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Postviral fatigue syndrome
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Recommendations for an EDS specialist in London?
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Winter_night
in
Ehlers-Danlos Support UK
1 year ago
Collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
hunkyd0ry
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
PMR News from Med page 1.10.23
Rheumatology > General Rheumatology JAK Inhibitor Promising for Polymyalgia Rheumatica — Oral drug seen as safer than chronic, high-dose steroids by John Gever, Contributing Writer, MedPage Today January 9, 2023 Share on Facebook. Opens in a new tab or window Share on Twitter. Opens in a new tab or
Rheumatology > General Rheumatology JAK Inhibitor Promising for Polymyalgia Rheumatica — Oral drug seen as safer than chronic, high-dose steroids by John Gever, Contributing Writer, MedPage Today January 9, 2023 Share on Facebook. Opens in a new tab or window Share on Twitter. Opens in a new tab or
JanetGarrettN
in
PMRGCAuk
2 years ago
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recommendations for high cholesterol med please
I stopped taking my cholesterol meds in November, just tested again and it's now 371. For RLS I'm now on gabapentin (100mg) and .5mg requip (need to transition off). My RLS is the best it's been in years! However, my doc wants me to continue to take the pravastatin (80mg) for the high cholesterol
I stopped taking my cholesterol meds in November, just tested again and it's now 371. For RLS I'm now on gabapentin (100mg) and .5mg requip (need to transition off). My RLS is the best it's been in years! However, my doc wants me to continue to take the pravastatin (80mg) for the high cholesterol
RLSNona
in
Restless Legs Syndrome
1 year ago
struggling with feelings when people announce pregnancy
Me and my partner have been trying for over a year. We are at the stage where we have been referred to a fertility specialist and waiting blood tests and sperm analysis results. Everytime someone I am close to announces they are pregnant I take it really bad which my partner doesn’t understand why. One
Me and my partner have been trying for over a year. We are at the stage where we have been referred to a fertility specialist and waiting blood tests and sperm analysis results. Everytime someone I am close to announces they are pregnant I take it really bad which my partner doesn’t understand why. One
Watsy
in
Fertility Network UK
2 years ago
While I remember….
While I was sharing a four bay ward post hip replacement, two ladies - who had a total knee replacement and the other a half knee replacement - told me that although, like me, they had a spinal block plus sedation they both could hear the sawing and hammering and what the surgeons were saying…. but
While I was sharing a four bay ward post hip replacement, two ladies - who had a total knee replacement and the other a half knee replacement - told me that although, like me, they had a spinal block plus sedation they both could hear the sawing and hammering and what the surgeons were saying…. but
JGBH
in
NRAS
1 year ago
RLS and antidepressants
I’d be grateful for advice on this, as I feel I would benefit from an antidepressant. I’ve had RLS for decades, getting gradually more of a nuisance in the last 10 years or so, and have taken Codeine 30mg for several years, which helps to an extent, sometimes! I know antidepressants make RLS worse. I
I’d be grateful for advice on this, as I feel I would benefit from an antidepressant. I’ve had RLS for decades, getting gradually more of a nuisance in the last 10 years or so, and have taken Codeine 30mg for several years, which helps to an extent, sometimes! I know antidepressants make RLS worse. I
Embroiderer
in
Restless Legs Syndrome
1 year ago
Bye Bye Tramadol
Since I started methadone a couple months ago, I understand better about the difficulties I started to have with Tramadol. BTW, I went cold turkey off Tramadol, because methadone would negate it anyway. I realize now that after 4-5 years on Tramadol I was augmenting badly. I didn't realize what was
Since I started methadone a couple months ago, I understand better about the difficulties I started to have with Tramadol. BTW, I went cold turkey off Tramadol, because methadone would negate it anyway. I realize now that after 4-5 years on Tramadol I was augmenting badly. I didn't realize what was
ratfancy
in
Restless Legs Syndrome
1 year ago
Understanding my RLS Symptoms
Hi togther, I am new to this board and registered because my RLS spread to my arms, shoulders, back and neck one week ago and now I am really scared, because having an almost overall RLS is terrible. RLS for me started in 2018 when I was 34 years old "within a day" (or lets say 3-7 days together with
Hi togther, I am new to this board and registered because my RLS spread to my arms, shoulders, back and neck one week ago and now I am really scared, because having an almost overall RLS is terrible. RLS for me started in 2018 when I was 34 years old "within a day" (or lets say 3-7 days together with
mistaminista
in
Restless Legs Syndrome
1 year ago
Vaginal bleeding following bowel movement.
I have had a pessary ring in place, successfully for about 10 years. I am using vaginal oestrogen crem. Recently had a slightly difficult bowel movement bowel movement, after which I experienced slight vaginal bleeding. I will make an appointment with my GP, but wondered if anyone else had experienced
I have had a pessary ring in place, successfully for about 10 years. I am using vaginal oestrogen crem. Recently had a slightly difficult bowel movement bowel movement, after which I experienced slight vaginal bleeding. I will make an appointment with my GP, but wondered if anyone else had experienced
young-at-heart48
in
Pelvic Pain Support Network
2 years ago
Buprenorphine finished. What alternative opiates are available?
