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Pseudomyxoma peritonei (PMP)
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3 years later
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
Sandwichesandchips
in
ICUsteps
1 year ago
Overwhelming Fatigue
I ama 62 year old female. I have been on hemodialysis then peritoneal dialysis and back to hemodialysis over the past five years. I felt great for the two years on peritoneal. Was able to work and go about my daily routine. The peritoneal stopped working and I have been back on hemodialysis for about
I ama 62 year old female. I have been on hemodialysis then peritoneal dialysis and back to hemodialysis over the past five years. I felt great for the two years on peritoneal. Was able to work and go about my daily routine. The peritoneal stopped working and I have been back on hemodialysis for about
Frankie24
in
Kidney Dialysis
1 year ago
Home dialysis will soon be possible for more kidney patients
Just in time for World Kidney Day, March 9, Israeli company gets FDA nod for game-changing home digital dialysis system. Healthy kidneys automatically filter waste from the blood 24/7. But for millions of people with advanced kidney disease – including about 570,000 Americans — that essential task is
Just in time for World Kidney Day, March 9, Israeli company gets FDA nod for game-changing home digital dialysis system. Healthy kidneys automatically filter waste from the blood 24/7. But for millions of people with advanced kidney disease – including about 570,000 Americans — that essential task is
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
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Making it real
This is my first post here. I'm an ADPKD patient and have known it for the past 15 years. It's inherited, and my mother suffered from it when I was young. After a LOT of trips to hospitals and dialysis centers, she got a transplant in 1977. She died when I was 14. I was always under the impression
This is my first post here. I'm an ADPKD patient and have known it for the past 15 years. It's inherited, and my mother suffered from it when I was young. After a LOT of trips to hospitals and dialysis centers, she got a transplant in 1977. She died when I was 14. I was always under the impression
PeaB4YouGo
in
Kidney Disease
2 years ago
Peritoneal dialysis and Neck pain at night during exchanges ……any help? Asking for my mother
Reaching out to this expert community to see if anyone has any experience and advice so I can help my mother. She has been on peritoneal dialysis for about 3-4years. Her exchanges happen at night on machine (not manually). Most recently she has been dealing with pretty significant neck pain. That happens
Reaching out to this expert community to see if anyone has any experience and advice so I can help my mother. She has been on peritoneal dialysis for about 3-4years. Her exchanges happen at night on machine (not manually). Most recently she has been dealing with pretty significant neck pain. That happens
Fight2016
in
Kidney Dialysis
2 years ago
Part Time PD
Ok, troops. I would like some info. I met with my Neph today. My numbers are great. Phosphorus was at the upper end, but I expected that after Thanksgiving :-) Now that my hernia repair surgery is getting all healed up, looks like I'll be back one the PD train the week after Christmas. So my question
Ok, troops. I would like some info. I met with my Neph today. My numbers are great. Phosphorus was at the upper end, but I expected that after Thanksgiving :-) Now that my hernia repair surgery is getting all healed up, looks like I'll be back one the PD train the week after Christmas. So my question
RonZone
in
Kidney Dialysis
2 years ago
Kidneys on way out - dialysis experience anyone?
Hi, Posting for my poor younger brother ravaged by APS over decades. Kidneys are on way out. Transplant is too risky with his current situation with prior blood supply bocks in various organs and limbs, past stroke and so on. Dialysis is the only option. Peritoneal dialysis is out due to existing
Hi, Posting for my poor younger brother ravaged by APS over decades. Kidneys are on way out. Transplant is too risky with his current situation with prior blood supply bocks in various organs and limbs, past stroke and so on. Dialysis is the only option. Peritoneal dialysis is out due to existing
strugglingwaps
in
Hughes Syndrome APS Forum
2 years ago
5 Ways To Support Children and Adolescents with Kidney Disease
"We didn't know until Max was born that he was in stage four kidney failure...when he was ten months old, we started him on peritoneal dialysis." says Katie Adduci, nurse and living kidney donor to her son Max. Learn more. https://www.kidney.org/newsletter/5-ways-to-support-children-and-adolescents-kidney-disease
"We didn't know until Max was born that he was in stage four kidney failure...when he was ten months old, we started him on peritoneal dialysis." says Katie Adduci, nurse and living kidney donor to her son Max. Learn more. https://www.kidney.org/newsletter/5-ways-to-support-children-and-adolescents-kidney-disease
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
Kok sidney peritoneal dialysis
I have just started peritoneal dialysis about a month ago. My creatinine levels are very high and I am dehydrated. Anyone with similar experience? pPlease share. Thank you
I have just started peritoneal dialysis about a month ago. My creatinine levels are very high and I am dehydrated. Anyone with similar experience? pPlease share. Thank you
ckiddo
in
Kidney Disease
2 years ago
How will my life change on PD?
