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Experiences with
Primary ciliary dyskinesia (PCD)
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medication and herbal remedies?
Hey guys, sorry for this post, its most likely been done before loads of times just wanted to check if my dad is on the right meds, or if there is anything he could be taking to help at the moment he takes; stalevo 200/50/200 amantadine 100mg rotigotine patches 8mg and has anyone tried any herbal
Hey guys, sorry for this post, its most likely been done before loads of times just wanted to check if my dad is on the right meds, or if there is anything he could be taking to help at the moment he takes; stalevo 200/50/200 amantadine 100mg rotigotine patches 8mg and has anyone tried any herbal
Mustafa128h
in
PSP Association
8 years ago
Last period 18th Jan, cystitis feeling?
Hi everyone, just need a little advice really. My last period was on the 18th January and it lasted 16 days, it was also quite heavy and painful for the whole of that time. Usually my cycle is about 37 days but for some reason it has been 51 days since my last period. I know that irregular periods
Hi everyone, just need a little advice really. My last period was on the 18th January and it lasted 16 days, it was also quite heavy and painful for the whole of that time. Usually my cycle is about 37 days but for some reason it has been 51 days since my last period. I know that irregular periods
Megvarn
in
Endometriosis UK
8 years ago
DBS
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
adkseaman
in
Cure Parkinson's
8 years ago
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UTI
So back to GP today 11 days post laparoscopy and I have yet another confirmed UTI despite the fact I am on long term preventative anti biotics! There was no endo effecting my bladder and I had a cystoscopy which showed deep cystitis in my bladder hense the preventative anti biotics.. Has anyone else
So back to GP today 11 days post laparoscopy and I have yet another confirmed UTI despite the fact I am on long term preventative anti biotics! There was no endo effecting my bladder and I had a cystoscopy which showed deep cystitis in my bladder hense the preventative anti biotics.. Has anyone else
Elisamatthews11
in
Endometriosis UK
8 years ago
Recurrent cystitis/ uti's
Hi, I'm 52, and going through hell with approx. 1 bout of cystitis per month. Although no infection present, there is always blood so on constant antibiotics I have had urethral dilatation and in 2 weeks, will be going through my 3rd cystoscope and now a CT scan to find a cause. This is ruining my life
Hi, I'm 52, and going through hell with approx. 1 bout of cystitis per month. Although no infection present, there is always blood so on constant antibiotics I have had urethral dilatation and in 2 weeks, will be going through my 3rd cystoscope and now a CT scan to find a cause. This is ruining my life
hez64
in
Women's Health
8 years ago
Help pain for 3 years
I'm 69 been diagnosed 8 years I'm on 4 250/25 a day and 4 comtan a day The problem is I have excruciating in spasms after taking the medication which can last up to 2 hours I was told by a gp they are off periods The pain is so bad I'm off endone and I take panadol osteo The more stressed the worse
I'm 69 been diagnosed 8 years I'm on 4 250/25 a day and 4 comtan a day The problem is I have excruciating in spasms after taking the medication which can last up to 2 hours I was told by a gp they are off periods The pain is so bad I'm off endone and I take panadol osteo The more stressed the worse
Shol
in
Cure Parkinson's
8 years ago
Interstitial cystitis and levator ani
Can someone plse help, I've gone from bad to worse. 5 surgeries for endo, the last one was a success bcuz prior docs weren't skilled. 2 months ago i got inflammed out of the blue, sent me to my gyno who said i might have cancer or need a bowel resection due to endo.He scarred me so i went to the cancer
Can someone plse help, I've gone from bad to worse. 5 surgeries for endo, the last one was a success bcuz prior docs weren't skilled. 2 months ago i got inflammed out of the blue, sent me to my gyno who said i might have cancer or need a bowel resection due to endo.He scarred me so i went to the cancer
seraphina
in
Endometriosis UK
8 years ago