After four weeks of insomnia and continued PLMs on 15 mgc patches, I shall abandon the treatment. I’d be grateful for advice on a.) potential withdrawal issues, and b.) alternative opiates.
After four weeks of insomnia and continued PLMs on 15 mgc patches, I shall abandon the treatment. I’d be grateful for advice on a.) potential withdrawal issues, and b.) alternative opiates.
dickJones
in
Restless Legs Syndrome
1 year ago
Suffered since childhood
Here's what works for me... I've been able to manage (pain and discomfort) RLS a couple different ways..In the beginning I used requip and Ultram until Ultram because a so called problem drug(I never had any issues with it) I used it for a couple of years before requip became available and then used
Here's what works for me... I've been able to manage (pain and discomfort) RLS a couple different ways..In the beginning I used requip and Ultram until Ultram because a so called problem drug(I never had any issues with it) I used it for a couple of years before requip became available and then used
fred6113
in
Restless Legs Syndrome
1 year ago
Lessons from last Dr. appt: drug testing for kratom and a Suboxone issue
Hi, All. I went to a new doctor last week and she did a blood test which gave immediate results. Posters have mentioned being worried about kratom and drug testing…but she said there is no test for kratom...just wanted to pass that along. The Delta 8 gummies showed up, as did Suboxone. I learned another
Hi, All. I went to a new doctor last week and she did a blood test which gave immediate results. Posters have mentioned being worried about kratom and drug testing…but she said there is no test for kratom...just wanted to pass that along. The Delta 8 gummies showed up, as did Suboxone. I learned another
TeddiJ
in
Restless Legs Syndrome
1 year ago
Sleep cocktail regimen for rls?,
Hello everyone, For the past few weeks I have been taking 50 mgs. Trazodone with 100 mgs Gabapentin two hours before bed and then 300mgs. Gabapentin about half hour before bed. I take a break every four days. At which point I take 1 mg. Clonazepam. This has been helping me both with my RLS and my
Hello everyone, For the past few weeks I have been taking 50 mgs. Trazodone with 100 mgs Gabapentin two hours before bed and then 300mgs. Gabapentin about half hour before bed. I take a break every four days. At which point I take 1 mg. Clonazepam. This has been helping me both with my RLS and my
zeusop
in
Restless Legs Syndrome
1 year ago
Most effective medications for suppressing Periodic Limb Movements of Sleep (PLMS)
An interesting article from the Journal of Clinical Sleep Medicine (Jan 24, 2023) https://doi.org/10.5664/jcsm.10440 I'm unable to access the full article but here's part of the abstract. STUDY OBJECTIVES:Periodic limb movements during sleep (PLMS) are a frequent finding in restless legs syndrome (
An interesting article from the Journal of Clinical Sleep Medicine (Jan 24, 2023) https://doi.org/10.5664/jcsm.10440 I'm unable to access the full article but here's part of the abstract. STUDY OBJECTIVES:Periodic limb movements during sleep (PLMS) are a frequent finding in restless legs syndrome (
Hidden
in
Restless Legs Syndrome
1 year ago
Burning Mouth Syndrome
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
JustJaxx
in
Fibromyalgia Action UK
2 years ago
treatment and relationship - couples therapy?
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
honeybeanbee
in
Fertility Network UK
2 years ago
methadone and shortness of breath
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
KClark68
in
Restless Legs Syndrome
1 year ago
up coming urology procedure and sick day rules?
i am waiting to have laser surgery with general anaesthetic on a benign prostate problem shortly. I am successfully reducing my pred for PMR for the second time in 3 and half years from 10 to 7.5 currently and taking it very slowly. Do I follow the sick day rules when having this procedure and if so
i am waiting to have laser surgery with general anaesthetic on a benign prostate problem shortly. I am successfully reducing my pred for PMR for the second time in 3 and half years from 10 to 7.5 currently and taking it very slowly. Do I follow the sick day rules when having this procedure and if so
Pommygranny
in
PMRGCAuk
1 year ago
Treatment of RLS with Pramipexole
I was diagnosed with RLS about 6 months ago. My consultant prescribed Ropinirole but after reading adverse comments about it , I told my GP I did not want to take it and I am now taking 300mg of pregabalin twice per day. Unfortunately my symptoms are not improving . My GP has now prescribed Pramipexole
I was diagnosed with RLS about 6 months ago. My consultant prescribed Ropinirole but after reading adverse comments about it , I told my GP I did not want to take it and I am now taking 300mg of pregabalin twice per day. Unfortunately my symptoms are not improving . My GP has now prescribed Pramipexole
DonWilliams
in
Restless Legs Syndrome
1 year ago
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