-900) at the same time. She
soupybp
in
Thyroid UK
5 years ago
To Go Public or Not
In a recent thread, an off-topic conversation started that deserves discussion. Specifically, whether or not I, or you, or anyone else having an unfortunate medical condition, should go public with that information. Let me introduce myself. My name is Cary Jensen, and I was diagnosed with prostate cancer
In a recent thread, an off-topic conversation started that deserves discussion. Specifically, whether or not I, or you, or anyone else having an unfortunate medical condition, should go public with that information. Let me introduce myself. My name is Cary Jensen, and I was diagnosed with prostate cancer
CaryOn
in
Advanced Prostate Cancer
5 years ago
Ginkgo Biloba for RLS
I took 60 mg of Ginkgo Biloba in the middle of awful sleepless night and slept like a baby till morning. Manufacturer: Jarrow Formulas from iherb.com. It was the very first time when I took Ginkgo in the middle of the night. Before I only used it during daytime and the same 60 mg gave me a headache.
I took 60 mg of Ginkgo Biloba in the middle of awful sleepless night and slept like a baby till morning. Manufacturer: Jarrow Formulas from iherb.com. It was the very first time when I took Ginkgo in the middle of the night. Before I only used it during daytime and the same 60 mg gave me a headache.
Alex2308
in
Restless Legs Syndrome
5 years ago
B vitamins / Diazepam
Anyone know if B vits make tinnitus worse????? Also thinking of taking Diazepam but again worried it will make T worse??
Anyone know if B vits make tinnitus worse????? Also thinking of taking Diazepam but again worried it will make T worse??
lemons77
in
British Tinnitus Association
5 years ago
Ra-223 Treatment for Bone Metastases in Castrate-Resistant Prostate Cancer
New paper below. The sub-title is "Practical Management Issues for Patient Selection", so I figured that potential patients might be interested. The full text is available. For those contemplating Ra-223, use the following link & click on "Article as PDF": https://journals.lww.com/amjclinicaloncology
New paper below. The sub-title is "Practical Management Issues for Patient Selection", so I figured that potential patients might be interested. The full text is available. For those contemplating Ra-223, use the following link & click on "Article as PDF": https://journals.lww.com/amjclinicaloncology
pjoshea13
in
Advanced Prostate Cancer
5 years ago
My first year with prostate cancer
Although I frequently read this forum, it's not really my thing to post here. But I remember when I was first diagnosed, I was grateful for all the stories and information everyone here provided. I thank you all for that. I also think that some others who are beginning their journey may find my story
Although I frequently read this forum, it's not really my thing to post here. But I remember when I was first diagnosed, I was grateful for all the stories and information everyone here provided. I thank you all for that. I also think that some others who are beginning their journey may find my story
notjohn
in
Advanced Prostate Cancer
5 years ago
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