I just found out that I'll be starting peritoneal dialysis in 2 weeks. When I went to the initial orientation several months ago the RN suggested that walking should be my only exercise. I typically walk, run, hike, kayak, snowboard, and cross-country ski during the different seasons of the year. I also
I just found out that I'll be starting peritoneal dialysis in 2 weeks. When I went to the initial orientation several months ago the RN suggested that walking should be my only exercise. I typically walk, run, hike, kayak, snowboard, and cross-country ski during the different seasons of the year. I also
Cabrilla
in
Kidney Transplant
2 years ago
MRI QUESTION
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
Hidden
in
Kidney Transplant
2 years ago
How do you cope with In center Hemodialysis
I was in center hemodialysis for two years then i switched to home peritoneal dialysis which I loved. After two years it stopped working. I have been back on hemodialysis in center for the past year. I can’t make peace with it . Tried working on my iPad, watching movies, writing, reading, taking
I was in center hemodialysis for two years then i switched to home peritoneal dialysis which I loved. After two years it stopped working. I have been back on hemodialysis in center for the past year. I can’t make peace with it . Tried working on my iPad, watching movies, writing, reading, taking
Frankie24
in
Kidney Dialysis
2 years ago
Help improve understanding of Quality of Life issues in Pseudomyxoma Peritonei (PMP)
Pseudomyxoma Survivor has been contacted by a research assistant at the Peritoneal Malignancy Unit at Basingstoke Hospital who is conducting an NIHR funded study in collaboration with the University of Winchester to better understand the quality of life of pseudomyxoma patients. The team reviewed the
Pseudomyxoma Survivor has been contacted by a research assistant at the Peritoneal Malignancy Unit at Basingstoke Hospital who is conducting an NIHR funded study in collaboration with the University of Winchester to better understand the quality of life of pseudomyxoma patients. The team reviewed the
AngelaPMPS
PMPS Volunteer
in
Pseudomyxoma Survivor
2 years ago
Peritoneal Dialysis - Week Four After Surgery
Following up on my first two posts following PD Catheter Surgery: https://healthunlocked.com/nkf-dialysis/posts/148305786/peritoneal-dialysis-week-two-after-surgery https://healthunlocked.com/nkf-dialysis/posts/148337395/peritoneal-dialysis-week-three-after-surgery I received a call late Friday from
Following up on my first two posts following PD Catheter Surgery: https://healthunlocked.com/nkf-dialysis/posts/148305786/peritoneal-dialysis-week-two-after-surgery https://healthunlocked.com/nkf-dialysis/posts/148337395/peritoneal-dialysis-week-three-after-surgery I received a call late Friday from
RonZone
in
Kidney Dialysis
2 years ago
Peritoneal Dialysis - Week Three After Surgery
So, to follow up on my last post: https://healthunlocked.com/nkf-dialysis/posts/148305786/peritoneal-dialysis-week-two-after-surgery Today was my second visit to the dialysis clinic for a dressing change which basically followed the exact procedure listed above with just a few additional tweaks, and
So, to follow up on my last post: https://healthunlocked.com/nkf-dialysis/posts/148305786/peritoneal-dialysis-week-two-after-surgery Today was my second visit to the dialysis clinic for a dressing change which basically followed the exact procedure listed above with just a few additional tweaks, and
RonZone
in
Kidney Dialysis
2 years ago
Peritoneal Dialysis - Week Two after Surgery
So I can't really see where anyone put a step by step account of the PD experience on here since DAF1234 put comments in 3 years ago. So I'll document as best i can this experience. Last Monday (Week 1) I had the PD catheter placement surgery. Today, I had an appt at the Fresenius Dialysis Center
So I can't really see where anyone put a step by step account of the PD experience on here since DAF1234 put comments in 3 years ago. So I'll document as best i can this experience. Last Monday (Week 1) I had the PD catheter placement surgery. Today, I had an appt at the Fresenius Dialysis Center
RonZone
in
Kidney Dialysis
2 years ago
Peritoneal Dialysis Catheter placement side effect - Can't pee!
So I posted that I had my PD Catheter placement surgery yesterday morning and I felt pretty good all day. Didn't even have to take the pain med I was given. Then last night about 5:30pm, I noticed an uncomfortable feeling and a bit of pain in my bladder area. I tried to pee and even though I felt like
So I posted that I had my PD Catheter placement surgery yesterday morning and I felt pretty good all day. Didn't even have to take the pain med I was given. Then last night about 5:30pm, I noticed an uncomfortable feeling and a bit of pain in my bladder area. I tried to pee and even though I felt like
RonZone
in
Kidney Dialysis
2 years ago
Beginning Peritoneal Dialysis
So my journey begins. I had surgery this morning for placement of my PD catheter. All in all, the experience hasn't been bad at all. They used general anesthesia, so I don't remember any of it after they gave me the happy juice. I barely remember my driver leaving the hospital and pulling into the driveway
So my journey begins. I had surgery this morning for placement of my PD catheter. All in all, the experience hasn't been bad at all. They used general anesthesia, so I don't remember any of it after they gave me the happy juice. I barely remember my driver leaving the hospital and pulling into the driveway
RonZone
in
Kidney Disease
2 years ago
Please have blood tests if taking medication - Pentasa.
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
TomYorke
in
Crohn's and Colitis Support
2 years ago
Urgent-start peritoneal dialysis
Interesting info I had not seen before. Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-peritoneal-dialysis-feasible-costefficient-with-support-system
Interesting info I had not seen before. Not sure I would wait till this is required, but for folks caught off guard, it might be an option. https://www.healio.com/news/nephrology/20220306/speaker-urgentstart-peritoneal-dialysis-feasible-costefficient-with-support-system
RonZone
in
Kidney Disease
2 years ago
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