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Royal Papworth Experience

Surreyhunni profile image
6 Replies

Thank you for the replies to my post asking about the Royal Papworth - So with the reassurance all would be well, I was admitted to the day ward last Friday. The care and treatment was very good in general.

But as seems to be my luck, all didn't go to plan again and what should have taken 2.5hrs ended up taking 6 hrs in the cath lab. Apparently I needed 4 procedures instead of the 2 they were expecting. The consultant said it was very complex. Also it was found that I have two holes in my heart. One small one that hasn't healed from my previous ablation 7 years ago at Barts in London and one large, that they think has been there since birth and may be at the root of all my heart issues. I'm now being referred to another cardiologist to deal with these and have been told I cannot have my lung operation (also a complication of my previous ablation, a paralysed lung/phrenic nerve injury), which was scheduled for New Years Eve at Papworth, as it would be too dangerous to have before the holes are sorted out.

Feeling very despondent that one thing always seems to lead to another and dreading it all. I've had several issues since Friday, including blurred/double vision, a bleeding throat, dizziness, strange visions when trying to sleep and generally feeling like rubbish. I'm praying I won't need open heart surgery for the large hole repair and also that I don't need further work for anything electrical. On a positive note - this is the first time in years that I can't feel my heart dancing in my chest and it feels so good!

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Surreyhunni
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6 Replies
CDreamer profile image
CDreamer

Oh what a saga of unhappy and unfortunate events, so sorry you have to have yet another procedure.

Do hope the ablation has been successful this time so wishing you long lasting NSR.

Cavalierrubie profile image
Cavalierrubie

l think you are in very safe hands with the Royal Papworth Hospital. I live 30 miles away and awaiting an appointment with EP. It would be my first choice. Top notch and some of the best cardiacs in the country. It is very early days for you after such a long operation and well done. I think you will be experiencing the after effects of the anaesthetic which upsets the nervous system and takes some time to be eliminated from the body. You must be feeling quite low with it all, but l am sure they will get you back on track and it is good they have found what the root cause of all your problems are. This awful time will pass. Think of all the positives and l send love and prayers for your treatment, recovery and better health.

Tapanac profile image
Tapanac

I’m sorry you have more problems. Depressing isn’t it, but pleased you’re heart not dancing so much

I’ve heard that Papworth is a brilliant hospital

All the best

Vonnegut profile image
Vonnegut

Poor you! Big virtual hug!

LindaDaisy profile image
LindaDaisy

It’s good that they have found the issues and can now treat them. Royal Papworth is my hospital and I think they are great.

50568789 profile image
50568789

That was tough and obviously nobody could see it coming. At least you were in one of the best places to deal with it. Chin up!

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