carbidopa levodopa vs. coconut oil
I started taking carbidopa levodopa one week ago. My first medicine. Tremors did not stop all week. Yesterday I consumed two tblsp coconut oil once at lunch time and again at dinner time. By evening my tremors stopped and stayed stopped through the night. Was it the CO or the C/L? Was it a placebo effect
I started taking carbidopa levodopa one week ago. My first medicine. Tremors did not stop all week. Yesterday I consumed two tblsp coconut oil once at lunch time and again at dinner time. By evening my tremors stopped and stayed stopped through the night. Was it the CO or the C/L? Was it a placebo effect
Hidden
in
Cure Parkinson's
8 years ago
Interstitial Cystitis
Hi. I have been suffering from intense pelvis pain and have an urgency to pee which when the bladder is full it can be painful to pass the urine and after having passed urine the painful pressure is slightly relived. I also needed to get up 2/3 times a night. I have gone under many test with my
Hi. I have been suffering from intense pelvis pain and have an urgency to pee which when the bladder is full it can be painful to pass the urine and after having passed urine the painful pressure is slightly relived. I also needed to get up 2/3 times a night. I have gone under many test with my
Sedgie99
in
Pelvic Pain Support Network
8 years ago
Dyskinesia Webinar
Our January webinar will focus on dyskinesia, involuntary movements that arise with levodopa use as Parkinson's progresses. Our panelists will discuss the current management of dyskinesia and new therapies in development. Register today: https://www.michaeljfox.org/understanding-parkinsons/webinar-registration.php
Our January webinar will focus on dyskinesia, involuntary movements that arise with levodopa use as Parkinson's progresses. Our panelists will discuss the current management of dyskinesia and new therapies in development. Register today: https://www.michaeljfox.org/understanding-parkinsons/webinar-registration.php
Hidden
in
Cure Parkinson's
9 years ago
Genetic research into rare lung conditions
The research is looking at some of the less common lung conditions (they’re looking for people with non-CF bronchiectasis, interstitial lung disease, vascular lung disease and
primary
ciliary
dyskinesia
in particular). Also there are centres taking part all over the country.
The research is looking at some of the less common lung conditions (they’re looking for people with non-CF bronchiectasis, interstitial lung disease, vascular lung disease and
primary
ciliary
dyskinesia
in particular). Also there are centres taking part all over the country.
BethanyBateman
in
Lung Conditions Community Forum
9 years ago
Doctors and late results
Hi everyone I have been very unwell since the begining of nov,after asking my doctor to admit me in to hospital because I had server abdominal pain,,server diarrhea and I was vomiting a black substance back.he refused..I was eventually rushed in to hospital several hours later by a locum..I was diagnosed
Hi everyone I have been very unwell since the begining of nov,after asking my doctor to admit me in to hospital because I had server abdominal pain,,server diarrhea and I was vomiting a black substance back.he refused..I was eventually rushed in to hospital several hours later by a locum..I was diagnosed
birkie
in
Thyroid UK
9 years ago
Levodopa Equivalent Dose App
Many of us take a complicated mixture of different types of Parkinson's drugs, with different doses, at different times. The concept of LED (levodopa equivalent dose) gives a rough way to compare two medication regimes. For instance, 8mg of ropinirole has, very roughly, about the same effect as 160mg
Many of us take a complicated mixture of different types of Parkinson's drugs, with different doses, at different times. The concept of LED (levodopa equivalent dose) gives a rough way to compare two medication regimes. For instance, 8mg of ropinirole has, very roughly, about the same effect as 160mg
johntPM
in
Cure Parkinson's
9 years ago
Interstitial cystitis
I had a cystoscope done at the Urologist's office today and it was normal. Is that enough to rule out IC or do I need a cystoscope with hydrodistention to rule it out? I have also tried a few different meds for OAB, which only had minimal effect. Thanks in advance!
