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Experiences with
Primary ciliary dyskinesia (PCD)
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Break from Fast Walking
I stopped fast walking several months ago. Meanwhile it became difficult for me to get into bed, lifting my legs and also pulling the covers over me. Tuesday was with my neurologist (movement disorder specialist) for my regular visit. I asked about my prognosis (not optimistic) and asked for Amantadine
I stopped fast walking several months ago. Meanwhile it became difficult for me to get into bed, lifting my legs and also pulling the covers over me. Tuesday was with my neurologist (movement disorder specialist) for my regular visit. I asked about my prognosis (not optimistic) and asked for Amantadine
Hidden
in
Cure Parkinson's
8 years ago
Correct medication cocktail
Hi Everyone. It is Pat. I found the hardest part of treating PD was getting the right mix of medications taken at the right times. It took quite awhile but my Doctor and I feel we have reached that point at least for now. I take three Stalevos a day, mirapex(an-agonist) three times a day,and at
Hi Everyone. It is Pat. I found the hardest part of treating PD was getting the right mix of medications taken at the right times. It took quite awhile but my Doctor and I feel we have reached that point at least for now. I take three Stalevos a day, mirapex(an-agonist) three times a day,and at
Price69-pat_
in
Cure Parkinson's
8 years ago
mucana capsule dosage
i have had PD for about 16 years. I have never been on Sinemet, except for a couple weeks. I am now on 100 mg of Mirapex 3X A DAY AND AMANTADINE 100mg. 3 X a day. I would like to try taking Mucuna capsules. I have one bottle of Mucuna distributed by Himalaya from India. The label says...organic velvet
i have had PD for about 16 years. I have never been on Sinemet, except for a couple weeks. I am now on 100 mg of Mirapex 3X A DAY AND AMANTADINE 100mg. 3 X a day. I would like to try taking Mucuna capsules. I have one bottle of Mucuna distributed by Himalaya from India. The label says...organic velvet
maryalice
in
Cure Parkinson's
8 years ago
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Comtan increasing off times
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Dylpup
in
Cure Parkinson's
8 years ago
Mirapex reaction??
Am having strange reaction to Mirapex. Was on super low dose by MDS doc and had to lower that dose after immediate anxiety and worsening leg tremors were the result of first "low" dose prescribed by doc (1/2 tab 3x per day). She suggested I allow the lower dose (1/4 tab 4 x per day) to continue for
Am having strange reaction to Mirapex. Was on super low dose by MDS doc and had to lower that dose after immediate anxiety and worsening leg tremors were the result of first "low" dose prescribed by doc (1/2 tab 3x per day). She suggested I allow the lower dose (1/4 tab 4 x per day) to continue for
Nivrac77
in
Cure Parkinson's
8 years ago
Bladder problems
Anyone else having problems with their bladder but can't get to the bottom of it? I've had urine infections alot in the past and then in 2015 noticed I was going to pass urine alot, sometimes 3 times in a row thought it might be stress or a urine infection. Went to my doctor Dec 15 cause I was on a bus
Anyone else having problems with their bladder but can't get to the bottom of it? I've had urine infections alot in the past and then in 2015 noticed I was going to pass urine alot, sometimes 3 times in a row thought it might be stress or a urine infection. Went to my doctor Dec 15 cause I was on a bus
Kerryzzz
in
Thyroid UK
8 years ago
What is going On down there!?!?
Ok 43-year-old female. 5'6 215 lbs. No previous issues with uti or bladder problems. 1 month ago symptoms started after run in with body wash in the bath. Antibiotics cure only to have another run in with body wash. Antibiotics cure. Third time. No antibiotics. Here we are today with same symptoms as
Ok 43-year-old female. 5'6 215 lbs. No previous issues with uti or bladder problems. 1 month ago symptoms started after run in with body wash in the bath. Antibiotics cure only to have another run in with body wash. Antibiotics cure. Third time. No antibiotics. Here we are today with same symptoms as
carollynnreed
in
Pelvic Pain Support Network
8 years ago
Bath Soap irritation?
