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Update re withdrawal of Pred prescription
Further to yesterday’s post, I have just rung the surgery to be advised by the receptionist that a further prescription for 1 mg Pred has been issued today. This will be sent to my pharmacy today and the pharmacy then send me a text when it is ready for uplift, which is their normal practice. I will
Further to yesterday’s post, I have just rung the surgery to be advised by the receptionist that a further prescription for 1 mg Pred has been issued today. This will be sent to my pharmacy today and the pharmacy then send me a text when it is ready for uplift, which is their normal practice. I will
Billswife
in
PMRGCAuk
8 days ago
Different Brand of Pred
My surgery dispense for me but by mistake they sent my prescription to a local chemist. I see they're a different make to my usual ones. Is it ok to take another brand or should I insist the surgery give me my usual ones?
My surgery dispense for me but by mistake they sent my prescription to a local chemist. I see they're a different make to my usual ones. Is it ok to take another brand or should I insist the surgery give me my usual ones?
diana1998
in
PMRGCAuk
8 days ago
Update on wide QRS Kardia reading
Well the arrhythmia team finally got back to me yesterday. As far as they can tell from the ECG I sent them they can see a delay in the transmission of electrical signals from the ventricles to the atrium causing my symptoms. It feels like ectopics but the rhythm is normal . They have advised me to get
Well the arrhythmia team finally got back to me yesterday. As far as they can tell from the ECG I sent them they can see a delay in the transmission of electrical signals from the ventricles to the atrium causing my symptoms. It feels like ectopics but the rhythm is normal . They have advised me to get
Hammerboy
in
Atrial Fibrillation Support
8 days ago
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liver diagnosis
I had an ablation last September now the mri indicates dots around the ablation center . This mission is over 5 years old. I was diagnosed hcc from one mri no blood tests . I went out of country for a cat scan they said no tumor no cancer and porthole hypertension come back in 6 months. I’m now at a
I had an ablation last September now the mri indicates dots around the ablation center . This mission is over 5 years old. I was diagnosed hcc from one mri no blood tests . I went out of country for a cat scan they said no tumor no cancer and porthole hypertension come back in 6 months. I’m now at a
Pinapple123
in
British Liver Trust
9 days ago
Should I reduce my desogestrel dose?
Hi everyone I'm new here, sorry if this seems like a bit of an essay - I am after some advice about desogestrel. I have been on desogestrel for almost 10 months now (8 months at double dose). It's not been an easy ride, constant bleeding everyday (very heavy to start with). Finally at 9 months
Hi everyone I'm new here, sorry if this seems like a bit of an essay - I am after some advice about desogestrel. I have been on desogestrel for almost 10 months now (8 months at double dose). It's not been an easy ride, constant bleeding everyday (very heavy to start with). Finally at 9 months
bryoccoli
in
Endometriosis UK
9 days ago
update
Update on my post “What should I do”, thank you for all your helpful replies. I had my COVID Jab and no after effects from that. I am seeing the Surgery Nurse to have my leg dressed twice a week.The haematoma is slow to heal due to the blood thinning medication but Hopefully it will heal soon. I heard
Update on my post “What should I do”, thank you for all your helpful replies. I had my COVID Jab and no after effects from that. I am seeing the Surgery Nurse to have my leg dressed twice a week.The haematoma is slow to heal due to the blood thinning medication but Hopefully it will heal soon. I heard
Macas
in
PMRGCAuk
9 days ago
Why does sitting up have to be such a pain post-op?! Is this normal or should I be concerned?
Hi all! I’ve just passed two weeks post op, heading in to week 3 (laparoscopy and hysteroscopy) and hoping to see if people have experienced the same when it comes to adjusting back to ‘normal’ life. This is my first surgery and I was diagnosed with endo and had four incisions, with a heap of excisions
Hi all! I’ve just passed two weeks post op, heading in to week 3 (laparoscopy and hysteroscopy) and hoping to see if people have experienced the same when it comes to adjusting back to ‘normal’ life. This is my first surgery and I was diagnosed with endo and had four incisions, with a heap of excisions
MidnightX
in
Endometriosis UK
9 days ago
Advice needed
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
bohica666
in
Endometriosis UK
9 days ago
Advice on my Endo journey and symptoms
Firstly, apologies if this has been asked, but i couldn’t find anything specific in the search options. bit of a summary of my journey: *have had period since 12 years old, always been very painful, very heavy, very long - was told at 15 years old by DR after collapsing at a friends house to 'learn
Firstly, apologies if this has been asked, but i couldn’t find anything specific in the search options. bit of a summary of my journey: *have had period since 12 years old, always been very painful, very heavy, very long - was told at 15 years old by DR after collapsing at a friends house to 'learn
selkie83
in
Endometriosis UK
9 days ago
Unusual case
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
npac
in
Advanced Prostate Cancer
9 days ago
Side Effects Pt 2
So visit to the hospital didn’t go as hoped. As I feared, not much understanding of husband’s side effects and my concerns about his pre existing conditions and his low mood due to 10 drops a day. Pressure in eye with failed trab was 30, so acetazolomide prescribed despite our reservations after side
So visit to the hospital didn’t go as hoped. As I feared, not much understanding of husband’s side effects and my concerns about his pre existing conditions and his low mood due to 10 drops a day. Pressure in eye with failed trab was 30, so acetazolomide prescribed despite our reservations after side
Gazzaswife
in
Glaucoma UK
9 days ago
Shortness of breath?
