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Experiences with
Pseudomyxoma peritonei (PMP)
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My kidney function is hovering between 9-7% for the 12 months
Hi everyone it's nice to see all these ppl on here helping each other as least you don't feel alone.... I would just like to share my sidewith you all...I am 30 n unfortubarely am on the final stage of CKD my creatinine I am not sure exactly but it's around 400+... I suffere from high bp n anemia...
Hi everyone it's nice to see all these ppl on here helping each other as least you don't feel alone.... I would just like to share my sidewith you all...I am 30 n unfortubarely am on the final stage of CKD my creatinine I am not sure exactly but it's around 400+... I suffere from high bp n anemia...
Mobeg
in
Early CKD Support
10 years ago
Sickness ...
Hello all. I was diagnosed with good pastures syndrome in March this year. It has left me with chronic renal failure. I started haemodialysis and recently changed to peritoneal dialysis. I feel sick most if the time but it seems to get worse in the evenings. Has anyone else found this? If so what did
Hello all. I was diagnosed with good pastures syndrome in March this year. It has left me with chronic renal failure. I started haemodialysis and recently changed to peritoneal dialysis. I feel sick most if the time but it seems to get worse in the evenings. Has anyone else found this? If so what did
Syreeta
in
Dialysis Support
10 years ago
Constipation and Kidney Failure. Does anyone have any advice, or ideas about the management of chronic constipation in Peritoneal Dialysis.
I am a PD patient on four daily fluid exchanges. Since my last PD catheter was fitted in Feb14, I have been diagnosed with gastro-paresis. Constipation is chronic and my Bowel has slowed down to hardly function at all, only going every four days, even with lactulose, docusate, movicol, senna! I am getting
I am a PD patient on four daily fluid exchanges. Since my last PD catheter was fitted in Feb14, I have been diagnosed with gastro-paresis. Constipation is chronic and my Bowel has slowed down to hardly function at all, only going every four days, even with lactulose, docusate, movicol, senna! I am getting
Quintillius
in
Dialysis Support
10 years ago
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I am relatively new to nightly Peritoneal dialysis. I am finding it impossible to sleep while the machine goes through its cycles,
Does anyone have any tips about coping with the loneliness, depression and boredom of nightly dialysis. How about combatting side effects like cramp too? All suggestions welcome.
Does anyone have any tips about coping with the loneliness, depression and boredom of nightly dialysis. How about combatting side effects like cramp too? All suggestions welcome.
Quintillius
in
Dialysis Support
10 years ago
Peritoneal dialysis. I am struggling badly to adjust to the routine. It is making me quite depressed. Are there any help groups or support?
I am new to peritoneal night time dialysis. The machine keeps alarming, makes a frightful noise. My catheter is positional and I have problems with constipation, night sweats and weight loss. I am very depressed about this as I recently lost use of a Kidney transplant after twenty five years. Can anyone
I am new to peritoneal night time dialysis. The machine keeps alarming, makes a frightful noise. My catheter is positional and I have problems with constipation, night sweats and weight loss. I am very depressed about this as I recently lost use of a Kidney transplant after twenty five years. Can anyone
Quintillius
in
Dialysis Support
10 years ago
Does anyone know a good way to reduce or stop constipation in peritoneal dialysis?
I have nightly peritoneal dialysis. I am on docusate, senna and lactulose as well as picolax to reduce constipation but nothing is moving my bowel. It's causing the machine to alarm. Does anyone know of any other medications lifestyle or complimentary remedies. It is painful and ruining my peritoneal
I have nightly peritoneal dialysis. I am on docusate, senna and lactulose as well as picolax to reduce constipation but nothing is moving my bowel. It's causing the machine to alarm. Does anyone know of any other medications lifestyle or complimentary remedies. It is painful and ruining my peritoneal
Quintillius
in
Dialysis Support
10 years ago
I have nightly peritoneal dialysis. I experience profuse night sweats nightly. Does anyone else have this problem?
I think the dialysis fluid infused aggravates the body core temperature and this is further exacerbated by heat from the covers causing horrific night sweats. Please help if you can. None of my medical team know anything about it. There are stories on the net from the US of night sweats and peritoneal
I think the dialysis fluid infused aggravates the body core temperature and this is further exacerbated by heat from the covers causing horrific night sweats. Please help if you can. None of my medical team know anything about it. There are stories on the net from the US of night sweats and peritoneal
Quintillius
in
Dialysis Support
10 years ago
Still stable and able to live a good life
I joined the site when my husband first went onto dialysis but haven't written for a long time. Now I thought I would offer hope to people who are newly adjusting to being on ambulatory peritoneal dialysis. My husband is 70 and has end stage 5 renal failure. He has been on dialysis four times a
I joined the site when my husband first went onto dialysis but haven't written for a long time. Now I thought I would offer hope to people who are newly adjusting to being on ambulatory peritoneal dialysis. My husband is 70 and has end stage 5 renal failure. He has been on dialysis four times a
Hidden
in
Early CKD Support
10 years ago
Does anyone have a sharp twinging pain from peritoneal dialysis catheter when empty of dialysis fluid?