About a month and a half ago, I went to the gyno, because I was having breakthrough bleeding and wanted to make sure it would go away before I took a vacation to NM to visit a boyfriend. She didn't find anything, but I told her I was also having weird symptoms, like heaviness in the clitoral area, and
About a month and a half ago, I went to the gyno, because I was having breakthrough bleeding and wanted to make sure it would go away before I took a vacation to NM to visit a boyfriend. She didn't find anything, but I told her I was also having weird symptoms, like heaviness in the clitoral area, and
carollynnreed
in
Pelvic Pain Support Network
8 years ago
Lexapro and azilect
I take C/L 25-100, three or four a day. I also take 10 milligrams of Lexapro. Has anybody taken azilect .5 milligrams while also taking an antidepressant like Lexapro? From what I read it is not advisable as it can cause serotonin overdose. Also, does azilect exacerbate the effects of dyskinesia? This
I take C/L 25-100, three or four a day. I also take 10 milligrams of Lexapro. Has anybody taken azilect .5 milligrams while also taking an antidepressant like Lexapro? From what I read it is not advisable as it can cause serotonin overdose. Also, does azilect exacerbate the effects of dyskinesia? This
Enidah
in
Cure Parkinson's
8 years ago
Foot Pain
Good Morning, Anyone have issues with foot pain? I have pain on the balls of my feet right below the toe joints. It feels like I have fractured something down there and hurts to stand or walk. It is worse some days and better others. I like to walk for exercise and this is keeping me from being able
Good Morning, Anyone have issues with foot pain? I have pain on the balls of my feet right below the toe joints. It feels like I have fractured something down there and hurts to stand or walk. It is worse some days and better others. I like to walk for exercise and this is keeping me from being able
LauraKlumpp
in
Hughes Syndrome APS Forum
8 years ago
What helps reduce Dyskinesia .
We are giving her sinemet , amantadine, Mirapex etc. Over the years we have reduced the amount of sinemet (I think she was overdrugged in the beginning - and we couldn't tell as her tolerance to meds was good ) . Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval
We are giving her sinemet , amantadine, Mirapex etc. Over the years we have reduced the amount of sinemet (I think she was overdrugged in the beginning - and we couldn't tell as her tolerance to meds was good ) . Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval
mymomhaspd
in
Cure Parkinson's
8 years ago
Changing Meds to balance motor fluctuation and dyskinesia - Still working on it.
I recently had my annual visit with my neurologist. The main thing I asked him to help me with was to adjust my meds to reduce off times while preventing/reducing dyskinesia. Since I had been on Stalevo he suggested I change to Sinamet with the same strength but without the addition of entacapone that
I recently had my annual visit with my neurologist. The main thing I asked him to help me with was to adjust my meds to reduce off times while preventing/reducing dyskinesia. Since I had been on Stalevo he suggested I change to Sinamet with the same strength but without the addition of entacapone that
Joanne_Joyce
in
Cure Parkinson's
8 years ago
New meds added what to expect
Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X day, 1 rasagaline at night, and 1 clomazapam 0.5 at night. This has now changed, all still as above but at different times (more spread out) Now added as below 1 X madopar in the morning 125mg, 1x sinemet cr at night, 1x
Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X day, 1 rasagaline at night, and 1 clomazapam 0.5 at night. This has now changed, all still as above but at different times (more spread out) Now added as below 1 X madopar in the morning 125mg, 1x sinemet cr at night, 1x
allofatremor
in
Cure Parkinson's
8 years ago
Medication Question
I was diagnosed with PD two years ago, but I've had symptoms for decades. I'm an American living in Thailand and I have no medical insurance, so at the moment am not seeing a doctor. I have a question about medication. I take 1/2 Madopar 250 & 1/2 Comtan 200 twice per day. It takes about an hour for
I was diagnosed with PD two years ago, but I've had symptoms for decades. I'm an American living in Thailand and I have no medical insurance, so at the moment am not seeing a doctor. I have a question about medication. I take 1/2 Madopar 250 & 1/2 Comtan 200 twice per day. It takes about an hour for
jdc3
in
Cure Parkinson's
8 years ago
Urine Retention from UTI
Hi everyone I hope yr all okay as can be I don't know if this is endo related but I've just come back from hospital after having acute urine retention it started with a uti on Fri and I was in so much agony by sat morning I had go a+e even the morphine didn't touch the pain. They put a catheter in which
Hi everyone I hope yr all okay as can be I don't know if this is endo related but I've just come back from hospital after having acute urine retention it started with a uti on Fri and I was in so much agony by sat morning I had go a+e even the morphine didn't touch the pain. They put a catheter in which
Charlie-36
in
Endometriosis UK
8 years ago
I need help coping !