I had a cystoscope done at the Urologist's office today and it was normal. Is that enough to rule out IC or do I need a cystoscope with hydrodistention to rule it out? I have also tried a few different meds for OAB, which only had minimal effect. Thanks in advance!
Zelda5
in
Endometriosis UK
9 years ago
Trace blood in urine??
Hi I had my pre op on Friday and they done a urine test she said there was a trace of blood but no infection. For the last year or so I have had about 6 urine tests and they have all had a trace of blood. The samples were sent to be checked and came back clear with no problems. The dr said to follow
Hi I had my pre op on Friday and they done a urine test she said there was a trace of blood but no infection. For the last year or so I have had about 6 urine tests and they have all had a trace of blood. The samples were sent to be checked and came back clear with no problems. The dr said to follow
Mummycox33
in
Endometriosis UK
9 years ago
Spinal stonesis
I was diagnosed with Parkinson's about 17 months ago. My main problem is my balance. I do have tremors occasionally. I recently went to a new neurologist and he told me my balance issue is caused by spinal stenosis . Has anyone' in this group been diagnosed with that also.? I take Mirapex, Sinemet and
I was diagnosed with Parkinson's about 17 months ago. My main problem is my balance. I do have tremors occasionally. I recently went to a new neurologist and he told me my balance issue is caused by spinal stenosis . Has anyone' in this group been diagnosed with that also.? I take Mirapex, Sinemet and
tobykeith
in
Cure Parkinson's
9 years ago
Anyone else been diagnosed with cystitis cystica? Many years of suffering.....
I've suffered with a bladder prone to infection since I was approx 7. Symptoms have varied as has intensity of the years of the pain in my bladder. Many cystoscopies, urethral dilatations later, I am still looking for ways to help me to manage symptoms. I am now post menopausal. Menopause was not a walk
I've suffered with a bladder prone to infection since I was approx 7. Symptoms have varied as has intensity of the years of the pain in my bladder. Many cystoscopies, urethral dilatations later, I am still looking for ways to help me to manage symptoms. I am now post menopausal. Menopause was not a walk
25clai
in
Pelvic Pain Support Network
9 years ago
Never ending
Dont even know where to start. Ive had 2 laps the last one in March this year under a fab endo specialist. He removed most my endo apart from a small amount on my bowel. He did remove lots from my bowel, bladder, pelvic wall, basically everywhere apart from my ovaries and fallopian tubes and with that
Dont even know where to start. Ive had 2 laps the last one in March this year under a fab endo specialist. He removed most my endo apart from a small amount on my bowel. He did remove lots from my bowel, bladder, pelvic wall, basically everywhere apart from my ovaries and fallopian tubes and with that
emmaibiza
in
Endometriosis UK
9 years ago
Hiprex (methenamine - oral, Mandelamine, UrexHexamethylenetetramine): anyone?
My consultant urologist tells me hiprex is our fall-back treatment re the way we're managing the chronic issues involved in my various chronic urological/renal conditions. Nearly a year into finally tackling these lifelong problems in a more concerted manner, the treatment plan immunology+rheumatology
My consultant urologist tells me hiprex is our fall-back treatment re the way we're managing the chronic issues involved in my various chronic urological/renal conditions. Nearly a year into finally tackling these lifelong problems in a more concerted manner, the treatment plan immunology+rheumatology
Barnclown
in
LUPUS UK
9 years ago
Hello :)
Hello all, i haven't introduced myself yet- I'm a 23yr old female who got diagnosed with
Primary
ciliary
dyskinesia
at age 6. Other conditions such as asthma bronchiectasis and sinusitis- Have had several flare ups and pneumonia within the last few years.
Hello all, i haven't introduced myself yet- I'm a 23yr old female who got diagnosed with
Primary
ciliary
dyskinesia
at age 6. Other conditions such as asthma bronchiectasis and sinusitis- Have had several flare ups and pneumonia within the last few years.
ostarlight55
in
Lung Conditions Community Forum
9 years ago
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