In short I have endometriosis and adenomyosis. Full story can be read on my last post attached to my profile. My question is, does anyone else suffer with shortness of breath? I am 5.7, 51kgs. Regular gym goer, runner, swimmer (when not in pain) however towards the week running up to my period and in
In short I have endometriosis and adenomyosis. Full story can be read on my last post attached to my profile. My question is, does anyone else suffer with shortness of breath? I am 5.7, 51kgs. Regular gym goer, runner, swimmer (when not in pain) however towards the week running up to my period and in
Mia843
in
Endometriosis UK
9 days ago
low neutrophils
Hello everyone, it’s been a while since I posted anything. My PET scan in September of 2023 showed the cancer had progressed to a lymph node, I had never had surgery for my cancer and I have been on Ibrance 100 and letrozole for 7 years. My oncologist and I decided it was time for surgery, I had a double
Hello everyone, it’s been a while since I posted anything. My PET scan in September of 2023 showed the cancer had progressed to a lymph node, I had never had surgery for my cancer and I have been on Ibrance 100 and letrozole for 7 years. My oncologist and I decided it was time for surgery, I had a double
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
10 days ago
PV - HU vs Jakafai, Insurance Denied Jakafai
So I've been on Peg IFN for close to [u]5 years[/u] and my body can't seem to tolerate it anymore. My white counts just keep going lower. Current counts at just 65mcg are: [WBC "1.51", ABS-Neut ".66", ABS Lymph ".60"]. I was taking over 135mcg for several years. I'm starting to get sick and having
So I've been on Peg IFN for close to [u]5 years[/u] and my body can't seem to tolerate it anymore. My white counts just keep going lower. Current counts at just 65mcg are: [WBC "1.51", ABS-Neut ".66", ABS Lymph ".60"]. I was taking over 135mcg for several years. I'm starting to get sick and having
jon1972
in
MPN Voice
10 days ago
adhesions in mri - please help
hi everyone - I had an mri to assess whether or not to go ahead with a lap. I have recurrent miscarriages and dull aches constantly lower stomach (but not awful) but especially when I’ve been pregnant (before losing). I’m investigating whether my pain is linked to infertility and where the pain is coming
hi everyone - I had an mri to assess whether or not to go ahead with a lap. I have recurrent miscarriages and dull aches constantly lower stomach (but not awful) but especially when I’ve been pregnant (before losing). I’m investigating whether my pain is linked to infertility and where the pain is coming
Maybeendo
in
Endometriosis UK
10 days ago
Just been diagnosed, unsure of what to do next?
Hello! So I finally had the results from my MRI and it has confirmed endometriosis was found. It was honestly just utter relief. I nearly burst into tears. I have been going backwards and forwards, having test after test, advocating for myself, being gaslit by different gp's, for years and now
Hello! So I finally had the results from my MRI and it has confirmed endometriosis was found. It was honestly just utter relief. I nearly burst into tears. I have been going backwards and forwards, having test after test, advocating for myself, being gaslit by different gp's, for years and now
PennyCrowe
in
Endometriosis UK
10 days ago
MV repair (OHS) – six months on – tips and thoughts……..
Thought I would share my story to help those new to the site….. I had a successful MV repair six months ago over at Oxford (excellent surgeon) – my valve had been prolapsed since childhood but only started seriously leaking last year (NB. I had 2 x covid vaccinations). Two days in ICU then five days
Thought I would share my story to help those new to the site….. I had a successful MV repair six months ago over at Oxford (excellent surgeon) – my valve had been prolapsed since childhood but only started seriously leaking last year (NB. I had 2 x covid vaccinations). Two days in ICU then five days
aviation1
in
British Heart Foundation
10 days ago
Help!
I had valve replacement surgery 11 days ago. I'm not achieving the walking goals and feel quite down. Anyone else further down the path with advice please?
I had valve replacement surgery 11 days ago. I'm not achieving the walking goals and feel quite down. Anyone else further down the path with advice please?
Pamelodie
in
British Heart Foundation
10 days ago
Help for PMR relapse?
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
Karenjaninaz
in
PMRGCAuk
11 days ago
anyone had a successful surgery with spinal cord or dorsal root ganglion stimulator surgery?
Hi - been suffering with pudendal pain due to sports for about 15 years. Has anyone tried spinal cord or dorsal root ganglion stimulators and was it successful? I’m so tired of this pain. I just want to live a normal life. I’m currently on 30mg of notriptyline to help with pain. Thank you
Hi - been suffering with pudendal pain due to sports for about 15 years. Has anyone tried spinal cord or dorsal root ganglion stimulators and was it successful? I’m so tired of this pain. I just want to live a normal life. I’m currently on 30mg of notriptyline to help with pain. Thank you
Hidden
in
Pelvic Pain Support Network
11 days ago
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