Since having my dialysis catheter fitted in June I've been experiencing sharp twinges almost round my bladder/back passage area. The nurse thinks it might be because the catheter is sat on a nerve above the bladder and it tends to happen when I've got little or no dialysis fluid in me. Does anyone else
Since having my dialysis catheter fitted in June I've been experiencing sharp twinges almost round my bladder/back passage area. The nurse thinks it might be because the catheter is sat on a nerve above the bladder and it tends to happen when I've got little or no dialysis fluid in me. Does anyone else
cassie-brzoza
in
Dialysis Support
11 years ago
New to peritoneal dialysis, new to the community - Just saying hi!
Hi there, I'm new to peritoneal dialysis since July 2013 and this is quite a new and scary thing for me. I was advised to join here so I could meet other people and maybe learn more about my treatment and my condition. Sometimes I feel very alone with my condition and kidneys are such complex and difficult
Hi there, I'm new to peritoneal dialysis since July 2013 and this is quite a new and scary thing for me. I was advised to join here so I could meet other people and maybe learn more about my treatment and my condition. Sometimes I feel very alone with my condition and kidneys are such complex and difficult
cassie-brzoza
in
Dialysis Support
11 years ago
Peritoneal dialysis pain - is this normal
My wife is on overnight APD - She gets considerable pain on the last drain each morning - is this usual for this type of dialysis?
My wife is on overnight APD - She gets considerable pain on the last drain each morning - is this usual for this type of dialysis?
denman
in
Dialysis Support
11 years ago
When does dialysis start and at what stage do you get on the Transplant List.
My wife was identified as having Kidney Disease some 12 years ago. The decline in Egfr for many years was continual but slow. However, in the last year her Egfr has fallen by 3 percent each two months. Her Egfr was 8 in February. She has not yet been prepared nor started on dialysis. I am assuming she
My wife was identified as having Kidney Disease some 12 years ago. The decline in Egfr for many years was continual but slow. However, in the last year her Egfr has fallen by 3 percent each two months. Her Egfr was 8 in February. She has not yet been prepared nor started on dialysis. I am assuming she
denman
in
Dialysis Support
11 years ago
treatment update
I was diagnosed with appendix cancer and
pseudomyxoma
peritonei
in June after a laparotomy and I thought I would update everyone about what has happened since then.
I was diagnosed with appendix cancer and
pseudomyxoma
peritonei
in June after a laparotomy and I thought I would update everyone about what has happened since then.
jbobdot
in
My Ovacome
12 years ago
Peritoneal Dialysis or Haemo?
Currently being "worked up" for living donor transplant from my brother but need to make a decision on dialysis as a back up. Am thinking of PD rather than Haemo. Can anyone tell me whether there is any discomfort when "carrying" the fluid in your peritoneum. Not sure how much fluid goes in but do you
Currently being "worked up" for living donor transplant from my brother but need to make a decision on dialysis as a back up. Am thinking of PD rather than Haemo. Can anyone tell me whether there is any discomfort when "carrying" the fluid in your peritoneum. Not sure how much fluid goes in but do you
Viviola
in
Early CKD Support
12 years ago
How we chose and adjusted to dialysis - it's not the end of the world!
Hi, My husband (D) is 70 and has end stage renal failure. As he is new to dialysis I thought I would share our experience of choosing and adjusting in case other people find it useful. As any decisions would affect both our lives we made them jointly with the help of EXCELLENT information and support
Hi, My husband (D) is 70 and has end stage renal failure. As he is new to dialysis I thought I would share our experience of choosing and adjusting in case other people find it useful. As any decisions would affect both our lives we made them jointly with the help of EXCELLENT information and support
Hidden
in
Dialysis Support
12 years ago
Return to work any advice welcome!
I have a diagnosis of
Pseudomyxoma
peritonei
and will need another big op. I mentioned to my boss that I would like to get back to work 'when I recover' so she arranged an occupational health appointment for me for tomorrow.
I have a diagnosis of
Pseudomyxoma
peritonei
and will need another big op. I mentioned to my boss that I would like to get back to work 'when I recover' so she arranged an occupational health appointment for me for tomorrow.
jbobdot
in
My Ovacome
12 years ago
The diagnosis is not OC
Got my diagnosis today, its
pseudomyxoma
peritonei
and not OC. The surgeon told me that its low grade disease (phew!) but it doesn't respond to ordinary chemo or radiotherapy. Its a rare form of cancer that originated in my appendix and has spread all around my abdomen, including my liver.
Got my diagnosis today, its
pseudomyxoma
peritonei
and not OC. The surgeon told me that its low grade disease (phew!) but it doesn't respond to ordinary chemo or radiotherapy. Its a rare form of cancer that originated in my appendix and has spread all around my abdomen, including my liver.
jbobdot
in
My Ovacome
12 years ago
My Life Story: Part 2 - aged 25 (Updated September 2005)
Update: September 2005. Isn't it funny how things can turn around so quickly; how things can get better almost as quickly as they went wrong in the first place? On the 16 September 2004 I remember waking up and feeling happy - not well immediately, but happy! In June 2004, I was living in
Update: September 2005. Isn't it funny how things can turn around so quickly; how things can get better almost as quickly as they went wrong in the first place? On the 16 September 2004 I remember waking up and feeling happy - not well immediately, but happy! In June 2004, I was living in
Hidden
in
Hughes Syndrome APS Forum
13 years ago
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