New member here...having trouble with feet and ankles swelling up. Pharmacists says it's the mess, I on carbodopa/levodopa 25/100 and amantadine. Getting severe anxiety over this. As it's getting worse. I was diagnosed last year at 54 y/o. I'm having trouble coping with this......
New member here...having trouble with feet and ankles swelling up. Pharmacists says it's the mess, I on carbodopa/levodopa 25/100 and amantadine. Getting severe anxiety over this. As it's getting worse. I was diagnosed last year at 54 y/o. I'm having trouble coping with this......
123leelee
in
Cure Parkinson's
8 years ago
Researchers Discover Why L-Dopa Stops Working
Ever wonder why your L-Dopa meds eventually become ineffective at controlling the progression of symptoms? Recent research may shed some light and offer solutions (eventually...). "In a discovery that might turn out to be a game changer in Parkinson’s research, University of Alabama at Birmingham researchers
Ever wonder why your L-Dopa meds eventually become ineffective at controlling the progression of symptoms? Recent research may shed some light and offer solutions (eventually...). "In a discovery that might turn out to be a game changer in Parkinson’s research, University of Alabama at Birmingham researchers
whack-a-mole
in
Cure Parkinson's
8 years ago
Endo & Urine Retention?
Hi everyone - I'm new here and getting ready for my first lap in October to definitively diagnose endo and remove any that they find. It's already confirmed that I have a 6cm cyst around my left ovary and smaller ones on both ovaries. Oddly, I have also been having trouble urinating over the past few
Hi everyone - I'm new here and getting ready for my first lap in October to definitively diagnose endo and remove any that they find. It's already confirmed that I have a 6cm cyst around my left ovary and smaller ones on both ovaries. Oddly, I have also been having trouble urinating over the past few
sukoshi
in
Endometriosis UK
8 years ago
Co2 acidosis
Mother Inlaw was in hospital for 5 weeks with pneumonia and a buildup of co2 came home with a nippy machine, she went to her 6 week check at the respiratory hospital it was ment to be a two night stay she been there a week she been give 6 months to live, last night we got told there's nothing they can
Mother Inlaw was in hospital for 5 weeks with pneumonia and a buildup of co2 came home with a nippy machine, she went to her 6 week check at the respiratory hospital it was ment to be a two night stay she been there a week she been give 6 months to live, last night we got told there's nothing they can
Jdeeee
in
PSP Association
8 years ago
Cystitis symptoms
Hi all, I don't often post on here but read the majority of posts and am often helped by them and the fantastic replies. What a brilliant site. Yet again I am suffering with cystitis symptoms and yet again the tests have come back clear, no infection. Does anyone have this problem. I'm not one for googling
Hi all, I don't often post on here but read the majority of posts and am often helped by them and the fantastic replies. What a brilliant site. Yet again I am suffering with cystitis symptoms and yet again the tests have come back clear, no infection. Does anyone have this problem. I'm not one for googling
jayfer
in
LUPUS UK
8 years ago
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